Adaptation von Eltern an eine chronische Erkrankung ihres Kindes nach der Diagnosestellung

Abstract

The course and the adaptivity of parental coping with a chronical disease in their child (leukemia, solid tumors, diabetes or epilepsy) was studied during the first three months after diagnosis. 66 parents answered questionnaires to their coping and their quality of life as well as to the perceived quality of life of their children 1-2 weeks and again 8-12 weeks after diagnosis. As coping was stable, the parents' and children's quality of life increased over time. Coping strategies using communication and social support improved the physical well-being of the parents. Family orientation and optimism are helpful for parents and children, too, but rumination decreased emotional well-being of the parents. Psychosocial care for families with a chronically ill child should improve open communication and social orientation in an early stage of the disease and should try to change maladaptive cognitive reactions.

The impact of the severity of disease and social disadvantage on quality of life in families with congenital cardiac disease

“…These findings are consistent with the literature, describing a tendency to utilize intra-family resources in case of chronic childhood disease. 36 On average, the parents described only minor restrictions in the quality of life of their children. This might because most of our cohort was deemed to have only mild cardiac disease.…”

Caring for a Child with Congenital Adrenal Hyperplasia Diagnosed by Newborn Screening: Parental Health-Related Quality of Life, Coping Patterns, and Needs

“…We assume the time since diagnosis might be decisive for the parental HrQoL. At the time of the study, the mean age of the CAH children diagnosed by newborn screening was 11.01 years, whereas the cited study was performed during the first three months after diagnosis [47]. It has been shown that HrQoL increased over time [43].…”

Familiäre Ressourcen und Strategien bei Krebs

“…Motivation, finanzielle Hilfe, Zeitressourcen für krankheitsbezogene Aufgaben, Informationsrecherche, Beratungsaktivitäten). Diese umfangreiche Bereitstellung der psychosozialen Ressourcen kann auf die Komplexität der kausalen Belastungen durch die Neoplasie (körperlich, emotional, sozial) zurückgeführt werden, was Goldbeck et al [13] bestätigen.…”