The impact of the severity of disease and social disadvantage on quality of life in families with congenital cardiac disease

Goldbeck, Lutz; Melches, Juliane

doi:10.1017/s1047951105002118

Cited by 53 publications

(49 citation statements)

References 31 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…In our analysis, 6–17 year‐olds with CHD whose caregiver reported financial problems were twice as likely to report a family member need for mental health services as those without family financial problems. In other studies, financial and socioeconomic stressors explain more variation in the psychological impact on families than CHD severity …”

Section: Discussionmentioning

confidence: 82%

Financial burdens and mental health needs in families of children with congenital heart disease

McClung

Glidewell

Farr

2018

Congenital Heart Disease

View full text Add to dashboard Cite

show abstract

Section: Discussionmentioning

confidence: 82%

Financial burdens and mental health needs in families of children with congenital heart disease

McClung

Glidewell

Farr

2018

Congenital Heart Disease

View full text Add to dashboard Cite

show abstract

“…Some authors state that the severity of the CHD does not affect HRQOL [4,5] while others state that there is a connection between the severity of the CHD and HRQOL [6,7]. Spurkland et al [8] found that adolescents aged between 13 and 18 years with severe CHD had a higher level of psychological problems related to physical symptoms.…”

Section: Introductionmentioning

confidence: 99%

Does the severity of congenital heart defects affect disease-specific health-related quality of life in children in Bosnia and Herzegovina?

et al. 2009

View full text Add to dashboard Cite

The results of the assessment by the PedsQL 3.0 Cardiac Module, a cardiac disease-specific instrument for children with CHD, indicate that HRQOL is poorest in children with complex CHD. Therefore, it is necessary to take the appropriate preventive measures for these patients, which include early (timely) cardiosurgical intervention and active psychological support to limit the negative impact of serious forms of CHD on the quality of life of these children.

show abstract

“…Some studies have reported that poorer QOL is related to cardiac instability [15], greater disease severity [8,12], and poorer motor functioning and autonomy [11], although no differences were found for the variables of gender, age, and marital status [15]. Some studies have found poorer psychological wellbeing and QOL in CHD patients than in healthy control subjects [18,19], whereas others have claimed there is no difference between the two groups.…”

mentioning

confidence: 99%

Quality of Life Experienced by Adolescents and Young Adults With Congenital Heart Disease

et al. 2011

View full text Add to dashboard Cite

This study aimed to assess the quality of life (QOL) experienced by adolescents and young adults with congenital heart disease (CHD) and to determine which factors negatively affect adjustment and which factors increase resilience. The participants in the study were 74 patients with CHD (41 males and 33 females) ranging in age from 12 to 26 years (mean age, 18.76 ± 3.86 years). Demographic information and a complete clinical history were obtained. The participants were interviewed regarding topics such as social support, family educational style, selfimage, and physical limitations. They responded to questions in a standardized psychiatric interview (SADS-L) and completed a self-report questionnaire (WHOQOL-BREF) for assessment of QOL. Compared with the Portuguese population as a whole, the study patients had better QOL, especially with regard to the environmental dimension (t = 3.754; P = 0.000) and social relationships (t = 2.333; P = 0.022). Patients who had undergone surgery experienced poorer QOL in the physical dimension (t = -1.989; P = 0.050), in social relationships (t = -2.012; P = 0.048) and overall (Mann-Whitney U = 563.000; P = 0.037). Social support played a positive role in the QOL of the patients, both in the physical dimension (t = 3.287; P = 0.002) and in social relationships (t = 3.669; P = 0.000). A higher school achievement also was associated with higher levels of QOL overall (Mann-Whitney U = 457.000; P = 0.046) as well as in the physical (t = 2.045; P = 0.045) and environmental (t = 2.413; P = 0.018) dimensions. Physical limitations had a detrimental impact on general QOL (Mann-Whitney U = 947.500; P = 0.001) and on the physical (t = -2.910; p = 0.005) and psychological (t = -2,046; P = 0.044) dimensions. Patients with CHD tended to perceive QOL as better when their social networks were supportive.

show abstract

The impact of the severity of disease and social disadvantage on quality of life in families with congenital cardiac disease

Abstract: Programmes providing psychosocial support for children with cardiac disease and their caregivers should consider risk factors which are both medical and social.

Cited by 53 publications

References 31 publications

Financial burdens and mental health needs in families of children with congenital heart disease

Financial burdens and mental health needs in families of children with congenital heart disease

Does the severity of congenital heart defects affect disease-specific health-related quality of life in children in Bosnia and Herzegovina?

Quality of Life Experienced by Adolescents and Young Adults With Congenital Heart Disease

Contact Info

Product

Resources

About