Adapting life to the reality of diabetes

Areshtanab, Hossein Namdar; Moonaghi, Hossein Karimi; Jouybari, Leila; Zamanzadeh, Vahid; Ebrahimi, Hossein

doi:10.26719/2018.24.8.729

Cited by 3 publications

(1 citation statement)

References 27 publications

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“…Previous studies have found that parents of children with T1D felt the disease affected the diet and social activities of the entire family, and they considered their adapted life with the disease as the ‘new normal’ (Campbell et al, 2014; Howe et al, 2012; Symons et al, 2015). Adaptation to diabetes involves a dynamic process of disease management, during which patients adjust their perception, emotions and behaviours to reconstruct a ‘normal life’ (Areshtanab et al, 2018). After their children were diagnosed, the parents who participated in this study assisted their children in rebuilding a healthy life, ultimately accepting their children's diagnosis and regarding disease management as a part of daily life.…”

Section: Discussionmentioning

confidence: 99%

Managing type 1 diabetes of a child: Parents' perspectives

Lin,

Lee

2024

Child

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PurposeManaging type 1 diabetes (T1D) challenges children and their parents. Parents need to learn the necessary skills and later transfer the responsibility of care to their children as they develop. The transition process involves autonomy in behaviour and decision‐making. This study explores the shared management experiences of Taiwanese parents and their children with type 1 diabetes.Design and methodsThis study employed a qualitative design using a grounded theory approach. Purposive sampling was used at a medical centre in Taiwan for participant recruitment. Twenty‐nine parents of children who had been diagnosed with T1D were interviewed in‐depth. Data were analysed using constant comparison and repeated verification.ResultsAfter a child was diagnosed with T1D, the parents initiated ‘Life‐long lesson: Growing together with the child on the road to normality’. Three main categories emerged: ‘confronting the disease diagnosis’, ‘establishing supportive and collaborative involvement’ and ‘assisting the child in building a sense of belonging’. Sub‐categories within each significant category were also included.ConclusionsTaiwanese parents perhaps have a controlling or directive role for a long period in their child's lives and shared management of their health condition. This study's findings can help healthcare workers better understand the process of parents' shared management of T1D with their children and how to best communicate with children about the disease and care in accordance with the child's stage of development.

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Section: Discussionmentioning

confidence: 99%