Análise normativa sobre a voz da criança na legislação brasileira de proteção à infância

Abstract

Normative analysis of the voice of children inBrazilian child protection legislation Results:The legislation acknowledges and stresses the voice of children in the decision-making process in research and healthcare. Any recognition of the right to dignity, liberty, information, and protection depends on what the adult decision-maker (with parental authority) believes is the child's capacity for discernment and whether the situation will cause self-harm.Conclusions: the normative child protection discourse grants children a voice, although with restrictions and under the authority of the adult with parental authority. Keywords:Child. Child advocacy. Patient participation. Decision making. RESUMO Objetivo: identificar e analisar, no discurso normativo de proteção à infância no Brasil, marcas das vozes da criança na tomada de decisão sobre seus cuidados em saúde.Método: análise normativa da legislação de proteção à infância no Brasil (1988Brasil ( -2012, operacionalizada pela análise de conteúdo de nove textos, no ano de 2015.Resultados: A legislação destaca a voz da criança no processo decisório, tanto na pesquisa como nos cuidados em saúde. O reconhecimento do direito a dignidade e liberdade, informação e proteção depende do julgamento do adulto sobre a capacidade de discernimento da criança e se a situação a isenta de danos para si mesma.Conclusões: o discurso normativo de proteção à infância confere voz à criança, mas com restrição e sob a tutela do adulto. Palavras-chave: Criança. Defesa da criança e do adolescente. Participação do paciente. Tomada de decisões. RESÚMEN Objetivo: identificar y analizar en el discurso normativo de protección a la infancia en Brasil, marcas de voces del niño en la toma de decisiones sobre su atención en salud.Método: Análisis normativo de la legislación de protección a la infancia en Brasil (1988Brasil ( -2012, operacionalizado por el análisis de contenido de nueve textos, en año 2015.Resultados: La legislación destaca la voz del niño en él proceso de toma de decisiones, tanto en la investigación como en el cuidado de la salud. El reconocimiento del derecho a la dignidad a la libertad, a la información y a la protección depende del juicio del adulto sobre la capacidad de un niño para el discernimiento y si la situación es libre de daño a sí misma.Conclusiones: el discurso normativo de protección a infancia le brinda voz al niño, pero con restricción y bajo la tutela de un adulto. Palabras clave: Niño. Defesa del niño. Participación del paciente. Toma de decisiones.

A scoping review of the moral experiences of children with medical complexity in Brazil

“…From an ethical perspective, legal documents and standards in Brazil have described the importance of children's participation in decisions involving them (6) . Brazilian legislation stresses that children must be included, and their views must be taking into consideration in decisions such as medical treatments (6) .…”

“…From an ethical perspective, legal documents and standards in Brazil have described the importance of children's participation in decisions involving them (6) . Brazilian legislation stresses that children must be included, and their views must be taking into consideration in decisions such as medical treatments (6) . In addition, the recognition of children's perspectives and preferences have been described in the childhood research field as a strategy to promote more inclusive practices that can meet their needs and promote equitable care (7) .…”

Children’s satisfaction and dissatisfaction with pain management in a Pediatric Emergency Department

“…To this end, the family and other team members play a key role in this preparation and reduce their anxiety (24)(25) . The active participation of children in their care should be encouraged both by professionals and their families, hence taking into consideration their right to voice and participation in health care (26) .…”

Fostering global dialogue: Conceptualisations of children's rights to participation and protection

“…Yet, moving forward, it is important to redress this lacuna to better respect children's rights. Moreover, research that values the participation of children and youth reveals that they want to be heard (Cody, 2017; Holt, 2018; Vis et al., 2012), rather than receive traditional paternalistic protection (Bubadué et al, 2016).…”