Caring for a relative with dementia: family caregiver burden

Papastavrou, Evridiki; Kalokerinou, Athena; Papacostas, Savvas; Tsangari, Haritini; Sourtzi, Panayota

doi:10.1111/j.1365-2648.2007.04250.x

Cited by 431 publications

(380 citation statements)

References 102 publications

(234 reference statements)

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“…A recent study emphasizes that neuroticism is a predictor of negative emotion coping and not of the use of specific coping strategies (Chappell and Dujela, 2009). In turn, it was found that high burdened relatives use more emotional-focused coping strategies, while less burdened relatives used more problemsolving approaches to caregiving demands (Papastavrou et al, 2007). Importantly, caregivers who were identified as less responsive and less psychological available were shown to have a coping style that was correlated to shorter survival time in persons with dementia (McClendon et al, 2004).…”

Section: Discussionmentioning

confidence: 99%

Influence of personality on caregiver's burden, depression and distress related to the BPSD

Melo

Marôco

Mendonça

2011

Int J Geriat Psychiatry

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Objective: We hypothesize that the personality influences the caregiver's depression, burden and distress related to BPSD. Subjects and methods: Participants were 105 consecutive patients with dementia and their family caregivers, living at home, attending a Dementia Clinic. A cross-sectional design was used with an applied a structured interview at home. Comprehensive assessments included: personality (NEO-FFI), burden (ZBI), depression (CES-D) and distress related to BPSD (NPI-distress). Statistical Path analysis was used to study the hypothetical causal and mediating effects between independent and criterion variables. Results: Neuroticism increased, whereas extraversion decreased, both caregiver's depression and burden. Agreeableness was also found to decrease the burden. The personality characteristics only indirectly influenced the caregiver's distress related to BPSD. Conclusion: These results reinforce the importance of including personality as an individual resource of the caregiver in the conceptual models and research on caregiving. Assessment of caregiver's personality characteristics should be taken into account for the planning of intervention programs.

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Section: Discussionmentioning

confidence: 99%

Influence of personality on caregiver's burden, depression and distress related to the BPSD

Melo

Marôco

Mendonça

2011

Int J Geriat Psychiatry

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“…This finding was not unexpected, as in most cultures women are perceived as nurturing, and so caregiving is often a socially imposed occupation. 9 Numerous sources of stress and caregiver burdens have been identified by research. These stressors range from having to perform daily self-care tasks, such as bathing and feeding, to coping with adverse problem behaviours, such as wandering off and becoming disorientated in the environment.…”

Section: Introductionmentioning

confidence: 99%

Caregiving for people with dementia in a rural context in South Africa

Gurayah

2015

South African Family Practice

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Background: This research is an exploratory pilot study into the phenomenon of caregiving for people with dementia in a rural context in South Africa. Method: This study used a qualitative method of inquiry for conducting individual interviews with five caregivers to collect the data. The interviews were conducted in the local language of isiZulu. All interviews were audiotaped, and then transcribed into English. Transcriptions were analysed using thematic analysis. Findings: There were three main emergent themes, namely views and responsibilities of the caregiver, impact of caregiving, and skills and services to assist the caregiver. There were numerous subsidiary themes such as acceptance of the ageing process, a sense of duty and kinship in African culture, and dealing with problem behaviours. Caregiving was also viewed as a character-building experience, and has major implications such as promoting social isolation, restricting activities of daily living, reducing employment and increasing financial burden. Services that would alleviate caregiver burden are education, caregiver training, a financial grant and respite care. Conclusions: Although these findings are not generalisable, it would appear that caregivers of people with dementia suffer significant psychosocial distress, and would benefit from emotional and financial support. It remains to be seen who will provide this support, but policy-makers as well as governmental and non-governmental organisations will have to factor this into their forward planning to render an effective service for people with dementia and their families. Advocacy groups should also disseminate information on dementia and caregiving responsibility, whilst healthcare professionals should screen for caregiver stress or caregiver burden in individuals caring for people with dementia.

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“…Tais mudanças os tornam percepção de estresse (estratégias de enfrentamento); e as consequências dos cuidados sobre o bem-estar geral do cuidador (PAPASTAVROU et al, 2007).…”

Section: Cotidiano Dos Cis E O Processo De Cuidar Do Outrounclassified

“…No presente estudo, o CI foi definido como o principal responsável pelo paciente, por prover os cuidados requeridos por ele e não possuir formação especializada para exercer a função de cuidador. Essa função muitas vezes implica não somente em cuidar do doente mas também em conciliar os cuidados à organização e gerenciamento das atividades e afazeres domésticas, exigindo que o CI reorganize a rotina de atividades diárias e seu cotidiano (PEDRO; MARCON, 2007). Tal aspecto mostra-se relevante, particularmente para a Terapia Ocupacional, que se caracteriza como uma área de conhecimento e uma prática de saúde que tem como objeto de conhecimento e intervenção os problemas do homem em sua vida cotidiana de atividades.…”

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O cotidiano de cuidadores informais de pacientes em tratamento quimioterápico

Toledo¹,

Ballarin²

2013

CTO

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This paper aims to discuss the daily life of Informal Caregivers (ICG) of cancer patients assisted in an outpatient chemotherapy unit of a university hospital in Campinas, São Paulo state. This study is part of a broader investigation. It was approved by a Research Ethics Committee under protocol n. 0288/10, and all ethical principles were adopted in accordance with the recommendations of Resolution 196/96. It is a descriptive, quantitative and qualitative study with literature and field research. Semi-structured interviews were conducted with 14 ICGs for data collection. The data were analyzed based on the goals of the study and the theory and practice pertaining to the Theory of Social Representation. The results showed that (92.8%) of the ICGs are female (57.1%), married, between 41 and 60 years old (78.5%), living in the same household of the sickened family members at the following degrees of relatedness: (35.7%) mother-daughter, followed by (21.4%) husband-wife. In the Informal Caregivers' perception, their role interfered with their daily activities, bringing restrictions to leisure activities, self-care and work. The study expanded the understanding of the impacts that the function of caring brings to their everyday activities, helping to foster discussions about the need to implement actions and interventions of occupational therapy strategies that facilitate the daily lives of ICGs. Keywords: Caregivers, Medical Oncology, Occupational Therapy.Resumo: Este trabalho tem por objetivo discorrer sobre o cotidiano de cuidadores informais -CIs de pacientes com câncer assistidos em uma unidade ambulatorial de quimioterapia de um hospital universitário do município de Campinas, estado de São Paulo. É parte de uma investigação mais ampla. O estudo foi aprovado por Comitê de Ética em Pesquisa sob o protocolo de nº 0288/10, sendo que todos os preceitos éticos foram adotados de acordo com o preconizado na resolução 196/96. Caracteriza-se como estudo de natureza descritiva, quantiqualitativo, em que se realizou pesquisa bibliográfica e de campo. O instrumento utilizado para a coleta de dados junto a 14 CIs foi a entrevista semiestruturada. Os dados obtidos foram analisados com base nos objetivos do estudo e nas formulações teóricas pertinentes à Teoria da Representação Social. Os resultados evidenciaram que 92,8% dos CIs são do sexo feminino, 57,1% delas são casadas, com idade entre 41 e 60 anos (78,5%), residentes na mesma moradia do familiar adoecido e cujo grau de parentesco correspondia a: filha-mãe, 35,7%; seguido de esposa-marido, 21,4%. Na percepção dos CIs, a função desempenhada interferiu em suas atividades cotidianas, restringindo atividades de lazer, autocuidado e trabalho. O estudo ampliou a compreensão sobre os impactos que a função de cuidar acarreta no cotidiano dos CIs investigados, contribuindo para fomentar as discussões acerca da necessidade de construção de intervenções e estratégias terapêuticas ocupacionais que facilitem o cotidiano desses CIs.

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Caring for a relative with dementia: family caregiver burden

Abstract: Caregivers, especially women, need individualized, specific training in how to understand and manage the behaviour of relatives with dementia and how to cope with their own feelings.

Cited by 431 publications

References 102 publications

Influence of personality on caregiver's burden, depression and distress related to the BPSD

Influence of personality on caregiver's burden, depression and distress related to the BPSD

Caregiving for people with dementia in a rural context in South Africa

O cotidiano de cuidadores informais de pacientes em tratamento quimioterápico

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