Clínica de presentación de los tumores de sistema nervioso central en función de la edad

Where are the opportunities for an earlier diagnosis of primary intracranial tumours in children and young adults?

“…Many studies about symptoms and signs were limited to examining a snapshot close to a diagnosis date from interviews or review of medical notes after the researchers and the patients (or their parents) were fully aware of the true diagnosis 2–5, 40, 41. We were able to use the official diagnosis date in the National Cancer Registry, which is derived under international standards, as our end-point for the pre-diagnosis period to ensure consistency across individuals in the measurement of timing of primary care consultations and hospital visits 26, 27.…”

“…Primary intracranial tumours account for 25% of all childhood cancers, and are associated with the greatest number of cancer deaths 1. This has generated substantial interests in improving the prognosis of intracranial tumours through earlier detection,2–8 and culminated in the identification of early diagnosis as one of the top 10 priorities for clinical research in neuro-oncology by The James Lind Alliance and by the National Cancer Research Institute Brain Supportive and Palliative Care subgroup in the United Kingdom 9. The James Lind Alliance is a non-profit making initiative bringing together patients, carers and clinicians to identify unanswered questions that they agree are most important 10…”