Communication effectiveness of individuals with amyotrophic lateral sclerosis

Ball, Laura J.; Beukelman, David R.; Pattee, Gary L.

doi:10.1016/j.jcomdis.2003.09.002

Cited by 86 publications

(74 citation statements)

References 22 publications

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“…[20,28,29,34,35] It was striking that in most of the included studies the perspective of people who are communication vulnerable themselves is lacking; although their point of view should be leading. Only four studies included the views of people who were communication vulnerable in their research, [30][31][32][33] leading to an insufficient insight into the experienced facilitators and barriers of people who are communication vulnerable.…”

Section: Discussionmentioning

confidence: 99%

“…Several studies mentioned that noise is a barrier to communicating for people with aphasia, [30] cognitive communication barriers, [20,27] spasmodic dysphonia, [29] stroke, [20,27] dementia, [26,28] ALS, [29,31] and hospitalized elderly people. [32,33] In the studies of Park and Song [33] and Ruan and Lambert, [32] noisy environments were rated as one of the most important environmental barriers to communication by patients and nurses.…”

Section: Lightingmentioning

confidence: 99%

“…[34] Strategies to change the acoustic environment, such as modifying sound levels (shutting doors and windows), using better acoustic materials, or moving to a quiet environment, were often mentioned as strategies to facilitate conversations between people who are communication vulnerable and professionals. [26,31,35] Carpeting, softer furniture and drapes could be helpful to absorb sound and reduce reverberation. [34] According to Bruce and colleagues changes in the auditory environment led to more focused and less stressful interactions for the target group of people who suffered from dementia.…”

Section: Lightingmentioning

confidence: 99%

See 2 more Smart Citations

The role of the physical environment in conversations between people who are communication vulnerable and health-care professionals: a scoping review

Stans

Dalemans

Witte

et al. 2016

Disability and Rehabilitation

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Purpose: The role of the physical environment in communication between health-care professionals and persons with communication problems is a neglected area. This study provides an overview of factors in the physical environment that play a role in communication during conversations between people who are communication vulnerable and health-care professionals. Method: A scoping review was conducted using the methodological framework of Arksey and O'Malley. The PubMed, PsycINFO, CINAHL and Cochrane Library databases were screened, and a descriptive and thematic analysis was completed. Results: Sixteen publications were included. Six factors in the physical environment play a role in conversations between people who are communication vulnerable and health-care professionals: (1) lighting, (2) acoustic environment, (3) humidity and temperature, (4) setting and furniture placement, (5) written information, and (6) availability of augmentative and alternative communication (AAC) tools. These factors indicated barriers and strategies related to the quality of these conversations. Conclusions: Relatively small and simple strategies to adjust the physical environment (such as adequate lighting, quiet environment, providing pen and paper) can support people who are communication vulnerable to be more involved in conversations. It is recommended that health-care professionals have an overall awareness of the potential influence of environmental elements on conversations. ä IMPLICATIONS FOR REHABILITATIONThe physical environment is an important feature in the success or disturbance of communication. Small adjustments to the physical environment in rehabilitation can contribute to a communicationfriendly environment for conversations with people who are communication vulnerable. Professionals should consider adjustments with regard to the following factors in the physical environment during conversations with people who are communication vulnerable: lighting, acoustic environment, humidity and temperature, setting and furniture placement, written information, and availability of AAC (augmentative and alternative communication tools). ARTICLE HISTORY

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Section: Discussionmentioning

confidence: 99%

Section: Lightingmentioning

confidence: 99%

Section: Lightingmentioning

confidence: 99%

See 1 more Smart Citation

The role of the physical environment in conversations between people who are communication vulnerable and health-care professionals: a scoping review

Stans

Dalemans

Witte

et al. 2016

Disability and Rehabilitation

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“…• Communication Effectiveness Scale for Individuals with ALS [6]: Assesses the subject's perceived difficulty with communication with others. The scale includes 10 questions about communication.…”

Section: Testing Of Elastic Head Support Systemmentioning

confidence: 99%

Elastic head support for men with amyotrophic lateral sclerosis

Hansen

Bedore²,

Nickel³

et al. 2014

J Rehabil Res Dev

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Abstract-This article describes an inexpensive elastic head support for persons with amyotrophic lateral sclerosis (ALS) and neck muscle weakness and also presents a case series to examine its effectiveness. The device offers support to the head while the user is seated, standing, and walking, providing support for persons in various stages of ALS. The head support system was tested in seven male patients with ALS. Before and after the 2 wk trial, the subjects answered questions related to their communication efficacy, difficulty swallowing, level of neck discomfort, number of hours being upright before neck discomfort, comfort in social settings, and rating of perceived dyspnea. Subjects also answered specific questions related to the elastic head support after the 2 wk trial. The results suggested that the elastic head support is useful for some, but not all, patients.

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“…7,12 This inevitable decline in the communication function of persons with MND implies that in 80% of cases, alternative communication strategies are required to support the daily communication needs of persons with MND and their families. 7 Augmentative and alternative communication (AAC) strategies can preserve communication (and therefore participation in everyday life situations), even in the face of profound motor deterioration. 13 AAC is acknowledged as best practice and is widely accepted among persons with MND and their families.…”

Section: Introductionmentioning

confidence: 99%