Correlation between quality of life and burden of family caregivers of infants with cleft lip and palate

Abstract

Objective: To evaluate the correlation between measures of quality of life and burden in family caregivers of infants with cleft lip and palate and to analyze possible associations between quality of life and sociodemographic variables. Method: Exploratory, cross-sectional study conducted in hospital specialized in the treatment of craniofacial anomalies, with caregivers who answered the following data collection instruments: sociodemographic characterization form, World Health Organization Quality of Life - BREF questionnaire and the Burden Interview Scale. The statistical analysis was conducted using the Pearson’s Correlation test, the Student’s t-test and the ANOVA test with a level of significance of 0.05. Results: 77 caregivers participated in the study. There was an inverse correlation between quality of life and burden in the Physical Health, Psychological, Social Relationships and Environment domains. There was a positive correlation between quality of life and family income in the Environment domain. Conclusion: The greater the burden on the caregiver, the lower was their perception of quality of life. Caregivers with higher family income and greater level of education presented a better perception quality of life in the Environment domain.

A Comparative Study of Oral Health-Related Quality of Life among Cleft Lip and Palate Patients and Their Families during Orthodontic Treatment

“…Beluci et al reported that caregivers with greater burdens have a worse perception of the quality of life. They also described that the perception of rehabilitation and the coping capacity of CLP children are influenced by the expectations, attitudes and support of their parents [ 20 ]. Difference on OHRQoL scores by children and their parents were reported with parents underestimate the “Oral symptoms” but overestimate “Functional Well-Being” of having a cleft [ 21 ].…”

Factors related to the use of religious coping by informal caregivers: an integrative review

“…Among the health care modalities provided by informal caregivers, there are the support for the development of daily life activities, in addition to financial, psychological, and spiritual assistance (4) . The experience of being the main care provider can be a burden for the caregiver, leading to adaptations and deprivations that, in many cases, lead to overload, depressive symptoms, anxiety, increased stress levels, and a worse perception of the quality of life (5)(6)(7) .…”

A cicatriz invisível: o ser mãe de bebês com fissura labiopalatina

“…Geralmente, a gestante idealiza um bebê esteticamente e funcionalmente perfeito. Ideal esse que pode ser rompido quando os pais se confrontam com um dos maiores temores de uma gestação: o diagnóstico de uma malformação (Beluci, Dantas, Mondini, & Trettene, 2019;Cunha et al, 2019;Dadalto, Cunha, & Monteiro, 2019;Oliveira, 2017).…”