Designing With Empathy

Carmel-Gilfilen, Candy; Portillo, Margaret

doi:10.1177/1937586715592633

Cited by 45 publications

(16 citation statements)

References 21 publications

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“…18 The approach has been used increasingly in cancer care and inpatient health care service delivery. 19,20 It has also been used in technologies to improve diabetes and depression self-care. 21,22 Thus, the approach to co-creation of the IMPACT 1.0 Scale with families struggling with ADHD is noteworthy, increases its face validity, and can lead to conversations that are practical and family-centered.…”

Section: Discussionmentioning

confidence: 99%

Assessment of the Effects of Pediatric Attention Deficit Hyperactivity Disorder on Family Stress and Well-Being: Development of the IMPACT 1.0 Scale

Bauer

Ofner

Moore

et al. 2019

Global Pediatric Health

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Medications may lessen core symptoms of attention deficit hyperactivity disorder (ADHD), yet families continue to report stress and have a low quality of life. Primary care providers manage almost half of all children with ADHD but do not have a brief measure to assess ADHD impacts on family in the context of everyday family life. The IMPACT (Impact Measure of Parenting-Related ADHD Challenges and Treatment) 1.0 Scale was codeveloped with input from parent advisors and administered to 79 parents of children with ADHD. Exploratory factor analysis, correlations with validated instruments, and test-retest reliability were examined. Exploratory factor analysis resulted in 4 subscales (Misbehavior, Siblings, Time, School), which demonstrated moderate to high test-retest reliability. Scale domains were related to severity and change in ADHD symptoms. Significant correlations were found between IMPACT scores, adaptive functioning in the home, and ADHD-related quality of life. The IMPACT 1.0 Scale provides a novel, reliable, and valid method to assess family impact of ADHD.

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Section: Discussionmentioning

confidence: 99%

Assessment of the Effects of Pediatric Attention Deficit Hyperactivity Disorder on Family Stress and Well-Being: Development of the IMPACT 1.0 Scale

Bauer

Ofner

Moore

et al. 2019

Global Pediatric Health

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“…School leaders are in a position to effect change within the systems they lead. The goal of experiencing a student day was to gather and analyze information leading to future innovative changes (Carmel-Gilfilen & Portillo, 2016;Daniel, 2015;Eslamifar, 2014;Kolko, 2010).…”

Section: Discussionmentioning

confidence: 99%

“…Studies in business and health care explored the potential of empathetic design in business organizations where customers were observed in their own environment as an approach to gathering and analyzing information and using what is learned to apply towards future actions (Carmel-Gilfilen & Portillo, 2016;Daniel, 2015;Eslamifar, 2014;Kolko, 2010;Leonard, & Rayport, 1997). Existing research demonstrated the value of being empathetic to individual experiences and the informational frame in the learning process.…”

Section: Theoretical Framework and Literature Reviewmentioning

confidence: 99%

Empathetic Design: A Sustainable Approach to School Change

Hartman

Johnston

Hill

2017

Discourse and Communication for Sustainable Education

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A descriptive case study approach is employed using a content analysis of the blogs of 36 school leaders who took part in the 2016–2017 Shadow a Student Challenge project and follow up interviews of five of the school leaders. This research was used to explore and describe how an empathetic design approach provided a greater vantage point for school leaders. By viewing school through the eyes of students, school leaders gain a deeper insight into the school experience. School leaders play a key role in establishing the culture, climate, and educational outcomes within their school environments. An empathetic design approach to school reform provides a stronger point for initiating change than an atmosphere focused on evaluation and accountability. Taking a school-based approach, encouraging school leaders to immerse themselves in the school experience, provides an opportunity for school leaders to gain empathy and insights foundational in generating meaningful and innovative change leading to sustainable education. Three major themes emerged from the findings: 1) pace and structure of the school day, 2) student learning experience, and 3) reflective and innovative insights.

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“…Similar methods have been used in development approaches to address self-management of type 2 diabetes, pediatric asthma, and quality improvement health care facilities [ 20 - 22 ]. The methods employed by the PEC are highly interactive and leverage the expertise of research participants in ways that exceed standard expectations for study participation [ 23 - 26 ]. By combining qualitative research methods with novel methods from design research, the PEC is able to create truly innovative approaches for the engagement of patients and caregivers in research [ 27 - 29 ].…”

Section: Methodsmentioning

confidence: 99%