Developing a Community Program on Cancer Pain and Fatigue

Grant, Marcia; Golant, Mitch; Rivera, Lynne M.; Dean, Grace E.; Benjamin, Harold

doi:10.1046/j.1523-5394.2000.84012.x

Cited by 20 publications

(13 citation statements)

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“…Consequently, cancer-related fatigue has been under-reported, under-diagnosed and under-treated. Even when patients report their fatigue, it may not be taken seriously by providers 31. Studies have reported that few patients ever receive treatment or advice from providers about how to manage their fatigue 21,25,30.…”

Section: Introductionmentioning

confidence: 99%

Reducing Patient Barriers to Pain and Fatigue Management

Borneman

Koczywas

Sun

et al. 2010

Journal of Pain and Symptom Management

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Pain and fatigue are recognized as critical symptoms that impact quality of life (QOL) for cancer patients. The barriers to pain and fatigue relief have been classified into three categories: patient, professional and system barriers. The overall objective of this trial is to test the effects of the "Passport to Comfort" intervention on reducing barriers to pain and fatigue management for ambulatory care cancer patients. This intervention demonstrates innovation by translating the evidence-based guidelines for pain and fatigue as developed by the National Comprehensive Cancer Network (NCCN) into practice. This quasi-experimental, comparative study utilizes a Phase 1 control group of usual care followed sequentially by a Phase 2 intervention group in which educational and systems change efforts were directed toward improved pain and fatigue management. This paper reports on the patient barriers and the patient education intervention to overcome these barriers. A sample of 187 cancer patients with breast, lung, colon, or prostate cancers, and pain and/or fatigue of ≥ 4 (moderate to severe), were recruited. Patients in the intervention group received four educational sessions on pain/fatigue assessment and management, whereas patients in the control group received usual care. Pain and fatigue barriers and patient knowledge were measured at baseline, one month, and three months post-accrual. Patients in the intervention group experienced significant improvements in pain and fatigue measures immediately post-intervention, and these improvements were sustained over time. The "Passport to Comfort" intervention was effective in reducing patient barriers to pain and fatigue management, as well as increasing patient knowledge regarding pain and fatigue.

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Section: Introductionmentioning

confidence: 99%

Reducing Patient Barriers to Pain and Fatigue Management

Borneman

Koczywas

Sun

et al. 2010

Journal of Pain and Symptom Management

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“…Although fatigue is the most common symptom in cancer patients, it is not the symptom most discussed with health care providers by patients in Taiwan. A previous study indicated that cancer patients believe that fatigue will be cared for by doctors when considered to be an important symptom by doctors [19]; however, fatigue is generally not taken seriously by health care providers [29], with limited dialogue regarding fatigue being initiated in clinical settings [30]. Therefore, considering the circumstance of patients' fear of distracting their doctor, health care providers need to initiate communication about fatigue in order to improve their patients' quality of life.…”

Section: Discussionmentioning

confidence: 99%

Patient-Related Barriers to Fatigue Communication in Cancer Patients Receiving Active Treatment

2009

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Objective. To explore barriers to reporting fatigue in cancer patients receiving active treatment and the significant factors associated with those barriers from fatigue characteristics (i.e., intensity, duration, and interference with daily life), to demographic characteristics and disease/treatment variables.Methods. Patients with various types of cancer (n ‫؍‬ 288) were recruited from an outpatient chemotherapy center, and from seven oncology and hematology units in a teaching hospital in northern Taiwan. Data were collected using the Fatigue Management Barriers Questionnaire to explore barriers to fatigue communication.Results. Fear of distracting the doctor was rated as the highest barrier of reporting fatigue. The degree of fatigue interference with daily life by patients was associated with the willingness to report fatigue. Patients with gastrointestinal cancer experienced more barriers to reporting fatigue than those with hematological cancer. Patients without religion perceived the highest level of barriers to fatigue communication. Outpatients had higher levels of concern than inpatients.Conclusions. Discussion with patients about their high level of perceived fatigue barriers before implementing patient education is recommended. Assessing fatigue interference with daily life and identifying factors associated with barriers to reporting fatigue (i.e., type of cancer, religion, and the setting for receiving treatment) are suggested in order to provide better fatigue management in clinical settings. The Oncologist 2009;14:936 -943

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“…Les approches non pharmacologiques de prise en charge de la fatigue liée au cancer reçoivent désormais une attention accrue et sont bénéfiques pour certains patients. Celles-ci comprennent des programmes de marche ou d'exercice (Berger, 1998;Dimeo, 2001;Schwartz, 2000), l'enseignement aux patients sur la fatigue (Grant, Golant, Rivera, Dean et Benjamin, 2000) et des consultations individuelles avec des professionnels (Fawzy, 1999;GastonJohansson et coll., 2000). Magnusson, Moller, Ekman et Wallgren (1999) ont fait remarquer que certains patients composaient avec la fatigue en faisant appel à des distractions (lecture, écoute de musique, etc.…”

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Exploration des expériences des patients en matière de fatigue liée au cancer et de leurs stratégies personnelles pour y faire face

Fitch¹,

Mings²,

Lee³

2008

CONJ

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Abrégé IntroductionLa fatigue est un des effets secondaires les plus prévalents et pénibles du cancer. C'est le seul symptôme qui soit signalé par la majorité des patients atteints de cancer dans l'ensemble des groupes de diagnostic (Curt, 2001). Elle menace la qualité de vie et restreint diverses activités quotidiennes (Ahlberg, Ekman, Gaston-Johansson et Mack, 2003). Souvent profonde, elle peut avoir une incidence sur les relations et sur la fidélité au traitement médical. Au vu de la masse croissante de données probantes à l'appui des interventions facilitant l'adaptation à la fatigue, les centres de cancérologie sont encouragés à mettre en oeuvre des approches méthodiques ou programmées de gestion de la fatigue.Avant d'instituer un programme méthodique visant à aider les patients atteints de cancer à gérer leur fatigue, une recherche a été entreprise en vue de déterminer ce que les patients faisaient de leur propre initiative pour composer avec ce symptôme. Cette recherche avait pour but d'établir une image de référence préalable à la mise en oeuvre du programme d'enseignement aux patients et d'obtenir des idées qui pourraient être intégrées dans le programme. On projetait de dégager les stratégies que les patients avaient trouvées utiles dans leur adaptation à la fatigue et de les partager avec les autres patients. ContexteLa fatigue demeure aussi difficile à définir et à mesurer aujourd'hui qu'elle ne l'était en 1921 lorsque Muscio avait déclaré que « le terme de fatigue devrait être absolument banni des discussions scientifiques et par conséquent que l'idée d'obtenir un test de la fatigue devait être abandonnée ». Quoique dans l'usage quotidien la signification du mot fatigue soit intuitivement claire, la fatigue, en tant que phénomène empirique, a de nombreuses significations différentes. Le terme peut se rapporter à l'état ressenti après une activité physique, aux problèmes de concentration ultérieurs à des efforts mentaux, au manque de motivation, à l'effet secondaire de la maladie et de son traitement, et enfin à l'état émotif caractérisé par la désactivation (Frijda, 1986; Smets, Garssen, Schuster-Uitterhoeve et DeHaes, 1993). Il n'y a pas de définition universellement acceptée (Piper, 1993;Tiesinga, Dassen et Halfens, 1996).Il existe, par contre, des dénominateurs communs au sein des définitions actuelles, notamment les notions suivantes : la fatigue est subjective et multidimensionnelle (Aistars, 1987;Irvine, Vincent, Grayson, Bubela et Thompson, 1994;Piper, 1993;Rhodes, Watson et Hanson, 1998; Smets et coll., 1993; Winningham et coll., 1994), elle a différents modes d'expression (Hickok, Morrow, McDonald et Bellg, 1996;Smets, Garssen, Cull et deHaes, 1996)

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Developing a Community Program on Cancer Pain and Fatigue

Cited by 20 publications

References 26 publications

Reducing Patient Barriers to Pain and Fatigue Management

Reducing Patient Barriers to Pain and Fatigue Management

Patient-Related Barriers to Fatigue Communication in Cancer Patients Receiving Active Treatment

Exploration des expériences des patients en matière de fatigue liée au cancer et de leurs stratégies personnelles pour y faire face

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