Development, implementation and evaluation of a new self‐help programme for mothers of haemophilic children in Korea: a pilot study

Kang, Hyun Jung; Kim, W. O.; Cho, K. J.; Jeong, Younhee

doi:10.1111/j.1365-2516.2009.02106.x

Cited by 8 publications

(9 citation statements)

References 19 publications

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“…In our pilot study with no control group ( n = 12), parenting or rearing stress decreased after the program, but it was not statistically significant . To verify the effect with a more powerful research design, we increased sample size, and control group was added.…”

Section: Discussionmentioning

confidence: 93%

“…The pilot study showed the self‐help support group program was effective in increasing knowledge and self‐efficacy on the management of hemophilia, improving quality of life, and decreasing depression. Parenting stress was decreased but not to a statistically significant level in our pilot study . To verify the effectiveness of the program further, we used a pretest‐posttest comparison with control group in this study.…”

Section: Introductionmentioning

confidence: 90%

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Effect of a self‐help program for mothers of hemophilic children in Korea

et al. 2012

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Mothers of hemophilic children are under stressful situations because of the characteristics of disease and inheritance. The purpose of this study was to evaluate the effect of the self-help group program for the mothers of hemophilic children. Fifty one mothers of hemophilic children were participated. The experiment group (n = 24) participated in the self-help group program for 5 weeks, while the control group (n = 27) received a self-help booklet only. Knowledge, self-efficacy, depression, parenting stress, and quality of life were evaluated using questionnaires. Data were analyzed using χ(2) -test, t-test, and analysis of covariance (ancova). The experiment and control groups were homogeneous in general characteristics and depending variables except knowledge (P < 0.05; P > 0.05, respectively). Knowledge, self-efficacy, and quality of life in the experiment group were increased after the program (P < 0.001). Especially, the knowledge in the experiment group was lower than the control group in pretest, but higher in the posttest (P < 0.001). Depression and parenting stress were reduced in the experiment group compared to the control group (P < 0.001). It is suggestive that the self-help group program can be a useful opportunity for mothers of hemophilic children to improve knowledge and self-efficay of child care and quality of life of themselves; to decrease depression and parenting stress. Extended application of the program to fathers or all family members may be needed to investigate in the future.

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Section: Discussionmentioning

confidence: 93%

Section: Introductionmentioning

confidence: 90%

Effect of a self‐help program for mothers of hemophilic children in Korea

et al. 2012

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“…In their study, Kang et al (2010) show the impact of support from self-help groups for mothers of children with the lifelong condition hemophilia. The main goal of the programme was to reduce stress iand depression in the mothers, and also to help properly ensure health care for the sick children at home.…”

Section: Discussionmentioning

confidence: 99%

Self-help group and the quality of life of patients with multiple sclerosis - Pilot study

Eliašová¹,

Majerníková²,

Hudáková³

et al. 2015

Cent Eur J Nurs Midw

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Aim: The goal of the pilot study was to compare the quality of life of patients with multiple sclerosis in the Presov region with or without the support of a self-help group. Design: The character of this pilot study on patients with MS was related to the use of self-help groups and their impact on the assessment of the quality of life of the respondents, with the help of a questionnaire (WHOQOL-BREF). Methods: The research was carried out in the Prešov region with the help of the standardized WHOQOL-BREF questionnaire. Ninety-one patients with MS participated in the pilot study (46 respondents attended a self-help group and 35 did not). Results: The groups, when compared, aided by the statistically evaluated WHOQOL-BREF domains, were found to show significant differences in their evaluation of quality of life in three domains: domain one: physical health; domain two: surviving; domain three: social relations. Better scores were achieved in these domains by those who attended a group. In the physical sphere, we noticed significant differences in sleep quality, and sexual satisfaction (p < 0.001), while in social and economic areas, there were significant differences in satisfaction with personal relationships (p < 0.001), and economic circumstances (p < 0.01), self-contentment (p < 0.01), and coping with negative feelings (p < 0.05). Conclusion: Patients with multiple sclerosis can live normal lives provided they are supported by their families, friends, health care professionals, and self-help groups.

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“…Kang et al . proved that a self‐help program for mothers of children with haemophilia significantly improved knowledge, self‐efficacy and quality‐of‐life . Mulders et al .…”

Section: Introductionmentioning

confidence: 99%

“…Kang et al proved that a self-help program for mothers of children with haemophilia significantly improved knowledge, self-efficacy and quality-of-life [11,12]. Mulders et al reported that an educational e-learning program in patients on prophylactic home treatment significantly improved general knowledge of treatment [13].…”

Section: Introductionmentioning

confidence: 99%

Reliability and validity of a novel Haemophilia‐specific Self‐Efficacy Scale

et al. 2014

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Higher self-efficacy in chronic disease patients is associated with higher development of self-management skills and increased quality-of-life. Quantification and monitoring of self-efficacy is therefore of importance. Self-efficacy in haemophilia patients has received little attention due to lack of standardized scales. To validate the novel Haemophilia-specific Self-Efficacy Scale (HSES) in haemophilia patients on prophylactic home treatment, haemophilia patients aged 1-18 years on prophylactic treatment ≥1 year were included from three Dutch Haemophilia Treatment Centres. The HSES consists of 12 items, relating to perceptions of the ability to function on a day-to-day basis with regard to patient's disease. Retest was performed in a subsample. Validity was proven by the General Self-Efficacy Scale and by the health-related quality-of-life assessment tool Haemo-QoL. Data were analysed from 53 children (response 75%), with a mean age of 9.8 years (SD 4.0). Mean total scale score of HSES was 55.5 (SD 4.7; range 38-60), with a ceiling effect of 17%. The HSES showed adequate internal consistency (Cronbach's alpha 0.72) and good test-retest reliability (Intra-Class-Correlation coefficient 0.75; P < 0.01; n = 37). The convergent validity was adequate as haemophilia-specific self-efficacy correlated significantly with general self-efficacy (r = 0.38; P < 0.01). High HSES scores correlated significantly with quality-of-life as measured by the Haemo-QoL (r = -0.42; P ≤ 0.01). The novel HSES is a reliable and valid tool to assess self-efficacy in paediatric haemophilia patients on prophylactic home treatment. High self-efficacy correlated with higher quality-of-life, further underlining the importance to standardly assess, monitor and improve self-efficacy.

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Development, implementation and evaluation of a new self‐help programme for mothers of haemophilic children in Korea: a pilot study

Cited by 8 publications

References 19 publications

Effect of a self‐help program for mothers of hemophilic children in Korea

Effect of a self‐help program for mothers of hemophilic children in Korea

Self-help group and the quality of life of patients with multiple sclerosis - Pilot study

Reliability and validity of a novel Haemophilia‐specific Self‐Efficacy Scale

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