Development of a Spanish-Language Hospice Video

Abstract

The nation faces a persistent issue of delayed access to hospice care. Even though hospice enrollment is considered to be one of the most difficult medical decisions, physician clinics and hospitals lack tools for helping patients/families faced with making decisions about enrollment. Health-care literature lacks discussion of development of decision-making aids in the context of hospice decisions for minority ethnic groups, even though those groups have decisional needs that may differ from those of non-Hispanic whites. To fill the gap, we developed a video of a Latino hospice patient with footages showing how the patient was being taken care of by her family with support from a hospice disciplinary team. A primary objective of this article is to describe how focus groups, existing decision aids, and individual interviews were used to develop and improve a Spanish-language hospice educational video targeting Latino subgroups with linguistic, cultural, and educational barriers. These steps may provide guidelines for developing and revising health-related videos targeting other minority ethnic groups.

Palliative care education and its effectiveness: a systematic review

“…Introduction to death, palliative care, and hospice. Eighteen studies (13 studies for health professionals, two for family caregivers, two for volunteers, and one for indigenous community carers) covered the following aspects: definitions of palliative care, hospice, and death in medical and legal terms [25,26,27,28,29,30,31,32,33,34,35,36]; core hospice concepts such as supporting not only the patient but also caregivers and interdisciplinary practices [37]; the theory of 'circle of care', philosophies, and principles of palliative care [38,39,40]; death as a developmental story [41]; and trajectories of various end-stage diseases [42]. While the content of this theme largely followed the medical and legal terms of death, the PCE for Northern Plains American Indians (NPAIs) delivered the program by consulting with the targeted indigenous community and employed indigenous language to introduce the concept of death.…”

“…Care for the family. The areas discussed in 12 studies (11 for healthcare professionals and one for volunteers) included: giving the bad news to the family [25]; engaging and interacting with the family and caregivers [25,33,46,61]; family involvement in decision making [43]; family-centred care [44]; interacting with Latino caregivers [37]; care for the family, family caregivers, and volunteers [38,48,54]; family assessment [61]; and family perspectives on giving and receiving care [59].…”

Reflections of Hospice Staff Members About Educating Hospice Family Caregivers Through Telenovela

“…In our study, hospice providers reported that visual learners will benefit the most from videos, and they may provoke conversations with family caregivers. Studies have reported that when participants can identify with the video, learning through modeling can take place, 30,31 and participants value the visual as opposed to words or text. 22 It is difficult to construct preferences where we have few prior experiences or only limited understanding of potential futures states.…”

Evaluation of a Video-Based Seminar to Raise Health Care Professionals' Awareness of Culturally Sensitive End-of-Life Care

“…18 These barriers are addressed by our seminar if it is used to educate HCPs and if the telenovela is used as a resource to educate Latino caregivers. A study by Chung et al 19 demonstrated the development and effectiveness of a video as a form of decision support for Latinos, in particular those with low education and limited English proficiency who are least likely to have ever heard of hospice. Similarly, our telenovela is culturally sensitive, increases awareness in core concepts, and also, HCPs report that they may use it for education and to improve patientprovider communication.…”