Dynamics and nature of support in the personal networks of people with type 2 diabetes living in <scp>E</scp>urope: qualitative analysis of network properties

Kennedy, Anne; Rogers, Anne; Vassilev, Ivaylo; Todorova, Elka; Roukova, Poli; Foss, Christina; Knutsen, Ingrid Ruud; Portillo, Mari Carmen; Mujika, Agurtzane; Serrano-Gil, Manuel; Lionis, Christos; Angelaki, Agapi; Ratsika, Nikoleta; Koetsenruijter, Jan; Wensing, Michel

doi:10.1111/hex.12306

Cited by 27 publications

(45 citation statements)

References 28 publications

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“…For example, the desire for independence and autonomy may take precedence over the need for physical assistance, and act as a reason for not activating, or navigating support even when it is available. The preserving of a pre‐existing identity and roles in relation to specific close family ties (such as a son or daughter) or distrust and untrustworthiness of formal institutions may also preclude or promote the seeking and harnessing of support (Kennedy et al, ; Moore & McArthur, ).…”

Section: Resultsmentioning

confidence: 99%

“…This more recent focus has highlighted a need to better understand how people engage with social capital, support and resources in a way that is acceptable and meaningful to them and members of their networks when managing and living with a long‐term condition. Here, we consider networks as personal communities that extend beyond patient and carer dyads to include a larger group of a community of interconnected individuals (such as friends and colleagues) that are strongly or loosely connected with one another [referred to as a network of networks (Vassilev et al, )].The dynamic of an individual operating within this type of networks may involve making decisions about when and who to contact, identifying and utilising resources that were previously underused, selecting some individuals over others, and providing a rationale that helps keep existing relationships content (Kennedy et al, ) This points to the need to explore the relationship between social capital and social support through paying greater attention to the process of engagement within social networks and the varying levels of collective efficacy of different networks, that is, their individual and collective capacity for such engagement (Vassilev, Rogers, Kennedy, & Koetsenruijter, ).…”

Section: Introductionmentioning

confidence: 99%

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The role of collective efficacy in long‐term condition management: A metasynthesis

Vassilev

Band

Kennedy

et al. 2019

Health Soc Care Community

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Social networks have been found to have a valuable role in supporting the management of long‐term conditions. However, the focus on the quality and how well self‐management interventions work focus on individualised behavioural outcomes such as self‐efficacy and there is a need for understanding that focuses on the role of wider collective processes in self‐management support. Collective efficacy presents a potentially useful candidate concept in the development and understanding of self‐management support interventions. To date it has mainly been utilised in the context of organisations and neighbourhoods related to social phenomena such as community cohesion. Drawing on Bandura's original theorisation this meta‐synthesis explores how studies of collective efficacy might illuminate collective elements operating within the personal communities of people with long‐term conditions. A qualitative meta‐synthesis was undertaken. Studies published between 1998 and 2018 that examined collective efficacy in relation to health and well‐being using qualitative and mixed methods was eligible for inclusion. Timing of engagement with others, building trust in the group, and legitimising ongoing engagement with the group arised as central elements of collective efficacy. The two themes forming third order constructs were related to the presence of continuous interaction and ongoing relational work between members of the group. Collective efficacy can develop and be sustained over time in a range of situations where individuals may not have intense relationships with one another and have limited commitment and contact with one another. Extending this to the personal communities of people with long‐term conditions it may be the case that collective efficacy enables a number of engagement opportunities which can be oriented towards assisting with support from networks over a sustained length of time. This may include negotiating acceptable connections to resources and activities which in turn may help change existing practice in ways that improve long‐term condition management.

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Section: Resultsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

The role of collective efficacy in long‐term condition management: A metasynthesis

Vassilev

Band

Kennedy

et al. 2019

Health Soc Care Community

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“…They also found that there are greater protective health and wellness benefits for those with a diverse social network that extend beyond health professionals and close family to incorporate casual acquaintances, friends, and groups than those with smaller or family centered networks. Within such diabetes care network, the “quality and nature of the relationships matter” (Kennedy et al., , p. 3173). The key to making such networks work is collaboration among the various actors.…”

Section: Typology Of Formal and Informal Network In Provision Of Diamentioning

confidence: 99%

Formal and informal governance networks: Diabetes care in Australia and India

Ugyel

2019

Aust J Public Adm

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The concept of networks has gained interest in public administration and management. They address concerns such as the coordination of multiple actors within the policy process. Networks take both formal and informal forms. As the integration of formal and informal networks in public service delivery is gaining traction, this paper uses the example of diabetes care in Australia and India to provide an analytical framework to examine one of the ways such integration of networks take place. Diabetes, a chronic long‐term disease, poses to be a global problem with a high rate of diagnosis with implications for public health expenditure. A multi‐disciplinary team, which comprises both formal and informal categories, is required to manage diabetes. This paper highlights the integration of networks in diabetes care in different institutional and cultural settings. For such form of integration of networks to work, collaboration among the various actors is important. Lessons learnt from diabetes care will be relevant for other long‐term chronic conditions to help reduce the human resource and financial burden. The analytical framework developed based on the example of diabetes care will provide useful lessons for examining the mechanics and dynamics of the integration between formal and informal networks in the field of public administration and management.

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“…Type 2 diabetes is an increasingly prevalent condition that is largely associated with self‐management requirements, including monitoring, diet and exercise . The demands of the self‐management of type 2 diabetes are described as challenging, and inadequate health behaviours may induce feelings of shame and guilt in this patient group …”

Section: Introductionmentioning

confidence: 99%

“…7 The demands of the self-management of type 2 diabetes are described as challenging, 8 and inadequate health behaviours may induce feelings of shame and guilt in this patient group. 9 To support individuals with chronic conditions, group-based self-management support has been initiated and is highly regarded in Western health policy as a cost-effective way to enhance health. 10 A broad definition of self-management support involves care and support from friends and wider community ties, 11 including groupbased activities, such as participating in an association, voluntary self-management support groups, or shared lay and professional education groups.…”

Section: Introductionmentioning

confidence: 99%

Group affiliation in self‐management: support or threat to identity?

Bossy

Knutsen

Rogers

et al. 2016

Health Expectations

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BackgroundSelf‐management is considered important in chronic illness, and contemporary health policy recommends participation in support groups for individuals with chronic conditions. Although withdrawal from or non‐participation in support groups is an important problem, there is limited knowledge about individuals' own motivation for participation in or withdrawal from self‐management support groups.ObjectivesTo investigate how individuals with type 2 diabetes perceive participation in group‐based self‐management support.DesignThis is a qualitative focus group study using a semi‐structured interview guide.Setting and participantsSixteen participants diagnosed with type 2 diabetes were included in the study. Individuals with and without group affiliations were mixed in three focus groups to trigger discussions. In the analysis, reoccurring themes of engagement and discussions between participants were focused within a theoretical frame of institutional logic. The focus groups are seen as social spaces where participants construct identity.ResultsBoth participation and non‐participation in group‐based self‐management support are associated with dealing with the stigma of having type 2 diabetes. Negotiations contribute to constructing an illness dignity as a response to the logic of moral responsibility for the disease.Discussion and conclusionContemporary policy contributes to societal understandings of individuals with type 2 diabetes as morally inadequate. Our study shows that group‐based self‐management support may counteract blame and contribute in negotiations of identity for individuals with type 2 diabetes. This mechanism makes participation in groups beneficial for some but stigma inducing for others.

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Dynamics and nature of support in the personal networks of people with type 2 diabetes living in Europe: qualitative analysis of network properties

Abstract: Background Living with and self-managing a long-term condition implicates a diversity of networked relationships. This qualitative study examines the personal communities of support of people with type 2 diabetes.

Cited by 27 publications

References 28 publications

The role of collective efficacy in long‐term condition management: A metasynthesis

The role of collective efficacy in long‐term condition management: A metasynthesis

Formal and informal governance networks: Diabetes care in Australia and India

Group affiliation in self‐management: support or threat to identity?

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