Engaging the Deaf American Sign Language Community: Lessons From a Community-Based Participatory Research Center

McKee, Michael; Thew, Denise; Starr, Matthew; Kushalnagar, Poorna; Reid, John T.; Graybill, Patrick; Velasquez, Julia; Pearson, Thomas A.

doi:10.1353/cpr.2012.0037

Cited by 35 publications

(36 citation statements)

References 34 publications

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“…(24, 25) The DHS was developed through a community-based participatory research (CBPR) process with the Rochester NY Deaf community, and contains 98 items developed through rigorous translations and back-translations between English and ASL. (5, 24, 26) The survey was administered in 2008 to a sample of 339 Deaf adults in the Rochester, NY metropolitan statistical area (MSA). Respondents were recruited at community events, via community organizations, and via emails and posters.…”

Section: Methodsmentioning

confidence: 99%

“…(1) Deaf ASL users may struggle with healthcare marginalization as a result of language, communication, and cultural barriers. (2–5) The marginalization results in significant health disparities and knowledge gaps for this population in a variety of health topics, including sexual health, cancer, preventive health and cardiovascular disease. (6–12) The impact of these gaps appears to result in poorer prevention health care outcomes among Deaf individuals with discordant communication with their health care providers.…”

Section: Introductionmentioning

confidence: 99%

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Sexual health behaviors of Deaf American Sign Language (ASL) users

Heiman

Haynes²,

McKee

2015

Disability and Health Journal

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Background Little is known about the sexual health behaviors of Deaf American Sign Language (ASL) users. Objective We sought to characterize the self-reported sexual behaviors of Deaf individuals. Methods Responses from 282 Deaf participants aged 18–64 from the greater Rochester, NY area who participated in the 2008 Deaf Health were analyzed. These data were compared with weighted data from a general population comparison group (N=1890). We looked at four sexual health-related outcomes: abstinence within the past year; number of sexual partners within the last year; condom use at last intercourse; and ever tested for HIV. We performed descriptive analyses, including stratification by gender, age, income, marital status, and educational level. Results Deaf respondents were more likely than the general population respondents to self-report two or more sexual partners in the past year (30.9% vs 10.1%) but self-reported higher condom use at last intercourse (28.0% vs 19.8%). HIV testing rates were similar between groups (47.5% vs 49.4%) but lower for certain Deaf groups: Deaf women (46.0% vs. 58.1%), lower-income Deaf (44.4% vs. 69.7%) and among less educated Deaf (31.3% vs. 57.7%) than among respondents from corresponding general population groups. Conclusion Deaf respondents self-reported higher numbers of sexual partners over the past year compared to the general population. Condom use was higher among Deaf participants. HIV was similar between groups, though HIV testing was significantly lower among lower-income, less well-educated, and female Deaf respondents. Deaf individuals have a sexual health risk profile that is distinct from that of the general population.

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Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Sexual health behaviors of Deaf American Sign Language (ASL) users

Heiman

Haynes²,

McKee

2015

Disability and Health Journal

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“…9,14 The eugenics movement (1880-1950) in the United States, Great Britain, and Germany provided some degree of moral permissibility of sterilizing deaf people with the intent of reducing “social burdens” and increasing the health of the human species through “better breeding.” 10,17,18 Another movement called oralism, popularly promoted by Alexander Graham Bell, prioritized human speech over sign language and incorporating the use of speech reading and hearing amplification. 10,19 The lasting impact of the Eugenics and oralism movements and advancing medical technologies (e.g.…”

Section: The Fear Of Genetic Testing and Engineeringmentioning

confidence: 99%

Ethical Issues in Conducting Research With Deaf Populations

2013

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Deaf American Sign Language (ASL) users represent a small population at risk of marginalization from research and surveillance activities as a result of cultural, language, and ethical challenges. The Deaf community's view of deafness as a cultural identity, rather than a disability, contradicts the medical community's perception of deafness as a disease or deficiency in need of correction or elimination. These differences continue to have significant cultural and social implications within the Deaf community, resulting in mistrust of research opportunities. Two particularly contentious ethical topics for the Deaf community are the absence of community representation in genetic research and the lack of accessible informed consents and research materials. This article also outlines a series of innovative strategies and solutions to these issues, including the importance of community representation and collaboration with researchers studying Deaf populations.

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“…Inquéritos em saúde respeitando as especificidades culturais dessa comunidade têm sido escassos e até inexistentes em vários países. Segundo McKee et al 8 isso ocorre, pois essa população historicamente, devido à comunicação e às barreiras linguísticas, aparece marginalizada e excluída.…”

Section: Introductionunclassified

Níveis De Atividade Física: Um Estudo Comparativo Entre Adolescentes Surdos E Ouvintes

Andrade

Castro

2017

Rev Bras Med Esporte

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Introdução: A Organização Mundial da Saúde tem alertado para o crescente quadro de sedentarismo e suas consequências entre as populações. A inatividade física passou a ser o quarto principal fator de risco de saúde, tornando-se um dos maiores problemas de saúde pública na atualidade. Populações como adolescentes surdos brasileiros têm sido negligenciadas com ausência de inquéritos de saúde voltados à investigação dessa variável e proposições de estratégias que garantam equiparação de oportunidades. Objetivo: Assim, este estudo teve por objetivo verificar o nível de atividade física entre adolescentes surdos comparados a adolescentes ouvintes. Métodos: O grupo de adolescentes ouvintes mostrou-se significativamente mais ativo que os adolescentes surdos (61,29% para 29,03% com p < 0,05). Resultados: O resultado da presente pesquisa evidencia que há necessidade de investigações sobre as realidades em que se desenvolvem os programas e ações voltados ao esporte para adolescentes surdos. Conclusões: É imprescindível buscar as causas e propor soluções junto a órgãos gestores e secretarias ligadas ao esporte, saúde e educação para a diminuição do índice encontrado, proporcionando equiparação de oportunidades entre surdos e ouvintes.Descritores: surdez; adolescente; exercício. ABSTRACT Introduction: The World Health Organization has warned about the growing condition of sedentariness and its consequences among populations. Physical inactivity has become the fourth major health risk factor, making it one of the largest public health problems today. Populations as Brazilian deaf adolescents have been neglected due to the absence of health surveys focused on the research of this variable and propositions

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Engaging the Deaf American Sign Language Community: Lessons From a Community-Based Participatory Research Center

Cited by 35 publications

References 34 publications

Sexual health behaviors of Deaf American Sign Language (ASL) users

Sexual health behaviors of Deaf American Sign Language (ASL) users

Ethical Issues in Conducting Research With Deaf Populations

Níveis De Atividade Física: Um Estudo Comparativo Entre Adolescentes Surdos E Ouvintes

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