2020
DOI: 10.1007/978-3-030-39797-5_31
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Ethical and Legal Issues of Genetic Research of Indigenous Small-Numbered Peoples

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“…However, genomics projects conducted to date with Indigenous communities have been mainly in the area of health and biobanking (Kowal et al 2012;McWhirter et al 2015;Baynam et al 2017;Henare et al 2019;Morgan et al 2019). These health projects have contributed to the thinking about legal and ethical issues (Finogentova et al 2020) such as the protection, access to, and sharing of data (Garrison et al 2019a), the approach used by researchers engaged in collaborative research (Claw et al 2018), as well as the recognition of Indigenous rights (Hudson et al 2020). However, the history of health research has made Indigenous communities hesitant to take part in new genomics projects, given the many ethical issues and lack of respect for Indigenous culture and knowledge (Arbour and Cook 2006;Claw et al 2018;Garrison et al 2019b).…”
Section: Introductionmentioning
confidence: 99%
“…However, genomics projects conducted to date with Indigenous communities have been mainly in the area of health and biobanking (Kowal et al 2012;McWhirter et al 2015;Baynam et al 2017;Henare et al 2019;Morgan et al 2019). These health projects have contributed to the thinking about legal and ethical issues (Finogentova et al 2020) such as the protection, access to, and sharing of data (Garrison et al 2019a), the approach used by researchers engaged in collaborative research (Claw et al 2018), as well as the recognition of Indigenous rights (Hudson et al 2020). However, the history of health research has made Indigenous communities hesitant to take part in new genomics projects, given the many ethical issues and lack of respect for Indigenous culture and knowledge (Arbour and Cook 2006;Claw et al 2018;Garrison et al 2019b).…”
Section: Introductionmentioning
confidence: 99%