‘Everything is down to the minute’: clock time, crip time and the relational work of self-managing attendant services

Katzman, Erika; Kinsella, Elizabeth Anne; Polzer, Jessica

doi:10.1080/09687599.2019.1649126

Cited by 24 publications

(19 citation statements)

References 60 publications

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“…In addition to the inadequacy of legal frameworks highlighted in the previous section, the CRPD also recognised the 'Inadequacy of…budget allocations' (United Nations Committee on the Rights of Persons with Disabilities 2017, 3). The literature reviewed in this paper has discussed how both the neo-liberal strategies and medical model thinking have limited the level of funding going to PA schemes which correlates with previous research (Katzman, Kinsella, and Polzer 2020;Mladenov 2015). Medical model thinking is negatively impacting funding for PA schemes as this mindset influences governments to fund institutional care.…”

Section: Government Fundingmentioning

confidence: 80%

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How governments manage personal assistance schemes in response to the United Nations Convention on the Rights of Persons with Disabilities: A Scoping Review

Nally

Moore

Gowran

2021

Disability & Society

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Governments are obligated to safeguard social inclusion for disabled people through user-led personal assistance (PA) under Article 19 of the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD). This scoping review was carried out to map and explore current knowledge on how governments internationally have managed PA schemes in response to the UNCRPD. The review examined 99 documents, and categorised the literature into the following themes; legislation, funding, model of service provision, governance and regulation, and the COVID-19 pandemic response. We include recommendations to co-design legislation and quality improvement policies to ensure that PA schemes are underpinned by a social model of disability mindset. Further research needs to be undertaken to guarantee that policymakers include the voice of PA users in the management of PA schemes. Points of interest• This article looked at 99 documents to find out how governments are managing personal assistance (PA). It found out that governments can often decide to spend less money on a PA scheme rather than protect our rights. • To overcome this problem the documents recommended that legislation for PA schemes must be designed with disabled people. Governments must redirect their money from institutional services to community-based services. Eligibility criteria to control access and the costs of PA should be removed. • This paper suggests that we need to have the voice of the PA user to direct the design and delivery of PA schemes.

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Section: Government Fundingmentioning

confidence: 80%

“…Finally, as the relationship between PA user and the personal assistant has a significant impact on a person's satisfaction and participation (Gibson et al 2009;Katzman, Kinsella, and Polzer 2020). PA users must select their personal assistant, as it can have a positive influence on their satisfaction (Mladenov 2020).…”

Section: The Model Of Service Provisionmentioning

confidence: 99%

How governments manage personal assistance schemes in response to the United Nations Convention on the Rights of Persons with Disabilities: A Scoping Review

Nally

Moore

Gowran

2021

Disability & Society

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“…Second, the notion that very young disabled young children are not capable of arts engagement is underpinned by powerful normative developmental scripts that promote the idea that certain capacities and stages need to be developed before arts-engagement is possible (Gabriel, 2021). The insistence for children to do things "on time" has been somewhat troubled by the new concept of "crip time" that is more attentive to how disabled bodies experience time and its passage (Katzman, Kinsella, & Polzer, 2020). Future researchers should try to employ ABR with a wider age range of children with a view to questioning and breaking down developmentalism in artistic processes.…”

Section: Discussion and Future Directionsmentioning

confidence: 99%

Behind the Paintbrush: Understanding the Impact of Visual Arts-Based Research (ABR) in the Lives of Disabled Children and Youth as well as Methodological Insights in ABR Application

Moola

Buliung

Posa

et al. 2022

CJDS

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Arts-based research (ABR) makes many promises, including the opportunity to engage with embodied ways of being and knowing, raise social and political concerns, as well as to address novel, participant-led inquiries. In this critical narrative review of the literature, we examine how disabled children and youth employ ABR methods in research contexts by carefully examining studies that use visual ABR. A secondary aim is to glean methodological insights from the application of ABR to the lives of disabled children and youth to help foster this critical dialogue. We decided to undertake this narrative review of the literature to better understand how ABR is used in pediatric disability contexts.

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“…The onus of proof to contest ADM calculated debt was pushed to recipients themselves within very tight timeframes (Whelan, 2020). Recipients were required to track down previous employers to ascertain weekly, fortnightly or monthly payslips, sometimes going back years, to illustrate ADM errors, precipitating ADM debt recipients into new forms of welfare 'chronopolitics' (Whelan, 2020; see also Katzman et al, 2020). So, it was these users of government services, rather than department workers, who were obliged to undertake the thorough human review of each fortnightly social security payment against ATO data sets, or follow up with third parties, to identify potential discrepancies in calculations.…”

Section: Automated Welfare Debt Recoverymentioning

confidence: 99%

Automated decision-making, digital inclusion and intersectional disabilities

Goggin

Soldatić

2022

New Media & Society

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Disability is a long-standing area of digital inclusion finally emerging out of the shadows. In this article, we argue that a critical understanding of digital media from the perspectives of disability and intersectionality will offer generative insights for framing the terms and agenda of digital inclusion in the next decade. With a focus on the area of automated decision-making (ADM) in social and welfare services, we reflect upon the controversial 2015–2020 Australian government programme widely known as ‘Robodebt’ that recovers putative debts from support recipients – and we discuss implications for Indigenous Australians with disabilities in particular. We contrast the ‘Robodebt’ programme with explicit digital inclusion policy on disability in Australia, noting that such digital inclusion policy does not specifically acknowledge yet alone address ADM or other aspects of automation. Here, there is a major opportunity for overdue acknowledgement of disability and intersectionality to spur and shape an affirmative and just agenda on people with disabilities’ digital inclusion, ADM and other associated areas of automated technologies.

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‘Everything is down to the minute’: clock time, crip time and the relational work of self-managing attendant services

Cited by 24 publications

References 60 publications

How governments manage personal assistance schemes in response to the United Nations Convention on the Rights of Persons with Disabilities: A Scoping Review

How governments manage personal assistance schemes in response to the United Nations Convention on the Rights of Persons with Disabilities: A Scoping Review

Behind the Paintbrush: Understanding the Impact of Visual Arts-Based Research (ABR) in the Lives of Disabled Children and Youth as well as Methodological Insights in ABR Application

Automated decision-making, digital inclusion and intersectional disabilities

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