Family caregivers’ decision process to institutionalize persons with Parkinson's disease: A grounded theory study

Predictors of the psychosocial impact of being a carer of people living with Parkinson's disease: A systematic review

“…Samples were recruited mainly from medical settings or patient or carer support groups and were biased towards those experiencing mild to moderate disability. It will be of value to recruit younger and non-spousal carers and carers of institutionalised PwP, all of whom who may not be the primary carer but may nonetheless still face significant but different caregiver challenges [2,[62][63].…”

“…Carers of PwPs can be faced with increased worry and uncertainty over their future, feelings of guilt, grief and frustration, negative changes in lifestyle (including restricted work and social activities) and a worsening financial situation (mainly through loss of earnings [1][2][3]). This can lead to poor psychosocial outcomes including reduced quality of life (QoL), emotional and financial strain, fatigue, sleep disturbances, social isolation and an increased risk of neuropsychiatric symptoms and chronic illness [4][5][6][7][8].…”

“…Nevertheless, experiences vary widely [5,9] and some carers adapt and cope well throughout the disease course [2]. There is a need to identify which factors predict poor psychosocial outcomes and to develop interventions that target these specific factors and those carers most at risk.…”

Indicators of the Process of Transition to the Exercise of Family Caregivers of Elderly with Parkinson's Disease: A Qualitative Study

“…Thinking about the reality of families, some authors argue that PD, as a complex chronic disease of high social and economic impact, ultimately affects not only the persons who have the disease [6,7], but all those who live with them, since most of these patients are cared for at home by family caregivers. The caregiver is generally the closest family member, the one with whom the person with PD shares daily events and the small achievements in face of the problems incurred by the disease [8].…”

Development and Initial Validation of a Parkinson’s Disease Caregiver Strain Risk Screen

“…developed from interviews of caregivers of persons with Parkinson's disease (Abendroth et al, 2012). The interview data, which led to the development of the model (see Figure 1), suggested that heightened risk for caregiver strain results from increased caregiving load and increased severity of Parkinson's disease symptoms over time (Abendroth et al, 2012).…”