Family-Centered Care in Pediatric Oncology

Mooney-Doyle, Kim; Santos, Maiara Rodrigues dos; Woodgate, Roberta L.

doi:10.1007/978-3-030-25804-7_2

Cited by 5 publications

(17 citation statements)

References 48 publications

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“…The CCF seeks to support family functioning through collaborative care (43) . Thus, we highlight that the landscape of cancer changes, as well as that of the pandemic of COVID-19, with impacts on the informational needs of the family.…”

Section: Discussionmentioning

confidence: 99%

“…Thus, we highlight that the landscape of cancer changes, as well as that of the pandemic of COVID-19, with impacts on the informational needs of the family. Thus, the prompt sharing of information is a central component (11,43) , with attention to the provision of timely and accurate information to support the reorganization of the family in the face of complex and challenging events, such as the experience and management of childhood cancer (43) and pandemics. Adequate and appropriate information helps families to manage health problems, adopt healthy practices and adapt to challenges (42) , However, they are dependent on technical quality, an aspect that is sometimes questioned (1)(2)44) .…”

Section: Discussionmentioning

confidence: 99%

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Online information related to childhood cancer and COVID-19 pandemic: a thematic analysis

et al. 2021

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Objective: To analyze online information available on the internet about COVID-19 and childhood cancer and discuss its reach potential with regard to supporting family functioning. Method: Documentary research supported by thematic analysis and the concept of family functioning and support. A total of 27 publications available on the websites of reference institutions in pediatric oncology, from March 1 to May 31, 2020, were analyzed. Results: Two themes guided the presentation of results with emphasis on language and sustainability assumptions to content, and to conveyed meanings and intentionality. The publications prospect families/people with basic knowledge about COVID-19 and have little information specific to the relationship with childhood cancer. Final considerations: Threatening circumstances require informational support. This study revealed incipient of specificity and a prescriptive tone in the online information available in early times of the pandemic, questioning the scope of support for family functioning.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Online information related to childhood cancer and COVID-19 pandemic: a thematic analysis

et al. 2021

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“…The experience of receiving a childhood cancer diagnosis is life-changing for the family unit (Barrera et al, 2016;Popp et al, 2015;Salvador et al, 2019Salvador et al, , 2020. With current family structures ranging from traditional nuclear, blended units, multigenerational, and beyond, the ripple effects of a cancer diagnosis in childhood are far-reaching and unanticipated (Crespo et al, 2016;Mooney-Doyle et al, 2020). Families undoubtedly experience a wide range of feelings when faced with a childhood cancer diagnosis.…”

mentioning

confidence: 99%

“…For pediatric oncology nurse researchers and clinicians, caring for the psychosocial needs of children and their families is as important as dealing with the biomedical needs of the patient (Barrera et al, 2016). To meet the myriad of needs that families of children diagnosed with cancer have, nurses may take on a family-centered approach (Mooney-Doyle et al, 2020). Family-centered care (FCC) is a widely adopted perspective in nursing (Mikkelsen & Frederiksen, 2010) and other health disciplines as this approach acknowledge the multifaceted biopsychosocial needs of children and their families in pediatric oncology (Mooney-Doyle et al, 2020).…”

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confidence: 99%

Concept Analysis of Family-Centered Care in Childhood Cancer: An Evolutionary Approach

Wilson

2023

Journal of Pediatric Hematology/Oncology Nursing

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The purpose of this article is to further develop the concept of family-centered care (FCC) in childhood cancer using Rodgers’ evolutionary method of concept analysis. A search of the existing literature related to the overarching concept of FCC revealed several concept analyses specific to hospitalized children and children with chronic illness; however, none of these were specific to children with cancer. Five defining attributes of FCC in childhood cancer were identified through this concept analysis: ripple effect, customized care, family functioning, collaboration, and communication. A definition of FCC in childhood cancer is offered based on identified characteristics of the concept. Findings of this concept analysis provide a starting point for on-going development of the concept of FCC in childhood cancer and may facilitate more rigorous nursing studies involving FCC in childhood cancer.

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“…(12) Considerando el amplio impacto de la hospitalización en los NNA es que algunos hospitales pediátricos han tomado como referencia el modelo de atención centrada en la familia que recalca la importancia de escuchar las preocupaciones de los padres, generar confianza y valorar el conocimiento que ellos tienen sobre su hijo/a. (13) En Chile, el acompañamiento y cuidado continuo de madres y padres durante la hospitalización en unidades de oncología es un fenómeno que se ha instaurado en menos de una década, (14) del cual existen escasos estudios a nivel nacional, por lo que ha generado nuevos desafíos para los profesionales de enfermería. Por consiguiente, la pregunta de investigación de la que surge este artículo fue ¿cómo viven madres y padres la experiencia de estar junto a su hijo/a hospitalizado en una unidad de oncología?…”

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"Cambia la vida de un día para otro”: Experiencias de madres y padres al cuidado personal de un hijo/a hospitalizado por cáncer

Méndez

Vega²,

Celis³

2023

Enfermeria (Montev.)

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Objetivo: Comprender el significado que atribuyen los padres y madres a la experiencia de estar junto a su hijo hospitalizado en una unidad de oncología de un hospital público de Chile. Metodología: Paradigma de investigación interpretativo, enfoque fenomenológico hermenéutico de Van Manen. Se realizó una entrevista en profundidad a 10 participantes y las narrativas se analizaron mediante un análisis temático con enfoque selectivo de lectura. El artículo fue aprobado por el comité de ética de la Pontificia Universidad Católica de Chile. Resultados: La experiencia de hospitalización significó “cambiar la vida de un día para otro”; este resultado se conformó por dos estructuras: 1) “Cuando te dan el diagnóstico se te derrumba el mundo”, que contiene momentos difíciles como la hospitalización en que reciben el diagnóstico, los momentos en que el hijo/a sufre, las situaciones de riesgo vital, el cansancio de las madres y padres y los cambios que afectan a la familia, y 2) “Recibir una luz de ayuda durante la hospitalización”, que describe la importancia de un espacio físico tranquilo, de un equipo de salud con un trato cariñoso y de compartir experiencias con otras madres y padres. Conclusiones: La hospitalización representa una transformación en el mundo vida de los padres y madres, es vital que el equipo de salud atienda las necesidades físicas y emocionales que derivan de este cambio en el espacio y relaciones que estos vivencian.

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Family-Centered Care in Pediatric Oncology

Cited by 5 publications

References 48 publications

Online information related to childhood cancer and COVID-19 pandemic: a thematic analysis

Online information related to childhood cancer and COVID-19 pandemic: a thematic analysis

Concept Analysis of Family-Centered Care in Childhood Cancer: An Evolutionary Approach

"Cambia la vida de un día para otro”: Experiencias de madres y padres al cuidado personal de un hijo/a hospitalizado por cáncer

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