Family stress, perceived social support and coping following the diagnosis of a child's congenital heart disease

Tak, Young Ran; McCubbin, Marilyn A.

doi:10.1046/j.1365-2648.2002.02259.x

Cited by 200 publications

(166 citation statements)

References 41 publications

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“…The amount of social support and the perceptions of individuals about it seem to play an important mediating and buffering role for stress impact, protecting psychological well-being [22,23].…”

Section: Discussionmentioning

confidence: 99%

Quality of Life Experienced by Adolescents and Young Adults With Congenital Heart Disease

et al. 2011

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This study aimed to assess the quality of life (QOL) experienced by adolescents and young adults with congenital heart disease (CHD) and to determine which factors negatively affect adjustment and which factors increase resilience. The participants in the study were 74 patients with CHD (41 males and 33 females) ranging in age from 12 to 26 years (mean age, 18.76 ± 3.86 years). Demographic information and a complete clinical history were obtained. The participants were interviewed regarding topics such as social support, family educational style, selfimage, and physical limitations. They responded to questions in a standardized psychiatric interview (SADS-L) and completed a self-report questionnaire (WHOQOL-BREF) for assessment of QOL. Compared with the Portuguese population as a whole, the study patients had better QOL, especially with regard to the environmental dimension (t = 3.754; P = 0.000) and social relationships (t = 2.333; P = 0.022). Patients who had undergone surgery experienced poorer QOL in the physical dimension (t = -1.989; P = 0.050), in social relationships (t = -2.012; P = 0.048) and overall (Mann-Whitney U = 563.000; P = 0.037). Social support played a positive role in the QOL of the patients, both in the physical dimension (t = 3.287; P = 0.002) and in social relationships (t = 3.669; P = 0.000). A higher school achievement also was associated with higher levels of QOL overall (Mann-Whitney U = 457.000; P = 0.046) as well as in the physical (t = 2.045; P = 0.045) and environmental (t = 2.413; P = 0.018) dimensions. Physical limitations had a detrimental impact on general QOL (Mann-Whitney U = 947.500; P = 0.001) and on the physical (t = -2.910; p = 0.005) and psychological (t = -2,046; P = 0.044) dimensions. Patients with CHD tended to perceive QOL as better when their social networks were supportive.

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Section: Discussionmentioning

confidence: 99%

Quality of Life Experienced by Adolescents and Young Adults With Congenital Heart Disease

et al. 2011

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“…Jackson and Turnball (2004) cite various studies that point to the importance of social support when a family is dealing with a crisis of this nature. Tak and McCubbin (2002) found that even perceived social support acted as a resiliency factor between family stress and family coping. They further found that family characteristics played an important predicting factor of perceived social support and parental coping.…”

Section: Families and Illnessmentioning

confidence: 98%

Resilience in Families that have Experienced Heart-Related Trauma

Greeff

Wentworth

2009

Curr Psychol

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STATEMENT I, the undersigned, hereby declare that the work contained in this assignment is my own original work and that I have not previously in its entirety or in part submitted it at any university for a degree. ……………………….. ……………………… Signature Date ii ABSTRACTThe current study was aimed at expanding on and understanding the adaptation and adjustment mechanisms used by families in the wake of heart-related trauma, as a means of providing information that reveals and supports the family's own abilities, capabilities and resilience. The theoretical framework of this study was the Resiliency Model of Family Stress, Adjustment and Adaptation (McCubbin & Thompson, 1991). The focus of this study is on the existing and new resources (including social support), the situation appraisal (including the family schema) and the problem solving and coping aspects of the family. This focus represents the paradigmatic shift from a pathological view of a family to a salutogenic view.Family resilience factors were collected through the self-report questionnaires and an open ended questionnaire, which were completed by the family member who experienced the heartrelated trauma. Results indicated that family time and routines appeared to be a key process for mediating family adaptation, as well as parent-child togetherness and family chores. Ander sleutelprosesse wat geïdentifiseer is en positief verband hou met gesinsaanpassing, is sosiale ondersteuning, gesinsgehardheid, en die herformulering van probleemsituasies. Die identifisering van kern gesinsprosesse kan bydra tot die herstel en opbou van gesinne in krisisse. In die Suid-Afrikaanse konteks kan hierdie kennis gebruik word om intervensies te beplan vir gesinne met 'n lid wat 'n kardiovaskulêre siekte het.iv CONTENTS

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“…They found that parents of developmentally disabled children reported more behavior problems, more stress, less well-being and lower community support than families of normally developing children (Nachshen & Minnes, 2005). Tak and McCubbin (2002) used the Resiliency Model to explore social support, stressors and coping in 92 families with children who have congenital heart defects. They found that perceived social support was a resiliency factor between family stress and family coping (Tak & McCubbin, 2002).…”

Section: Major Concepts Of the Theorymentioning

confidence: 99%

“…Tak and McCubbin (2002) used the Resiliency Model to explore social support, stressors and coping in 92 families with children who have congenital heart defects. They found that perceived social support was a resiliency factor between family stress and family coping (Tak & McCubbin, 2002). The following section will provide definitions of each major variable in the model and how it applies to the proposed study.…”

Section: Major Concepts Of the Theorymentioning

confidence: 99%

Factors Influencing Female Caregivers' Appraisals of Their Preschoolers' Behaviors

Coke

Moore

2017

Journal of Pediatric Health Care

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Family stress, perceived social support and coping following the diagnosis of a child's congenital heart disease

Cited by 200 publications

References 41 publications

Quality of Life Experienced by Adolescents and Young Adults With Congenital Heart Disease

Quality of Life Experienced by Adolescents and Young Adults With Congenital Heart Disease

Resilience in Families that have Experienced Heart-Related Trauma

Factors Influencing Female Caregivers' Appraisals of Their Preschoolers' Behaviors

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