Family Support for HIV Patients Undergoing Antiretroviral Therapy in Subang City

Kumala, Tria Firza; Lindayani, Linlin; Hasan, Acep; Ropei, Oop; Widhea, N; Badrujamalludin, Asep; Sudrajat, Diwa Agus

doi:10.18502/kls.v7i2.10331

Cited by 4 publications

(4 citation statements)

References 0 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

Section: Discussionmentioning

confidence: 99%

“…It was emphasised that the support received by YPLHIV from their loved ones or significant others is vital in assisting them in developing a sense of worth and coping with social problems. 27 Numerous participants shared that their situation was bearable because of the encouragement and inclusiveness within their community. The social environment is one of the most essential forms of support for the YPLHIV.…”

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

The Unheard Stories: Experiences of Young People Living with Human Immunodeficiency Virus in Dealing with Discrimination in the Philippines

Sombrea,

Santarin,

Verde

et al. 2024

HIV

View full text Add to dashboard Cite

Purpose The aim of this study is to gain an in-depth understanding of the experiences of young people living with the human immunodeficiency virus (YPLHIV) in dealing with discrimination and contribute to a more efficient response. Patients and Methods We utilised qualitative descriptive research-narrative inquiry. Twenty YPLHIV aged 19 to 24 under treatment from HIV hubs in Metro Manila, Philippines were purposely selected for an in-depth individual interview. Data were transcribed verbatim and manually coded and analysed using narrative thematic analysis. Results We found that HIV knowledge and beliefs of YPLHIV plays a huge role in their experience. Second, dealing with HIV stereotypes contributed to how they assume judgments from others (perceived stigma) and may have internalised the stigma which alters their belief toward self and the disease. Third, thoughts of suicide, experiencing emotional dissonance, and having difficulty embracing one’s identity indicate declined mental health. Fourth, they continuously seek and may have received support from significant others and the community. Some may have directly received or perceived discrimination, but the YPLHIV reported that support received from others plays positively vital role in their journey. Finally, the disease helped change their behaviour and, in turn, brought them to lifestyle change as they are eager to be undetectable and untransmissible (U=U) and perpetually reflect on the ordeal challenge of adhering to treatment. Conclusion Our study concluded that the stigma and discrimination that YPLHIVs endured were caused by misinformation about the disease and stems from both within themselves and from others around them. Support received from friends, family members, and the community helped them deal with their circumstances. We recommend that efforts be made by both the government and non-government to develop programs distinctly for YPLHIV. Future research may explore the mental health aspect as this has been found concerning in the narratives among young population patients.

show abstract

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

The Unheard Stories: Experiences of Young People Living with Human Immunodeficiency Virus in Dealing with Discrimination in the Philippines

Sombrea,

Santarin,

Verde

et al. 2024

HIV

View full text Add to dashboard Cite

show abstract

“…Some of the participants in this study said that their families were able to motivate them to access HIV health services. Family support can significantly increase the self-confidence of people living with HIV and encourage them always to access ART (Kumala et al, 2022). Research in Pakistan stated that families positively impact mentally strengthening people living with HIV in accessing health services.…”

Section: Discussionmentioning

confidence: 99%

“…Almost all participants said they accessed HIV health services to meet their ARV drug needs. People living with HIV are very aware of the importance of continuing regular ARV treatment; poor adherence will decrease the immune system and CD4 cell count and allow resistance to ARVs (Kumala et al, 2022;Parikh et al, 2022). PLWH urgently needs access to ART during the Covid-19 pandemic to achieve an ideal viral load, reduce HIV-related morbidity and mortality, and prevent HIV transmission during the Covid-19 pandemic (Sun et al, 2021).…”

Section: Discussionmentioning

confidence: 99%

The Experiences of People Living with HIV in Seeking HIV Health Services During Covid-19 Pandemic in Denpasar

Wiratama,

Raya,

Juniartha

2023

NLJ

View full text Add to dashboard Cite

People living with HIV (PLWH) need to maintain their health status by seeking HIV health services. However, HIV health services have been impacted by the Covid-19 pandemic and affect antiretroviral therapy (ART) for people living with HIV. This study aimed to explore the experiences of people living with HIV in seeking HIV health services during the Covid-19 pandemic. This study used a qualitative research design with a descriptive phenomenological approach. Semi-structured interviews were used on eight participants with a purposive sampling technique. Thematic analysis was used for data analysis in this study. This study found three themes, namely barriers to access to HIV health services during the Covid-19 pandemic, motivation to access HIV health services as the second theme. The third theme is the adaptation of HIV health services during the Covid-19 pandemic. PLWH have challenges accessing HIV health services during the Covid-19 pandemic. However, they have the motivation to maintain their health status by following new policies during the new normal period during the Covid-19 Pandemic. Communication, information, and education related to Covid-19 and new policies in accessing HIV health services must be provided by HIV nurses. The goal of such provision is to maintain health status, prevent lost to follow-up ART, and improve the quality of life of PLWH.

show abstract

Community-based psychosocial support interventions to reduce stigma and improve mental health of people with infectious diseases: a scoping review

Anindhita,

Haniifah,

Putri

et al. 2024

Infect Dis Poverty

View full text Add to dashboard Cite

Background Stigma experienced by people with infectious diseases impedes access to care, leading to adverse psychosocial consequences. Community-based interventions could prevent or mitigate these consequences but lack robust evidence. This scoping review aimed to identify and critically appraise community-based psychosocial support interventions to reduce stigma and improve mental health for people affected by stigmatizing infectious diseases including tuberculosis (TB), HIV/AIDS, and leprosy. Methods This was a scoping review of literature indexed in PubMed, Web of Science, Elton B. Stephens Company (EBSCO) database, as well as reports in the World Health Organization repository, published from January 2000 to June 2023. We included research articles and reports addressing stigma and mental health disorders among individuals with TB, HIV/AIDS, or leprosy and/or their household members in low- and middle-income and/or high TB burden countries. We extracted information regarding types of psychosocial interventions and their reported impact on health and psychosocial indicators. Results Thirty studies were included in this review: 21 (70%) related to HIV/AIDS, seven (23%) leprosy, and two (7%) TB. Of these, eleven were quantitative studies, nine qualitative, and ten mixed-methods. Eleven community-based interventions were reported to reduce infectious disease-related stigma, predominantly internalized and enacted stigma, and improve adherence to medication, quality of life, health-related knowledge, depression symptoms, and psychosocial wellbeing. Most studies involved lay people in the community as supporters of those affected. The predominant reported mechanism of intervention effect was the ability of supporters to enable those affected to feel seen and listened to, to accept their diagnosis, to improve their self-esteem, and to facilitate continuation of their daily lives, and thereby reducing anticipated stigma, self-stigma, and mental illness. Adequate training for lay people was reported to be essential to ensure success of interventions. Conclusions This review identified a paucity of high-quality evidence relating to community-based interventions to reduce stigma for infectious diseases. However, such interventions have been reported to reduce stigma and improve mental health among people with HIV/AIDS, leprosy, and TB. Engaging affected communities and peers, through the conception, planning, training, implementation, and evaluation phases, was reported to be essential to optimise intervention uptake, impact, and sustainability.

show abstract

Family Support for HIV Patients Undergoing Antiretroviral Therapy in Subang City

Cited by 4 publications

References 0 publications

The Unheard Stories: Experiences of Young People Living with Human Immunodeficiency Virus in Dealing with Discrimination in the Philippines

The Unheard Stories: Experiences of Young People Living with Human Immunodeficiency Virus in Dealing with Discrimination in the Philippines

The Experiences of People Living with HIV in Seeking HIV Health Services During Covid-19 Pandemic in Denpasar

Community-based psychosocial support interventions to reduce stigma and improve mental health of people with infectious diseases: a scoping review

Contact Info

Product

Resources

About