Feeding a child with cerebral palsy: parents’ difficulties

Marques, Joana Mendes; Sá, Luís

doi:10.12707/riv16041

Cited by 13 publications

(19 citation statements)

References 7 publications

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“…In the future, the other suggestions can be implemented. Some of challenges addressed by the caregivers are known and have been previously published in scientific literature [36,37]. Feeding problems are prevalent in children with CP (21-58%) and some of them were discussed during the meetings [36].…”

Section: Discussionmentioning

confidence: 99%

“…Some of challenges addressed by the caregivers are known and have been previously published in scientific literature [ 36 , 37 ]. Feeding problems are prevalent in children with CP (21–58%) and some of them were discussed during the meetings [ 36 ]. Nevertheless, the main problems expressed by caregivers were related to very practical issues, such as meal preparations and how to adapt its textures, how to prepare nutritious food, and other issues.…”

Section: Discussionmentioning

confidence: 99%

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Embracing the Nutritional Assessment in Cerebral Palsy: A Toolkit for Healthcare Professionals for Daily Practice

et al. 2022

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Background: Nutritional status assessment (NSA) can be challenging in children with cerebral palsy (CP). There are high omission rates in national surveillance reports of weight and height information. Alternative methods are used to assess nutritional status that may be unknown to the healthcare professionals (HCP) who report these children. Caregivers experience challenges when dealing with feeding problems (FP) common in CP. Our aim was to assess the difficulties in NSA which are causing this underreport and to create solutions for registers and caregivers. Methods: An online questionnaire was created for registers. Three meetings with HCP and caregivers were held to discuss problems and solutions regarding NSA and intervention. Results: HCP mentioned difficulty in NSA due to a lack of time, collaboration with others, equipment, and childrens’ motor impairment. Caregivers experienced difficulty in preparing nutritious meals with adapted textures. The creation of educational tools and other strategies were suggested. A toolkit for HCP was created with the weight and height assessment methods described and other for caregivers to deal with common FP. Conclusions: There are several difficulties experienced by HCP that might be overcome with educational tools, such as a toolkit. This will facilitate nutritional assessment and intervention and hopefully reduce underreporting.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Embracing the Nutritional Assessment in Cerebral Palsy: A Toolkit for Healthcare Professionals for Daily Practice

et al. 2022

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“…Un producto no atractivo puede ser percibido como ineficiente e ineficaz (Mugge & Schoormans, 2012). Además, los resultados destacan que los elementos relacionados con la percepción estética de un producto de apoyo, puede contribuir con el estigma social, como ya han señalado Shinohara & Wobbrock, 2011, Marques & Sá, 2016, y Vasquez et al, 2016. De hecho, las personas que no son usuarias de productos de apoyo emiten juicios desde el punto de vista de su percepción estética, aumentando el estigma que envuelve la interacción entre usuario-actividad-producto.…”

Section: Discusionesunclassified

Evaluación de la percepción de usabilidad, calidad y estética de la cuchara adaptada: Contribuciones al diseño ergonómico de productos de apoyo

Delgado

Marteli

Libório

et al. 2020

Rev. Chil. Ter. Ocup.

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El uso de productos de apoyo está destinado a compensar las limitaciones funcionales y facilitar la realización de actividades diarias de manera autónoma, proporcionando la integración e inclusión social de la persona que la necesita. Las Cucharas Adaptadas son productos de apoyo que necesitan atender los fundamentos de un diseño ergonómico. El presente estudio tuvo como objetivo conocer las percepciones de usabilidad, calidad y estética de una Cuchara Adaptada en comparación con otras dos (Tradicional y Moderna), con personas de diferentes paises (Grupo Brasileño - GB y Grupo Español - GE) y formaciones profesionales (respectivamente Ciencias Sociales y Ciencias de la Salud). Se realizó un análisis cuantitativo por medio de cuestionarios online con 212 personas. Los hallazgos muestran que la evaluación de la Cuchara Adaptada está peor valorada (p≤0.01) en comparación con las demás cucharas (Usabilidad / Desconfortable - con GB; Calidad / Pesada - con GB y GE; y Estética / Fea - con GB y GE). Así el diseño de Cucharas Adaptadas debe considerar las necesidades básicas (Usabilidad y Calidad) y aspiraciones (Estética) de las personas con limitaciones funcionales, para que los productos de apoyo no causen abandono del producto y estigma social.

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“…National and international studies have shown that children and adolescents with CP have an increased risk of malnutrition. 7 , 8 , 9 , 10 , 11 Thus, it is essential to identify risk factors for this clinical condition early in order to improve the prognosis of these individuals. Epidemiological investigations have presented different behaviors for the nutritional therapy of individuals with CP, ranging from recommending the use of nutritional supplements to the best route for administering the diet.…”

Section: Introductionmentioning

confidence: 99%

Nutritional interventions in children and adolescents with cerebral palsy: systematic review

Silva

Cunha

Santana

et al. 2024

Rev. paul. pediatr.

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Objective: To systematically review the literature in search of the most suitable and effective nutritional interventions and indications for the nutritional treatment of children and adolescents with cerebral palsy (CP). Data source: This review was conducted in accordance with the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. The articles were selected from seven databases (Cochrane, Literatura Latino-Americana e do Caribe em Ciências da Saúde — Lilacs, Embase, United States National Library of Medicine — PubMed, Scientific Electronic Library Online — SciELO, Scopus, and Web of Science). Studies from a pediatric group (0 to 18 years old) diagnosed with CP were included and the search strategy included the descriptors: “children” OR “childhood” AND “nutritional therapy” OR “nutritional intervention” OR “nutrition” OR “nutritional support” OR “diet” AND “cerebral palsy” OR “cerebral injury”. Methodological quality was assessed using the checklist for cross-sectional analytical studies, the Newcastle-Ottawa scale or the Cochrane Collaboration tool for clinical trials. Data synthesis: Fifteen studies (n=658) published from 1990 to 2020 met the inclusion criteria. All of them had a low risk of bias. The data showed that children and adolescents with CP have worse nutritional status than those normally developed. Those who received hypercaloric and hyperprotein nutritional supplementation benefited from its use. Studies indicate that enteral nutrition should be considered when nutritional needs are not met by the oral diet, especially in cases where oral motor functions are impaired. In addition, there was a direct relationship between the consistency of food, the level of motor function and nutritional status. Conclusions: Children and adolescents with CP have a greater risk of malnutrition. The use of nutritional supplementation may help with weight gain. In addition, enteral nutrition and modification of food texture have been used to improve the nutritional status of this group.

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Feeding a child with cerebral palsy: parents’ difficulties

Abstract: Feeding a child with cerebral palsy: parents' difficulties A Alimentação da criança com paralisia cerebral: dificuldades dos pais La alimentación de los niños con parálisis cerebral: la percepción de los padres

Cited by 13 publications

References 7 publications

Embracing the Nutritional Assessment in Cerebral Palsy: A Toolkit for Healthcare Professionals for Daily Practice

Embracing the Nutritional Assessment in Cerebral Palsy: A Toolkit for Healthcare Professionals for Daily Practice

Evaluación de la percepción de usabilidad, calidad y estética de la cuchara adaptada: Contribuciones al diseño ergonómico de productos de apoyo

Nutritional interventions in children and adolescents with cerebral palsy: systematic review

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