Health-Related Quality of Life in Common Variable Immunodeficiency Italian Patients Switched to Remote Assistance During the COVID-19 Pandemic

Pulvirenti, Federica; Cinetto, Francesco; Milito, Cinzia; Bonanni, Livia; Pesce, Anna Maria; Leodori, Giorgia; Garzi, Giulia; Miglionico, Marzia; Tabolli, Stefano; Quinti, Isabella

doi:10.1016/j.jaip.2020.04.003

Cited by 90 publications

(96 citation statements)

References 20 publications

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“…Recent studies showed that anxiety and depression caused by COVID-19 was associated with people's life quality (24)(25)(26). However, only 3.9% participants reported problems of moderate anxiety/depression, while about 50% felt worried about COVID-19 in our study.…”

Section: Disscusioncontrasting

confidence: 69%

Quality of life during the epidemic of COVID-19 and its associated factors among enterprise workers in East China

Chen¹,

Lin

et al. 2020

Preprint

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Background: The impact of COVID-19 related quarantine on quality of life was expected and unclear for enterprise workers. We investigated the quality of life during the epidemic in enterprise workers just returned to work and assessed its potential influencing factors to get a better understanding of the impact of COVID-19 epidemic. Methods: This was a cross-sectional study among enterprise workers in Deqing and Taizhou, Zhejiang Province, China. Chinese version of EQ5D to assess life quality, and information about general characteristics and COVID-19 related information was collected by a structured questionnaire online distributed through the social application “Wechat”. Results: A total of 2435 participants were enrolled, 59.5% of which worked in Deqing. About 50% reported worries about the COVID-2019 epidemic and 40.1% of participants performed centralized or home quarantine during the epidemic. The mean EQ-5D score and VAS were 0.990 and 93.5. Multiple logistic regression suggested that physical activities (ORad=0.46) and keeping home ventilation (ORad=0.04) was related with life quality in Deqing, while for participants in Taizhou, wearing a mask when going out (ORad=0.35), keeping home ventilation (ORad=0.16), unmarried status (ORad=2.38) and experienced centralized or home quarantine (ORad=1.64) was related with quality of life.Conclusions: Enterprise workers in two areas with different risk of COVID-19 experienced different life quality during the epidemic of COVID-19. Physical activity, marital status, worry about epidemic of COVID-19, keeping home ventilation, wearing a mask and quarantine were related with quality of life.

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Section: Disscusioncontrasting

confidence: 69%

Quality of life during the epidemic of COVID-19 and its associated factors among enterprise workers in East China

Chen¹,

Lin

et al. 2020

Preprint

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“…In regression analysis, the children's general mood (β 0.17, 95% CI 0.11-0.23, p <0.001), the parents' general mood, β = 0.13, 95% CI 0.06 -0.20, p <0.001) and the children's study time (β -0.09, 95% CI -0.15, -0.02, 0.010) significantly predicted the children's ADHD behaviors. Ahmed, Z. et al (40) The results showed that 29% of those surveyed suffered from anxiety (mild 10.1%, moderate 6.0% and severe 12.9%), while 37.1% suffered from different levels of depression (mild 10.2%, moderate 17.8%, and severe 9.1%). There was also a 29% increase in hazardous alcohol consumption, harmful drinking increased to 9.5%, and alcohol dependency reached 1.6%.…”

Section: Moghanibashi-mansouriehmentioning

confidence: 99%

Effects of COVID-19 on Anxiety, Depression and Other Mental Health Issues: A worldwide scope review.

Machado¹,

Alves²,

Teixeira³

et al. 2020

Preprint

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BACKGROUND: The COVID-19 pandemic has spread across the world and, along with it, a considerable degree of fear and uncertainties that impact on various aspects of societal life, including on people’s Mental Health (MH). Understanding how the COVID-19 pandemic affects MH can help to implement interventions and adequate public policies, providing more effective responses to mitigate its effects.OBJECTIVES: To summarize the scientific evidence on the possible influence of the Covid-19 pandemic on MH, critically evaluating the methods and scientific validity of the studies found, in addition to summarizing the recommendations on strategic measures to reduce the impact of COVID-19 on MH.METHODOLOGY: The current scoping review was conducted from a screening of 465 articles on COVID-19 and MH outcomes, based on the main database of scientific references on health, assessed throughout PubMed. RESULT: Of the 43 papers selected for summary and critical analysis 77% (n=33) indicated a relationship between the COVID-19 pandemic and anxiety symptoms, 56% (n=26) with depression or depressive symptoms, seven with changes in sleep pattern and seven with obsessive behaviours or Obsessive Compulsive Disorder. In addition to studies that showed an influence of the COVID-19 pandemic on trauma or post-traumatic stress disorder (PTSD), psychological distress, stress and fear. Most of the studies were carried out in China, and primarily evaluated the presence of anxiety and depression, through scales and questionnaires. Health professionals and the elderly were cited among the most affected population groups. CONCLUSIONS: Most studies presented significant methodological limits. Investments in new research, with controlled studies, including representative and randomized samples, and longitudinal follow-up, are necessary, to further explore the relationships between the COVID-19 pandemic and people's MH and long-term effects. Pending such studies, given the effects (during and after) of previous epidemics on MH, government measures need to be implemented to reduce the potential catastrophic effects of the COVID-19 pandemic on MH, and the burden that will remain after the pandemic. The timely identification of psychological distress and the identification of MH needs among populations, facilitate the development of targeted psychological interventions, in addition to the organization of health services and systems, during the pandemic.

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“…An initiative that may help neuromuscular centres to reorganize patient care is the use of quality-of-life surveys sent to NMD patients to follow up on their feelings and needs and consequently modulate appropriate responses, as already assessed in immunocompromised patients [ 15 ]. In parallel, nationwide surveys may help to quickly identify NMD patients who suffered from severe SARS-CoV-2 infection in other regions/states of the country and promptly manage possible complications—such as ventilation-associated pulmonary damage, critical-illness myopathies, and neuropathies and emerging COVID-related neurologic manifestations [ 16 – 18 ]—that were reported during the SARS-CoV-1 pandemic in 2002–2004 [ 19 ].…”

Section: The Nmd Patient Without Sars-cov-2 Infectionmentioning

confidence: 99%

Management of patients with neuromuscular disorders at the time of the SARS-CoV-2 pandemic

et al. 2020

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The novel Coronavirus disease-19 (COVID-19) pandemic has posed several challenges for neuromuscular disorder (NMD) patients. The risk of a severe course of SARS-CoV-2 infection is increased in all but the mildest forms of NMDs. High-risk conditions include reduced airway clearance due to oropharyngeal weakness and risk of worsening with fever, fasting or infection Isolation requirements may have an impact on treatment regimens administered in hospital settings, such as nusinersen, glucosidase alfa, intravenous immunoglobulin, and rituximab infusions. In addition, specific drugs for SARS-CoV2 infection under investigation impair neuromuscular function significantly; chloroquine and azithromycin are not recommended in myasthenia gravis without available ventilatory support and prolonged prone positioning may influence options for treatment. Other therapeutics may affect specific NMDs (metabolic, mitochondrial, myotonic diseases) and experimental approaches for Coronavirus disease 2019 may be offered "compassionately" only after consulting the patient's NMD specialist. In parallel, the reorganization of hospital and outpatient services may change the management of non-infected NMD patients and their caregivers, favouring at-distance approaches. However, the literature on the validation of telehealth in this subgroup of patients is scant. Thus, as the first wave of the pandemic is progressing, clinicians and researchers should address these crucial open issues to ensure adequate caring for NMD patients. This manuscript summarizes available evidence so far and provides guidance for both general neurologists and NMD specialists dealing with NMD patients in the time of COVID-19.

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Health-Related Quality of Life in Common Variable Immunodeficiency Italian Patients Switched to Remote Assistance During the COVID-19 Pandemic

Cited by 90 publications

References 20 publications

Quality of life during the epidemic of COVID-19 and its associated factors among enterprise workers in East China

Quality of life during the epidemic of COVID-19 and its associated factors among enterprise workers in East China

Effects of COVID-19 on Anxiety, Depression and Other Mental Health Issues: A worldwide scope review.

Management of patients with neuromuscular disorders at the time of the SARS-CoV-2 pandemic

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