How patients experience the surroundings in relation to patient participation: a qualitative study of inpatients with intestinal failure

Abstract

IntroductionPatient participation is known to improve patients’ motivation, compliance, treatment results, and satisfaction with the received care. It is well known that the physical environment is of great importance in supporting patient involvement. A systematic literature search has shown a lack of articles on the subject of “surroundings” in relation to patient participation, for all patient groups.AimWe aimed to investigate how patients with intestinal failure experience their hospital surroundings in relation to patient participation.MethodsThe study included eight patients admitted for at least 2 weeks at the Intestinal Failure Unit, H8, Salford Royal NHS Foundation Trust, Manchester, United Kingdom. Included patients had a good level of consciousness with no confusion. The included patients participated in a semistructured interview. The interviews were analyzed using Malterud’s principles of systematic text condensation.ResultsThe patients described that the surroundings enabled them to participate in their treatment and care. The surroundings made it possible for them and encouraged them to participate through: the possibility to seek and get information and the possibility to participate in daily activities. This led to a feeling of independence, reassurance, normality, control, responsibility, and confidence.ConclusionThe findings in this study indicate that the hospital surroundings are essential for the patients with respect to their ability to participate in their own care and treatment. The surroundings, in relation to patient participation, should be considered when planning and organizing nursing care. Further research is needed to increase the understanding of the surroundings in relation to patient participation – this research could, for eg, include the nurse’s perspective.

Perceptions of patient participation in symptom management: A qualitative study with cancer patients, doctors, and nurses

“…Patients described their role in symptom management in terms of their involvement in self‐management by adjusting mental status, diet, or life style. Similar perceptions were found in previous studies both from the perspective of patients (McInnes, Chaboyer, Murray, Allen, & Jones, ; Seale et al., ; Thyssen & Beck, ; Wåhlin, Ek, & Idvall, ) and nurses (Kvangarsnes et al., ; Löfman, Häggman‐Laitila, & Pietilä, ; Sahlsten, Larsson, Sjöström, & Plos, ). Self‐management was not valued as highly as the activities related to information exchange.…”

“…As a subject heading term in the academic databases of empirical literature, patient participation is defined as involvement in the specific activity of decision-making (CINAHL Headings, 2017;Mesh, 2017); while from the perspectives of nursing providers, participation involves general engagement between patients and nurses in the everyday aspects of care (Thyssen & Beck, 2014;Tobiano, Bucknall, Marshall, Guinane, & Chaboyer, 2015a). The myriad of definitions of patient participation highlight the variety of perspectives and interpretations (Eldh et al, 2010;Longtin et al, 2010) and this is likely to have an impact on how it is understood and operationalized in healthcare interactions.…”

Low medication adherence in patients with Short Bowel Syndrome dependent on parenteral nutrition

“…Thyssen e colaboradores (2014) 3 sugerem que o ambiente de convívio do paciente é essencial para garantir sua participação nos seus cuidados e tratamentos. O perfil socioeconômico da nossa casuística pode ter contribuído para a baixa adesão ao tratamento medicamentoso.…”

“…17 Dentre as limitações do estudo, pode-se incluir o pequeno tamanho amostral. No entanto, comparando-se o número de casos estudados em outras pesquisas envolvendo pacientes com SIC 3,28,29 e sua baixa prevalência mundial, pode-se afirmar que o tamanho da amostra foi relativamente expressivo. O questionário usado neste estudo não é específico para pacientes com SIC e por isso não inclui questões direcionadas às queixas comumente observadas na síndrome.…”

Achievement of patients’ preferences for participation in oncological symptom management and its association with perceived quality of care

“…Patients’ actual experience of participation in health care has been identified as an indicator of patient satisfaction and the quality of care delivered 6,7. Investigation of patients’ preference for and achievement of participation has mostly focused on medical decision-making,8,9 and the findings are varied.…”