“I Want to See the Queen”: Experiences of Service Use by Ageing People with an Intellectual Disability

Bigby, Christine; Knox, Marie

doi:10.1080/03124070902748910

Cited by 34 publications

(29 citation statements)

References 29 publications

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“…2008). In a study focusing specifically on the everyday lives of older people with intellectual disability, Bigby & Knox (2009) found that neither service providers nor family took responsibility for assisting older people to plan for their future.…”

Section: Introductionmentioning

confidence: 99%

Enabling Self‐determination for Older Workers with Intellectual Disabilities in Supported Employment in Australia

McDermott

Edwards

2012

Research Intellect Disabil

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Although disability services and service providers emphasize the importance of promoting self-determination for people with disability, those working in supported employment are not currently enabled to make self-directed choices about retirement. To address this requires more flexible services, better information about retirement, exposure to real experiences and assistance to express preferences and participate in problem solving throughout the lifespan.

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Section: Introductionmentioning

confidence: 99%

Enabling Self‐determination for Older Workers with Intellectual Disabilities in Supported Employment in Australia

McDermott

Edwards

2012

Research Intellect Disabil

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“…Lifshitz (2002a) har dock visat att ju äldre personen själv blir ju större blir medvetenheten om åldrandets positiva karakteristika. I senare gjorda studier återges flera exempel på en mer positiv syn på ålderdomen som en period i livet som kan karakteriseras av egenmakt och ökad delaktighet (se exempelvis Dew, Llewellyn & Gorman, 2006;Buys et al, 2008;Bigby & Knox, 2009;Judge et al, 2010;McCarron et al, 2011). …”

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Delaktig (även) på äldre dar : Åldrande och delaktighet bland personer med intellektuell funktionsnedsättning som bor i gruppbostad

Kåhlin¹

2015

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“…It seemed that participants' experience of powerlessness largely arose from reliance on others as a result of their learning disability. It is already known that powerlessness is experienced by older people with learning disabilities (Bigby & Knox, 2009;Strnadova & Evans, 2012). This study has provided an additional insight into how participants reacted to and made sense of this experience, with reactions ranging from unquestioning acceptance, through disappointment to anger and resentment.…”

Section: Powerlessnessmentioning

confidence: 99%

“…Several participants had maintained voluntary work or continued attending day-services, those who did not work found useful jobs to do around the house and several participants expressed a continued interest in learning. This is not surprising as keeping active, being engaged in meaningful activities and having opportunities to learn and maintain skills are recognised as being important for older people with learning disabilities (Bigby & Knox, 2009;Buys et al, 2008). Helping out at work or at home seemed to provide participants with valuable roles and a sense of being useful and valued by others, which has been shown to be important to people with learning disabilities, including older people (Bigby & Knox, 2009;Haigh et al, 2013).…”

Section: Needing a Sense Of Purposementioning

confidence: 99%

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How do people with learning disabilities experience and make sense of the ageing process?

Newberry

Martin

Robbins

2015

Brit J Learn Disabil

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Accessible summary We wanted to find out what getting older feels like for people with learning disabilities. We asked seven people with learning disabilities about getting older. Most of the people had noticed changes as they got older. Some felt sad or angry about it. Some worried about getting older. People said that it was important to have good friends and to do useful jobs. Some people did not know much about getting older. Some people wanted to look back over their lives to feel more settled. They might need help with this. Abstract Background: Not enough is currently known about how people with learning disabilities experience and understand the ageing process. This is particularly important as the population of older people with learning disabilities is growing due to increased life expectancy. This article draws on the first author's doctoral research study, which aimed to fill this gap in the literature by exploring how people with learning disabilities experience and make sense of the ageing process and old age. Materials and Methods: Seven people with learning disabilities aged 60 or more were interviewed, and their accounts were analysed using interpretative phenomenological analysis. This approach allows the participant's lived experience to be explored in detail. Participants' accounts were analysed individually, followed by a group analysis. This article presents the results of the group analysis, illustrated by quotes from individuals. Results: The master themes arising from the group analysis were as follows: quality of relationships is central to enjoyment of life, including subthemes on the importance of affection and companionship, distress at lack of closeness and anxiety about ability to satisfy others; powerlessness; needing a sense of purpose; and making sense of getting older, including subthemes on reactions to changes with age, life review and looking to the future. Conclusions: Clinical implications of the findings include the need for services to support older people with learning disabilities in maintaining friendships and meaningful activities. This study demonstrates that some older people with learning disabilities can engage in a process of life review and raises the possibility that learning disability services could play a useful role in facilitating this process. Understanding of the ageing process varied between participants and tended towards a negative, stereotypical view of ageing. The findings suggest that people with learning disabilities could benefit from psychoeducation on the ageing process to aid them in making sense of the changes they experience as they get older.

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“I Want to See the Queen”: Experiences of Service Use by Ageing People with an Intellectual Disability

Cited by 34 publications

References 29 publications

Enabling Self‐determination for Older Workers with Intellectual Disabilities in Supported Employment in Australia

Enabling Self‐determination for Older Workers with Intellectual Disabilities in Supported Employment in Australia

Delaktig (även) på äldre dar : Åldrande och delaktighet bland personer med intellektuell funktionsnedsättning som bor i gruppbostad

How do people with learning disabilities experience and make sense of the ageing process?

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