Important Aspects Influencing Delivery of Serious News in Pediatric Oncology: A Scoping Review

Hrdličková, Lucie; Poláková, Kristýna; Loučka, Martin

doi:10.3390/children8020166

Cited by 8 publications

(21 citation statements)

References 61 publications

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“…Again, it is important to consider that both diagnosis and prognosis may have been communicated by healthcare professionals several times, yet were not perceived as communicated by parents, possibly due to the extremely stressful situation. In a recent scoping review regarding communicating bad news in childhood cancer care, it was found that parents were sometimes so troubled and upset that this decreased their ability to listen to and understand the information delivered by physicians 19 . Healthcare professionals may therefore need to regularly assess how well‐informed the child and parents are and repeat important information if needed.…”

Section: Discussionmentioning

confidence: 99%

“…In a recent scoping review regarding communicating bad news in childhood cancer care, it was found that parents were sometimes so troubled and upset that this decreased their ability to listen to and understand the information delivered by physicians. 19 Healthcare professionals may therefore need to regularly assess how well‐informed the child and parents are and repeat important information if needed.…”

Section: Discussionmentioning

confidence: 99%

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Communication about diagnosis and prognosis—A population‐based survey among bereaved parents in pediatric oncology

et al. 2022

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Introduction:When a child is diagnosed with cancer, the whole family is affected, and parents struggle to grasp challenging information regarding diagnosis and prognosis. Most parents and children want honest communication and openness, yet this remains a complex and challenging task for healthcare professionals.Objectives: To describe bereaved mothers' and fathers' reports of communication of their child's cancer diagnosis and when the illness became incurable.Methods: Data from a Swedish population-based survey conducted in 2016, including 135 mothers and 97 fathers who had lost a child to cancer 1-5 years earlier, were studied regarding the parents' reports of communication about their child's illness. Results:A vast majority of parents wants information when their child's illness becomes incurable, and this need is generally met. However, fathers to a lesser extent than mothers, reported that they were informed about it. According to parents' reports 87% of children received diagnostic information and 44% of the children received prognostic information. Conclusion:A vast majority of both mothers and fathers would like to know when their child's illness becomes incurable, yet it remains unknown to what extent they want their child to be informed.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Communication about diagnosis and prognosis—A population‐based survey among bereaved parents in pediatric oncology

et al. 2022

View full text Add to dashboard Cite

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“…It is also vital to communicate effectively in order to convey accurate information to patients and their families, so that they can make an informed decision about their healthcare. However, disclosing the diagnosis of a serious illness or the poor prognosis of a disease often represents a daunting task for physicians and a life-changing event for patients and their families [ 1 , 2 ]. In the past, before the 1960s, when clinicians began to promote a more open approach regarding communication with their patients, most literature recommended protecting patients, especially pediatric patients, in order to shield them from distress [ 2 , 3 ].…”

Section: Introductionmentioning

confidence: 99%

“…Now, open communication, which sheds light upon diagnosis and prognosis and includes the child’s parents in the care team, is a much more widely used approach. Recent studies have shown the benefits of discussing the diagnosis with pediatric patients themselves, using age-appropriate language [ 1 , 4 , 5 ]. This, in return, eases the burden on the parents of having to maintain a façade and opens a channel for the child through which he or she can raise questions and voice opinions [ 3 , 4 ].…”

Section: Introductionmentioning

confidence: 99%

“…This, in return, eases the burden on the parents of having to maintain a façade and opens a channel for the child through which he or she can raise questions and voice opinions [ 3 , 4 ]. The results of these actions are improved quality of life, better adherence to treatment and a decrease in depression among patients [ 1 , 3 , 4 ]. Aside from the wide developmental range of pediatric oncology patients, several barriers render communication challenging.…”

Section: Introductionmentioning

confidence: 99%

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Prognosis Communication in Pediatric Oncology: A Systematic Review

Boeriu,

Borda,

Miclea

et al. 2023

Children

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Background: While communication plays an important role in medicine, it also often represents a challenge when the topic at hand is the prognosis of a high-risk condition. When it comes to pediatric oncology, the challenge becomes even greater for physicians who have to adapt their discourse to both the child and their family. Methods: Following the PRISMA guidelines, an advanced search on PubMed, Scopus and the Cochrane Library was performed, from 1 January 2017 to 31 October 2022. Demographic data for caregivers, pediatric patients and physicians were extracted, as well as diagnosis, prognosis, presence at discussion, emotional states and impact on life, trust, decision roles, communication quality and other outcomes. Results: A total of 21 articles were analyzed. Most studies (17) focused on caregivers, while only seven and five studies were focused on children and physicians, respectively. Most parents reported high trust in their physicians (73.01%), taking the leading role in decision making (48%), moderate distress levels (46.68%), a strong desire for more information (78.64%), receiving high-quality information (56.71%) and communication (52.73%). Most children were not present at discussions (63.98%); however, their desire to know more was expressed in three studies. Moreover, only two studies observed children being involved in decision making. Most physicians had less than 20 years of experience (55.02%) and reported the use of both words and statistics (47.3%) as a communication method. Conclusions: Communication research is focused more on caregivers, yet children may understand more than they seem capable of and want to be included in the conversation. More studies should focus on and quantify the opinions of children and their physicians. In order to improve the quality of communication, healthcare workers should receive professional training.

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Comparing Parent and Physician Perspectives on the Transition to Palliative Care in Pediatric Oncology

Nyirő

Földesi

Hauser

et al. 2022

Communications in Computer and Information Science

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Important Aspects Influencing Delivery of Serious News in Pediatric Oncology: A Scoping Review

Cited by 8 publications

References 61 publications

Communication about diagnosis and prognosis—A population‐based survey among bereaved parents in pediatric oncology

Communication about diagnosis and prognosis—A population‐based survey among bereaved parents in pediatric oncology

Prognosis Communication in Pediatric Oncology: A Systematic Review

Comparing Parent and Physician Perspectives on the Transition to Palliative Care in Pediatric Oncology

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