International Perspectives on Nonpharmacological Best Practices for Dementia Family Caregivers: A Review

Gallagher‐Thompson, Dolores; Tzuang, Marian; Au, Alma; Brodaty, Henry; Charlesworth, Georgina; Gupta, Rashmi; Lee, Sangeun; Losada, Andrés; Shyu, Yea‐Ing Lotus

doi:10.1080/07317115.2012.678190

Cited by 123 publications

(94 citation statements)

References 126 publications

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“…Over time, the burden of caregiving and the chronic exhaustion from it place an individual at elevated risk for various physical and psychological morbidities, including cardiovascular diseases, depression, dementia, and early mortality. [1][2][3] The challenge faced by caregivers may be more pronounced in developing countries where training capacity severely limits the availability of well-qualified workers 4 and where the emphasis on family responsibility discourages the development of formal services. 5 Although the task of dementia caregiving is very stressful indeed, the level of stress felt is not solely determined by objective stressors such as the care recipient's behavior problems, but also by the way the caregiver evaluates the situation.…”

Section: Introductionmentioning

confidence: 99%

Short-Term Effects of a Gain-Focused Reappraisal Intervention for Dementia Caregivers: A Double-Blind Cluster-Randomized Controlled Trial

Cheng

Fung

Chan

et al. 2016

The American Journal of Geriatric Psychiatry

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Objectives:To examine the effects of a benefit-finding intervention, the key feature being the use of gain-focused reappraisal strategies to find positive meanings and benefits in caring for someone with dementia. Design: Cluster-randomized double-blind controlled trial. Setting:Social centers and clinics. Participants: 129 caregivers. Inclusion criteria were (a) primary caregiver aged 18+ and without cognitive impairment, (b) providing ≥14 care hours per week to a relative with mild-to-moderate Alzheimer's disease, and (c) scoring ≥3 on the Hamilton Depression Rating Scale. Exclusion criterion was care-recipient having parkinsonism or other forms of dementia. Interventions: The benefit-finding intervention was evaluated against two treatment-as-usuals, namely, simplified psychoeducation (lectures only) and standard psychoeducation. Each intervention lasted eight weeks, with a 2-hour session per week.Randomization into these conditions was based on center/clinic membership. Measurements:Primary outcome was depressive symptom. Secondary outcomes were Zarit Burden Interview, role overload, and psychological well-being. Self-efficacy beliefs and positive gains were treated as mediators. Measures were collected at baseline and posttreatment. Results: Regression analyses showed BF treatment effects on all outcomes when compared with SIM-PE, and effects on depressive symptoms and Zarit burden when compared with STD-PE. Effect sizes were medium-to-large for depressive symptoms (d=-0.77--0.96), and medium for the secondary outcomes (d=|0.42-0.65|). Furthermore, using the bootstrapping method, we found significant mediating effects by self-efficacy in controlling upsetting thoughts and positive gains, with the former being the primary mediator. Conclusions: Finding positive gains reduces depressive symptoms and burden and promotes psychological well-being primarily through enhancing selfefficacy in controlling upsetting thoughts.

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Section: Introductionmentioning

confidence: 99%

Short-Term Effects of a Gain-Focused Reappraisal Intervention for Dementia Caregivers: A Double-Blind Cluster-Randomized Controlled Trial

Cheng

Fung

Chan

et al. 2016

The American Journal of Geriatric Psychiatry

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“…Several studies point out how differences in personality explain both caregiving burdens and mental health among informal caregivers [26] [27]. These could involve emotional feelings, e.g., being anxious.…”

Section: Comprehensive Understanding and Discussionmentioning

confidence: 99%

“Being Free Like a Bird”―The Meaning of Being an Informal Caregiver for Persons with Dementia Who Are Receiving Day Care Services

Myren¹,

Enmarker²,

Saur³

2015

OJN

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Respite care in the form of day care is one of the several respite services that aims to provide temporary relief to informal caregivers from their responsibilities of caring for a person with dementia. The purpose of this study was to illuminate the meaning of being an informal caregiver for a person with dementia living at home and receiving day care services. Narrative interviews were conducted, and data were analyzed using the phenomenological hermeneutic method. Two main themes emerged: "Living with limitations in everyday life" and "Having a life besides being a caregiver". The comprehensive understanding suggested living with a person with dementia, changes and influences the informal caregiver's life through a set of new roles and a new way of living and thinking. The result is discussed in light of Goffman's analysis of the structures of social encounters from the perspective of the dramatic performance.

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“…La mayor parte de ellas se han centrado en cuidadores informales de personas con un determinado trastorno, fundamentalmente demencia (e.g., Brodaty, Green y Koschera, 2003;Charlesworth, 2001;Gallagher-Thompson et al, 2012;Parra-Vidales, Soto-Pérez, Perea-Bartolomé, Franco-Martín y Muñoz-Sánchez, 2017;Pinquart y Sörensen, 2006;Pusey y Richards, 2001;Selwood, Johnston, Katona, Lyketsos y Livingston, 2007). Algunas revisiones se han centrado en valorar la eficacia de intervenciones sobre variables de resultado concretas, como la sobrecarga (Acton y Kang, 2001;Yin, Zhou y Bashford, 2002) o la sintomatología depresiva (Vázquez et al, 2014;Vázquez et al, 2015;Vázquez y Otero, 2009;Weinbrecht, Rieckmann y Renneberg, 2016).…”

Section: Introductionunclassified

Los Cuidadores Informales de Personas Mayores Dependientes: una Revisión de las Intervenciones Psicológicas de los Últimos Diez Años

2018

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International Perspectives on Nonpharmacological Best Practices for Dementia Family Caregivers: A Review

Cited by 123 publications

References 126 publications

Short-Term Effects of a Gain-Focused Reappraisal Intervention for Dementia Caregivers: A Double-Blind Cluster-Randomized Controlled Trial

Short-Term Effects of a Gain-Focused Reappraisal Intervention for Dementia Caregivers: A Double-Blind Cluster-Randomized Controlled Trial

“Being Free Like a Bird”―The Meaning of Being an Informal Caregiver for Persons with Dementia Who Are Receiving Day Care Services

Los Cuidadores Informales de Personas Mayores Dependientes: una Revisión de las Intervenciones Psicológicas de los Últimos Diez Años

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