Interpretative Phenomenological Analysis of Community Exercise Experiences after Severe Traumatic Brain Injury

Quilico, Enrico; Harvey, W. J.; Caron, Jeffrey G.; Bloom, Gordon A.

doi:10.1080/2159676x.2020.1778064

Cited by 13 publications

(8 citation statements)

References 50 publications

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“…The latter example may therefore present a barrier to participating in community-based activities for health benefits after TBI if the upward comparison is associated with unwanted feelings. The social comparisons in our study, consistent with the concept of upward comparisons, are in line with similar findings about community-based PA after severe TBI ( 13 ), which indicates a reoccurring PA barrier.…”

Section: Discussionsupporting

confidence: 91%

“…Focus groups took place in a private studio at the YMCA and were divided in two sections to accommodate the number of people and provide the opportunity to discuss individual and shared experiences (6 total). They were led by the PI, who had previous experience interviewing adults with moderate-to-severe TBI ( 13 ), and a senior member of the team (SW). Focus groups were first divided by mentors and participants to obtain insights about their similar/different experiences.…”

Section: Methodsmentioning

confidence: 99%

“…In a similar participatory context, a team of researchers, community stakeholders, and persons with moderate-to-severe TBI (including program participants and peer mentors) collaborated for the purpose of optimizing a 9-month, 3-phased, community-based PA program named TBI-Health. The grass-roots initiative was first established in response to a need for PA support in the community after moderate-to-severe TBI ( 13 ) and was piloted from 2017 to 2019 to promote exercise and sport participation for its users. An initial exploration of the program revealed its potential, based on perceptions of the program's accessibility, benefits, and positive outcomes ( 14 ).…”

Section: Introductionmentioning

confidence: 99%

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Participatory co-creation of an adapted physical activity program for adults with moderate-to-severe traumatic brain injury

Quilico

Wilkinson

Duncan

et al. 2022

Front. Rehabilit. Sci.

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BackgroundResearch about using physical activity (PA) to improve health, quality of life, and participation after moderate-to-severe traumatic brain injury (TBI) is receiving growing attention. However, best-practices for maintaining PA participation after TBI have yet to be defined. In this context, a team of researchers and stakeholders with a moderate-to-severe TBI (including program participants and peer mentors) participated in a co-creation process to optimize a 9-month, 3-phased, community-based, adapted PA program named TBI-Health.PurposeThe study aimed to provide a detailed account of the participation in and co-creation of a new TBI-Health Program to enhance sport and exercise participation for adults with moderate-to-severe TBI. Specifically, we carried out an in-depth exploration of the perceived experiences and outcomes of users over one cycle of the program to assist the co-creation process.MethodsAn interpretive case study approach was used to explore the experiences and outcomes of the participatory co-creation within and across phases of the TBI-Health program. A purposeful sample of fourteen adults with moderate-to-severe TBI (program participants n = 10; peer mentors n = 4) were involved in audio-recorded focus groups after each program phase. Reflexive thematic analyses within and across the phases identified three higher-order themes.ResultsProgram Participation included barriers, facilitators, sources of motivation and suggested modifications to optimize the program; Biopsychosocial Changes highlighted perceived physical, psychological, and social outcomes, by self and others, that resulted from program participation; PA Autonomy emphasized transitions in knowledge, sex- and gender-related beliefs, and abilities related to exercise and sport participation.ConclusionsStudy findings suggest the TBI-Health program can increase autonomy for and reduce barriers to PA for adults with moderate-to-severe TBI, which results in increased PA participation and important physical, psychological, and social benefits. More research is needed about the TBI-Health program with larger samples.

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Section: Discussionsupporting

confidence: 91%

Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Participatory co-creation of an adapted physical activity program for adults with moderate-to-severe traumatic brain injury

Quilico

Wilkinson

Duncan

et al. 2022

Front. Rehabilit. Sci.

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“…According to estimates of the World Health Organization, 75 million people in the world were using a wheelchair in 2018 (WHO 2018). Wheelchairs are needed for mobility in many different kinds of disabilities, among which are amputation and spinal cord injury (Archambault et al 2012;Karmarkar et al 2009;Singh et al 2020;van den Akker et al 2020), paralysis (Aarai et al 2011AlAbboudi et al 2020;Fadhil et al 2019;Kuntal et al 2020;Ruzaij et al 2017), cerebral palsy (Alkhateeb et al 2019;Rodby-Bousquet and Hägglund 2010;Rozas Llontop et al 2020), multiple sclerosis (Devitt et al 2004;Revathi et al 2008;Silveira et al 2020), muscular dystrophy (Bayley et al 2020;Richardson and Frank 2009;Xi et al 2019), traumatic brain injury (Quilico et al 2020;Spaeth et al 2008).…”

Section: Introductionmentioning

confidence: 99%

A simulator for both manual and powered wheelchairs in immersive virtual reality CAVE

et al. 2021

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A large number of people in the world need to use a wheelchair because of different disabilities. Driving a wheelchair requires complex physical and cognitive abilities which need to be trained. Virtual training helps users acquire driving skills in a safe environment. The aim of this paper is to describe and technically validate simulation models for both manual (MW) and powered wheelchairs (PW) based on immersive virtual reality CAVE (VR). As VR system, the Gait Real-time Analysis Interactive Lab (GRAIL) was used, a CAVE equipped with a motion platform with two degrees of freedom and an optoelectronic motion capture system. A real wheelchair was positioned onto the motion platform with rear wheels free to turn in MW modality, and a commercial joystick was installed on an armrest to simulate the PW modality. Passive markers were used to track the wheel rotation, the joystick and the user hand motion. Custom D-flow applications were developed to manage virtual scene response to user actions. Overground tests, based on single wheel rotation, were performed to verify the simulation model reliability. Quantitative results demonstrated that the MW simulator kinematics was consistent with a real wheelchair overground in the absence of wheel slip and inertia (median error for MW 0.40 °, no systematic bias p = 0.943, high correlation rho > 0.999, p < 0.01). The proposed solution is flexible and adaptable to different wheelchairs, joysticks and optoelectronic systems. The main limitation is the absence of force feedback. Nevertheless, it is a reliable prototype that can be used to validate new virtual scenarios as well as for wheelchair training. The next steps include the system validation with real end users and assessment of the simulator effectiveness as a training tool.

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“…Thus, it is plausible that other modalities of PA intervention (ie, walking, Qigong, circuit training) that do not specifically target cardiorespiratory fitness may have contributed to the enhancement of other health-related outcomes, but they were not included. Since then, more recent PA studies for adults with moderate to severe TBI have reported promising health improvements with weight management [ 13 ], mood, social participation, and recovery after TBI [ 14 , 15 ], as well as independent exercise performed in community fitness centers with minimal guidance [ 16 ].…”

Section: Introductionmentioning

confidence: 99%

Community-Based Physical Activity Interventions for Individuals with Moderate to Severe Traumatic Brain Injury: Scoping Review Protocol

Quilico¹,

Swaine²,

Alarie³

et al. 2021

JMIR Res Protoc

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Background Long-term physical, cognitive, and psychosocial problems resulting from moderate to severe traumatic brain injury (TBI) can prevent individuals from returning to preinjury lifestyles because of significant challenges with employment, leisure, and relationships. While physical activity (PA) is proposed as a cost-effective method to alleviate problems after moderate to severe TBI, there is no review to date that synthesizes the evidence for PA in the community-based context. Further, although sex- and gender-based considerations in research are considered requisite to good science, there is no review on PA and TBI that has included this explicit focus. Objective The purpose of this review is to map and synthesize the current evidence identified through a systematic search of community-based PA interventions for individuals of all ages with moderate to severe TBI and provide an overview of that evidence by asking the following research questions: (1) what are the characteristics of community-based PA programs for individuals with moderate to severe TBI, (2) what are the reported health-related outcomes and measurement tools used to evaluate them, and (3) what considerations have been given to sex and/or gender? Methods Searches will be conducted of six academic databases for peer-reviewed articles. Two reviewers will independently screen the articles for inclusion and extract data for the analysis. The extracted data will be coded according to the Consensus on Exercise Reporting Template checklist and the Template for Intervention Description and Replication checklist to provide sufficient detail for replication. Results The abstract screening was completed by two reviewers and the extracted data were analyzed. A qualitative synthesis and description of community-based PA interventions for individuals with moderate to severe TBI will be provided. Conclusions This scoping review will generate new knowledge from published and publicly available literature. Dissemination of the results will include activities related to knowledge transfer for community-based PA after moderate to severe TBI for future research and practice. Evidence-based recommendations, future directions, potential limitations, use of online/digital components, and the possible need for a systematic review will be discussed as well. International Registered Report Identifier (IRRID) DERR1-10.2196/24689

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Interpretative Phenomenological Analysis of Community Exercise Experiences after Severe Traumatic Brain Injury

Cited by 13 publications

References 50 publications

Participatory co-creation of an adapted physical activity program for adults with moderate-to-severe traumatic brain injury

Participatory co-creation of an adapted physical activity program for adults with moderate-to-severe traumatic brain injury

A simulator for both manual and powered wheelchairs in immersive virtual reality CAVE

Community-Based Physical Activity Interventions for Individuals with Moderate to Severe Traumatic Brain Injury: Scoping Review Protocol

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