Measurement properties of the UK-English version of the Pediatric Quality of Life Inventory™ 4.0 (PedsQL™) generic core scales

Upton, Penney; Eiser, Christine; Cheung, Ivy; Hutchings, Hayley; Jenney, Meriel; Maddocks, Alison; Russell, Ian; Williams, John

doi:10.1186/1477-7525-3-22

Cited by 200 publications

(91 citation statements)

References 21 publications

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“…These results emphasise the need for addressing the issue of diagnosis and presence of late effects in QoL studies in childhood cancer survivors. Our results are consistent with other studies of reduced QoL among children surviving brain tumours (Upton et al, 2005;Cardarelli et al, 2006;Varni et al, 2007;Penn et al, 2009;Yoo et al, 2010), as well as among studies and reviews of late effects and QoL of childhood cancer (Pemberger et al, 2005;Calaminus et al, 2007;Eiser et al, 2007;Ishida et al, 2010a, b).…”

Section: Child and Parent Proxy Reportssupporting

confidence: 93%

Quality of life in children and adolescents surviving cancer

Eilertsen¹,

Jozefiak

Rannestad³

et al. 2012

European Journal of Oncology Nursing

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Section: Child and Parent Proxy Reportssupporting

confidence: 93%

Quality of life in children and adolescents surviving cancer

Eilertsen¹,

Jozefiak

Rannestad³

et al. 2012

European Journal of Oncology Nursing

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“…The presence of a relation between the dimensions of Peds 4.0 and the sociodemographic and clinical parameters is an important finding as such instruments could be used in therapeutic evaluations (Upton et al, 2005;Ware, 1997;Dean et al, 2010). Our results are in contrast with other results that have failed to observe gender differences (Varni et al, 2007;Varni et al, 2003) or found fewer negative associations (Reinfjell et al, 2006;Villalonga-Olives et al, 2010).…”

Section: Discussioncontrasting

confidence: 56%

“…This was also observed for Lebanese people aged 14 year and more using the SF-36 Health survey (Sabbah et al, 2003), which could be due to factors such as stress, morbidity of the parents (Duhamel, 2007), war status, lack of health coverage (Sabbah et al, 2007), lack of public green spaces (Costa, Vescina, & Barcellos Pinheiro, 2010), and comorbidities (Sabbah et al, 2003;Varni et al, 2003;Upton et al, 2005). Additionally, the physical functioning of children is low.…”

Section: Cancer Childmentioning

confidence: 98%

“…For our purpose, the PedsQL4.0 generic module represented a particularly attractive generic measure as it has been widely used in children and adolescent integrating generic core scales and disease-specific modules into one measurement system it is translated into many international languages (Berkes et al, 2010;Reinfjellet al, 2006;Sato et al, 2010) (http://www.pedsql.org) (Upton et al, 2005;Gkoltsiou et al, 2008;Bek, Simsek, Erel, Yakut, & Uygur, 2009). To the authors' knowledge, the Arabic version has not previously been assessed for validity and reliability in Lebanon.…”

Section: Introductionmentioning

confidence: 99%

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Measurement Properties of the Arabic Lebanon Version of the Pediatric Quality of Life Inventory 4.0 Generic Core Scales for Young Child (5 - 7 years), and Child Aged 8 - 12 Years: Quality of Life of in Urban and Rural Children in Lebanon

Sabbah¹,

Sabbah²,

Sabbah³

et al. 2012

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Background:Health-related quality of life (HRQOL) is recognized as an important health outcome measurement for pediatric patients. HRQOL in children is needed to gain a better understanding of the impact of public policies, interventions, therapies, and the prediction of health and social care need. In view of the lack of reliable HRQOL instruments for children in Arabic, the present study aims to translate the PedsQL TM 4.0 self-report and proxy-report for young child (aged 5 -7 years), and child (aged 8 -12 years), evaluate psychometric properties of the Arabic Lebanon version; and to evaluate HRQOL of children in rural and urban areas in Lebanon. Methods: PedsQL TM 4.0 was translated and adapted into Arabic using the standard approach provided by Varni J. W. The Arabic version was administered to a representative sample of 368 children aged 5 -12 years and their parents. The psychometric properties were then evaluated. Results: The rate of missing data for self-report and proxy-report was very low (0.51% and 0.46% of items). All child self-report, and parent proxy-report subscales exceeded the minimum reliability standard of 0.70 for alpha coefficient, except emotional subscale of young child self-report and proxy-report, and, the social subscale of child self-report (alphas ranging from 0.60 to 0.66). Factor analysis yielded patterns of factor correlation comparable to the original version. The emotional functioning of children is low, where most children feel afraid, sad, and angry. Children resident in rural areas had higher social scores than those in urban areas. The HRQOL of girls is higher than boys; Children undergoing treatment for cancer rated their HRQOL as poorer in all dimensions. Conclusions: The results support the validity of the PedsQL TM 4.0 self-report and proxy-report Arabic version. Habitat has a minor influence on HRQOL of children. Further psychometric evaluation in a larger sample of children, in other departments of Lebanon is recommended to provide firmer conclusions.

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“…The reliability of the UK version of the PedsQL was also assessed in a sample of 1399 children and 970 parents from south Wales, and was shown to have similar internal reliability with all subscales on both the child and parent reports, reaching α = 0.70 (minimum standard) and exceeded α = 0.90 for the total score. 47 They recommend the UK version of the PedsQL for assessment of quality of life in UK children.…”

Section: Physical and Mental Healthmentioning

confidence: 99%

Randomised controlled trial evaluating the effectiveness and cost-effectiveness of ‘Families for Health’, a family-based childhood obesity treatment intervention delivered in a community setting for ages 6 to 11 years

Robertson

Fleming

Kamal

et al. 2017

Health Technol Assess

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BackgroundEffective programmes to help children manage their weight are required. ‘Families for Health’ focuses on a parenting approach, designed to help parents develop their parenting skills to support lifestyle change within the family. Families for Health version 1 showed sustained reductions in mean body mass index (BMI) z-score after 2 years in a pilot project.ObjectiveThe aim was to evaluate its effectiveness and cost-effectiveness in a randomised controlled trial (RCT).DesignThe trial was a multicentre, investigator-blind RCT, with a parallel economic and process evaluation, with follow-up at 3 and 12 months. Randomisation was by family unit, using a 1 : 1 allocation by telephone registration, stratified by three sites, with a target of 120 families.SettingThree sites in the West Midlands, England, UK.ParticipantsChildren aged 6–11 years who were overweight (≥ 91st centile BMI) or obese (≥ 98th centile BMI), and their parents/carers. Recruitment was via referral or self-referral.InterventionsFamilies for Health version 2 is a 10-week, family-based community programme with parallel groups for parents and children, addressing parenting, lifestyle, social and emotional development. Usual care was the treatment for childhood obesity provided within each locality.Main outcome measuresJoint primary outcome measures were change in children’s BMI z-score and incremental cost per quality-adjusted life-year (QALY) gained at 12 months’ follow-up (QALYs were calculated using the European Quality of Life-5 Dimensions Youth version). Secondary outcome measures included changes in children’s waist circumference, percentage body fat, physical activity, fruit/vegetable consumption and quality of life. Parents’ BMI and mental well-being, family eating/activity, parent–child relationships and parenting style were also assessed. The process evaluation documented recruitment, reach, dose delivered, dose received and fidelity, using mixed methods.ResultsThe study recruited 115 families (128 children; 63 boys and 65 girls), with 56 families randomised to the Families for Health arm and 59 to the ‘usual-care’ control arm. There was 80% retention of families at 3 months (Families for Health, 46 families; usual care, 46 families) and 72% retention at 12 months (Families for Health, 44 families; usual care, 39 families). The change in BMI z-score at 12 months was not significantly different in the Families for Health arm and the usual-care arm [0.114, 95% confidence interval (CI) –0.001 to 0.229;p = 0.053]. However, within-group analysis showed that the BMI z-score was significantly reduced in the usual-care arm (–0.118, 95% CI –0.203 to –0.034;p = 0.007), but not in the Families for Health arm (–0.005, 95% CI –0.085 to 0.078;p = 0.907). There was only one significant difference between groups for secondary outcomes. The economic evaluation, taking a NHS and Personal Social Services perspective, showed that mean costs 12 months post randomisation were significantly higher for Families for Health than for usual care (£998 vs. £548;p < 0.001). The mean incremental cost-effectiveness of Families for Health was estimated at £552,175 per QALY gained. The probability that the Families for Health programme is cost-effective did not exceed 40% across a range of thresholds. The process evaluation demonstrated that the programme was implemented, as planned, to the intended population and any adjustments did not deviate widely from the handbook. Many families waited more than 3 months to receive the intervention. Facilitators’, parents’ and children’s experiences of Families for Health were largely positive and there were no adverse events. Further analysis could explore why some children show a clinically significant benefit while others have a worse outcome.ConclusionsFamilies for Health was neither effective nor cost-effective for the management of obesity in children aged 6–11 years, in comparison with usual care. Further exploration of the wide range of responses in BMI z-score in children following the Families for Health and usual-care interventions is warranted, focusing on children who had a clinically significant benefit and those who showed a worse outcome with treatment. Further research could focus on the role of parents in the prevention of obesity, rather than treatment.Trial registrationCurrent Controlled Trials ISRCTN45032201.FundingThis project was funded by the National Institute for Health Research (NIHR) Health Technology Assessment programme and will be published in full inHealth Technology Assessment; Vol. 21, No. 1. See the NIHR Journals Library website for further project information.

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Measurement properties of the UK-English version of the Pediatric Quality of Life Inventory™ 4.0 (PedsQL™) generic core scales

Cited by 200 publications

References 21 publications

Quality of life in children and adolescents surviving cancer

Quality of life in children and adolescents surviving cancer

Measurement Properties of the Arabic Lebanon Version of the Pediatric Quality of Life Inventory 4.0 Generic Core Scales for Young Child (5 - 7 years), and Child Aged 8 - 12 Years: Quality of Life of in Urban and Rural Children in Lebanon

Randomised controlled trial evaluating the effectiveness and cost-effectiveness of ‘Families for Health’, a family-based childhood obesity treatment intervention delivered in a community setting for ages 6 to 11 years

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