Models of parent partnership and child development centres

Appleton, Peter; Minchom, Philip

doi:10.1111/j.1365-2214.1991.tb00676.x

Cited by 44 publications

(33 citation statements)

References 9 publications

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“…Skilled professionals will no longer become concerned solely with their own disciplinary boundaries, but with their capabilities as empathetic human beings and their disciplinary skill base in order to enhance the lives of the families that they support. They will need to use an empowerment approach (Appleton & Minchcom, 1991) that recognises the family as a system, with its own social network and the right to a choice of services and levels of engagement. Negotiation (Dale, 1996) will be a key feature of their practice and, where there are differences between professionals and families, there will be joint decision-making based upon shared perspectives.…”

Section: Towards a Transdisciplinary Approachmentioning

confidence: 99%

Sustaining the Family: Meeting the Needs of Families of Children with Disabilities

Carpenter¹

2000

British J Special Edu

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A dramatic rise in the survival rates of children born with disabilities (particularly those born prematurely) has been reported in the last decade. The nature of their disabilities is, at times, significantly different from that previously reported, posing problems for the families attempting to nurture the development of these children. Barry Carpenter, Chief Executive of Sunfield, considers the needs of the self‐defining family, the implications for interdisciplinary practice, and the changing pattern of early childhood disability. He asks a fundamental question: ‘How can professionals sustain the family of a child with disabilities?'

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Section: Towards a Transdisciplinary Approachmentioning

confidence: 99%

Sustaining the Family: Meeting the Needs of Families of Children with Disabilities

Carpenter¹

2000

British J Special Edu

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“…(Parent) 12 Parent control and the professional-patient relationship Professionals' attitudes to services for disabled children are gradually moving from one dominated by the ''expert'' paternalistic professional to an ''empowerment'' model. [14][15][16] Paternalism is an attitude of mind in which the professional feels that they know what is best for the parents and so does not treat them as responsible adults and equal partners. The manner in which professionals communicate with parents can carry hidden messages, leaving the parent feeling they are not competent to take part in decision making and need to leave that to others: 17 ''Billy's hospital consultant doesn't call me Mrs A, but 'mum'.''…”

Section: Disability Stress and Copingmentioning

confidence: 99%

"Contact A Family": professionals and parents in partnership

Davies¹,

Hall

2005

Archives of Disease in Childhood

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This paper considers the evidence base on the role of parent organisations in meeting the needs of parents of disabled children for information and support. Having a disabled child is a major cause of stress and has an impact on the health and wellbeing of the entire family. Current concepts of stress and coping are used to consider coping strategies, including the search for information, the desire to stay in control, and the quest for social support. How and when information and support are provided will impact on how well the family adjust and cope.

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“…However, a careful study of health visitors’ case loads showed no consistent pattern to the delivery of preventative programmes designed to ameliorate the effects of disadvantage 11. In addition, difficulties of parent partnerships with professionals can be a blurring of theory and practice,12 13 degenerating into a quagmire of paternalism,14 tokenism,15 and feminism 16. Consequently, alternative approaches have involved other mothers or non-professionals as advocates 17…”

Section: Discussionmentioning

confidence: 99%

A controlled trial of parent initiated and conventional preschool health surveillance using personal child health records

Dearlove

Illingworth²

1999

Archives of Disease in Childhood

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Objectives-A comparison of parent initiated preschool surveillance, using personal child health records, with the then current system of child health surveillance using child health records. Design-Prospective, controlled trial with randomisation of five general practices into two groups. Setting-Five general practices, a well baby clinic, and an orthoptic clinic at Yeovil District Hospital. Subjects-538 babies born between 1 April 1992 and 1 November 1994, from within the five general practices. Main outcome measures-The number of screenable abnormalities in the two groups that were missed in the first 3 years of a baby's life. Results-163 babies from the parent initiated preschool surveillance group and 107 from the conventional group completed the study. Although all the mothers from the parent initiated preschool surveillance group understood the concept of parent initiated surveillance, 117 stated their health visitor had made their appointments. Only 45 mothers made their own appointments. The abnormality rates were: 12 of 163 and eight of 107 at 1 year and nine of 163 and six of 107 at 3 years. No medically important conditions were missed. Most mothers did not want to make their own appointments because it was inconvenient. The system was unpopular with health visitors. Conclusion-Parent initiated preschool surveillance is as safe as the current system. Implementing the idea involved a small change in work practice and a large change conceptually for some of the primary health care team. It was not adopted in east Somerset. (Arch Dis Child 1999;80:507-510)

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Models of parent partnership and child development centres

Abstract: Four models (and an emergent fifth model) of parent partnership are described and their relevance to UK child development centres is explored. Clinical, management and service development issues are drawn out.

Cited by 44 publications

References 9 publications

Sustaining the Family: Meeting the Needs of Families of Children with Disabilities

Sustaining the Family: Meeting the Needs of Families of Children with Disabilities

"Contact A Family": professionals and parents in partnership

A controlled trial of parent initiated and conventional preschool health surveillance using personal child health records

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