More recognised than known: The social visibility and attachment of people with developmental disabilities

Todd, Stuart; Evans, Gerry; Beyer, Stephen Richard

doi:10.1080/07263869000034021

Cited by 16 publications

(15 citation statements)

References 15 publications

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“…The present study, like other research (Bigby, 1997b(Bigby, , 2000, demonstrates the partial replacement of parental roles by siblings and more distant relatives, suggesting that initiatives to build and nurture relationships are particularly important for older people whose social networks are vulnerable to shrinkage as family members age and relationships with other service users are threatened. Like many other people with intellectual disability, this group of older people lived in a ''distinct social space'' (Todd, Evans, & Beyer, 1990) comprised of family, paid staff, and others with intellectual disability. Largely absent were relationships with unpaid people without disabilities.…”

Section: Discussionmentioning

confidence: 99%

“I Want to See the Queen”: Experiences of Service Use by Ageing People with an Intellectual Disability

Bigby

Knox

2009

Australian Social Work

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Section: Discussionmentioning

confidence: 99%

“I Want to See the Queen”: Experiences of Service Use by Ageing People with an Intellectual Disability

Bigby

Knox

2009

Australian Social Work

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“…While such an objective is apparent across a range of service agencies, there exists a substantial research literature which points to a similar conclusion. While the exclusion of people with intellectual disability has relaxed to permit greater social presence, it continues to have an obdurate feature in that there is little evidence of more intimate relationships with community members ( Evans & Murcott 1990; Todd et al 1990 ). As Myers et al (1998 , p. 393) pointed out: ‘despite being physically present in local communities, people with learning disabilities often remain, socially, outside looking in.’ The present paper seeks to look in detail at this issue through an examination of the impact of stigma, and the role which care staff play in managing the social presence and participation of people with intellectual disability in public places.…”

Section: Introductionmentioning

confidence: 99%

Working in the public and private domains: staff management of community activities for and the identities of people with intellectual disability

Todd

2000

J intellect Disabil Res

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In addition to describing how the concept of stigma continues to be a pervasive influence in encounters between people with intellectual disability and others, the present study suggests that the management of this situation has passed into the control of care staff. An ethnographic study of young adults and community relationships suggests that the activities of staff are crucial in shaping the social profile of people with intellectual disability. The views of care staff about the taken-for-granted rights which characterize presence and participation in the community domain encourage them to adopt a semi-insulation approach to their work. Staff extend this approach by adopting information control strategies to conceal important information from students. The present author argues that there is a need for on-going research into staff activity in the community domain.

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“…A general lack of friendship with persons other than professionals and family members has been found to characterize the lives of individuals with intellectual disability, whether they live in community-based settings or at home with their families. 4,[27][28][29][30] Research further suggests that when individuals with intellectual disability do establish social relationships with typical members of the community, they often experience a difficult time maintaining those relationships. 24,31 Person-specific variables (such as level of functioning, number of disabling conditions) were not found to significantly predict such difficulties in either establishing or maintaining social life in the community.…”

Section: Introductionmentioning

confidence: 99%

Do persons with intellectual disability have a social life?The Israeli reality

Duvdevany¹

2008

Salud pública Méx

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Living in the community does not, in and of itself, guarantee social integration and inclusion for persons with intellectual disability. Social life and leisure participation can indicate the beginning of such a process and its impact on the quality of life. The present study investigated the social life quality of persons with intellectual disability who live in community settings or with foster families and its impact on their quality of life. The sample consisted of 85 adults with intellectual disability, ranging in age from 18 to 55 years. Forty-five of them lived in community residential settings and 40 lived with foster families in Israel. Five questionnaires were used: 1) a demographic questionnaire; 2) Quality of Life Questionnaire; 1 3) the Revised UCLA Loneliness Scale; 2 4) Social Relationships List; 3 and 5) Leisure Activities List. 3 The main findings showed no significant differences between the two groups in social life or feelings of loneliness. Foster residents were more involved and more independent in their leisure activities than were those who lived in community residences. An association between social life and quality of life was partly confirmed. The need for intervention programs and leisure education programs is discussed. ResumenEl hecho de vivir en una comunidad no garantiza, por sí mismo, ni la integración ni la inclusión de los discapacitados intelectuales. Las amistades y la participación en actividades recreativas pueden ser indicadores de que tal proceso comienza a darse y de su impacto en la calidad de vida. El presente trabajo investigó la calidad de vida social de personas con discapacidad intelectual que viven en residencias comunitarias y con familias adoptivas y su impacto en cuanto a calidad de vida. La muestra consistió de 85 adultos con discapacidad intelectual de edad entre 18 y 55 años. Cuarenta y cinco de ellos viven en áreas comunitarias residenciales y 40 con familias adoptivas en Israel. Se utilizaron cinco cuestionarios: 1) un cuestionario demográfico; 2) el Cuestionario de Calidad de Vida; 1 3) la Escala de Soledad Revisada de la UCLA; 2 4) el Catálogo de Relaciones Sociales; 3 y 5) el Catálogo de Actividades Recreativas.3 En general no se encontraron diferencias significativas entre los dos grupos en lo referente al número de amistades o en cuanto a los sentimientos de soledad. Los residentes con familias adoptivas tendieron a involucrarse más y a ser más independientes en sus actividades recreativas que los que vivían en residencias comunitarias. Se confirmó en parte una relación entre vida social y calidad de vida. Se discute la necesidad de programas de intervención y educación de la recreación.

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More recognised than known: The social visibility and attachment of people with developmental disabilities

Cited by 16 publications

References 15 publications

“I Want to See the Queen”: Experiences of Service Use by Ageing People with an Intellectual Disability

“I Want to See the Queen”: Experiences of Service Use by Ageing People with an Intellectual Disability

Working in the public and private domains: staff management of community activities for and the identities of people with intellectual disability

Do persons with intellectual disability have a social life?The Israeli reality

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