Participatory Research for Health and Social Well-Being

Abma, Tineke; Banks, Sarah; Cook, Tina; Días, Sónia; Madsen, Wendy; Springett, Jane; Wright, Michael

doi:10.1007/978-3-319-93191-3

Cited by 198 publications

(218 citation statements)

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“…A follow-up study using participatory action research is required to experiment with these findings and to learn more of its applicability. This research design might create possibilities for a joint learning process together with different participants and stakeholders, in which a new habitus can be developed and where there is an eye for tensions, different expectations and power in relationships (see Abma et al, 2019;Groot et al, 2018).…”

Section: Discussionmentioning

confidence: 99%

Family Group Conferences in coercive psychiatry: understanding relational dynamics by plugging in Bourdieu

Meijer

Schout

Abma

2019

European Journal of Social Work

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Alternatives for coercive treatment in psychiatry, based on partnership between clients, social networks and social workers, need to be given full attention. Despite its potential to inhibit isolation, self-exclusion and reduce coercion, organising Family Group Conferences (FGC) in this field is complex. The process of a FGC may evoke shame and unbelief in the willingness of people to help out. Furthermore a lack of reciprocity in relationships can contribute to the stagnation of the FGC process. The goal of this article is to understand relational dynamics between clients, relatives and friends in the carrying out of a FGC, by applying theoretical concepts on symbolic capital, recognition, reciprocity and gift giving derived from Bourdieu. Using the analytical strategy of 'thinking with theory', we selected three FGCs suitable for illuminating both challenges and opportunities, viewing each FGC as a social field. Bourdieu's theoretical concepts help to understand and overcome difficulties in organising a FGC so participants can discuss, decide and negotiate relational dynamics in the field. Working with FGCs requires for social workers a shift in doing and thinking, facilitating the primary group to discuss expectations, diffusion of tasks, commitments and plans. SAMENVATTING Alternatieven voor gedwongen behandeling in de psychiatrie, gebaseerd op partnerschap tussen cliënten, sociale netwerken en professionals, verdienen aandacht. Ondanks de potentie van Eigen Kracht-conferenties (EK-c's) om uitsluiting, zelfuitsluiting en dwang te verminderen, is het organiseren van EK-c's in het veld van de psychiatrie complex. Het proces van een EK-c kan schaamte oproepen, evenals ongeloof dat er personen zijn die steun willen geven. Ook een gebrek aan wederkerigheid in relaties kan bijdragen aan het stagneren van het EK-c proces. Het doel van dit artikel is om de relationele dynamiek tussen cliënten, vrienden en familie tijdens het EK-c proces, te begrijpen door theoretische concepten van Bourdieu over symbolisch kapitaal, erkenning, wederkerigheid en 'gift-giving', toe te passen. Met behulp van de analytische strategie 'thinking with theory' hebben we drie cases geselecteerd die uitdagingen en kansen laten zien, waarbij we iedere EK-c zien als een sociaal veld. De theoretische concepten van Bourdieu blijken behulpzaam in het begrijpen en

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Section: Discussionmentioning

confidence: 99%

Family Group Conferences in coercive psychiatry: understanding relational dynamics by plugging in Bourdieu

Meijer

Schout

Abma

2019

European Journal of Social Work

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“…The KLIK project: KLIK (an acronym of the Dutch phrase that may be translated Children Learn Inventive Strength) is a Participatory Health Research (PHR) project aiming to improve the health and well-being of children living in an underprivileged neighbourhood (Abma et al 2019). It does not impose life-styles on children, but engages them in a process of inquiring their lives, what they think is healthy or not, and how their health and well-being can be improved from their perspective.…”

Section: Methodsmentioning

confidence: 99%

“…We followed a PHR approach (Abma et al 2019;Gibbs et al, 2018). Our main goal was to gather narratives of the children to inform the development of health promotion plans, and eventually promote social change.…”

Section: Designmentioning

confidence: 99%

‘Are we famous or something?’ Participatory Health Research with children using photovoice

Abma

Schrijver

2019

Educational Action Research

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Photovoice is a child-friendly method used in Participatory Health Research (PHR) to put children in a subject position to drive the research and social change. Little is known about the actual experiences of doing photovoice related to health issues in a primary school context regulated by adults. The purpose of this article is to explore how children's voices can be genuinely taken into account in research and social change, and what the potentials and tensions are when using photovoice in schools. We present a case example of a PHR with primary school children using photovoice, and will focus on the lessons learned. Participating children were eager to tell their photostories, proud of their achievements, and felt 'seen' by adults, expressed in the phrase 'Are we famous or something?' Playful activities and concrete instructions helped children to create their own narrative. For the development of the children's critical consciousness reflexive participatory actions and photo-elicitation were crucial. Their visuals prompted discussion and led to actions and plans taking into account their perspectives. Tensions included the struggle to find a right balance between guidance and control, protection and respect for autonomy and preset system requirements. Reflexivity and creativity are required to handle such tensions. ARTICLE HISTORY

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“…This is especially so where people experience social marginalization, and might need longer to become involved in any form of research. A consequence of the lack of time is that academic researchers engaged in participatory research often use their own time to develop research (Abma et al, 2019). Despite such a personal commitment to building research possibilities, those of us who work in academic institutions have found that our research remains marginalized, as participatory research challenges predominant frameworks about what constitutes 'quality' in research (Cook, 2012).…”

Section: The Impact Of Institutional Requirements On Participatory Rementioning

confidence: 99%

“…Participatory research is a process whereby people with lived experiences of the topic of study are co-creators of knowledge (Abma et al, 2019;Cook et al, 2017;Lenette, 2017;Nunn, 2017). It involves people with direct experiences of, or interest in, the topic of study in all or some aspects of the research process, including research design, data collection, analysing findings, and reporting and dissemination.…”

Section: Introductionmentioning

confidence: 99%

Brushed under the carpet: Examining the complexities of participatory research

Lenette¹,

Stavropoulou²,

Nunn³

et al. 2019

Research for All

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Participatory research is sometimes difficult and risky, but there is a paucity of opportunities – and some reluctance – to reflect on its challenging aspects. In this article, we present subjective accounts of our everyday experiences of conducting participatory research as women researchers. We focus on four themes from our combined research experiences to explore some of the frustrations we encounter in participatory research. We argue that it is crucial to identify, reflect upon and address such aspects in academic outputs to broaden debates and scholarly discussions. We offer these reflections, and related strategies, as a contribution to critical debates on participatory research practice.

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Participatory Research for Health and Social Well-Being

Cited by 198 publications

References 0 publications

Family Group Conferences in coercive psychiatry: understanding relational dynamics by plugging in Bourdieu

Family Group Conferences in coercive psychiatry: understanding relational dynamics by plugging in Bourdieu

‘Are we famous or something?’ Participatory Health Research with children using photovoice

Brushed under the carpet: Examining the complexities of participatory research

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