Pediatric Palliative Care: A Conceptual Analysis for Pediatric Nursing Practice

Stayer, Debbie

doi:10.1016/j.pedn.2011.04.031

Cited by 31 publications

(41 citation statements)

References 24 publications

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“…When the child's finite moment arrives, the team that was previously committed to achieving healing faces the terminality and pain of the family. 12 This fact requires the emotional preparation of the professionals in order to face this moment of existence, however, many participants say that it does not always happen this way:…”

Section: This Is Not a Very Easy Thing To Face; I Cannot Explain The mentioning

confidence: 99%

From Diagnosis to Terminal Illness: the Multiprofessional Team Endeavior in Pediatric Oncology / Do Diagnóstico a Terminalidade: Enfrentamento da Equipe Multiprofissional na Oncologia Pediátrica

Scaratti

Oliveira

Rós³

et al. 2019

R. pesq. cuid. fundam. online

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Objective:The study's purpose has been to identify the perceptions and feelings that permeate the multiprofessional team assistance in childhood cancer. Methods: This is a both prospective and descriptive study with a qualitative approach, which was carried out with 32 professionals working in pediatric oncology at a referral hospital in the North region of the Rio Grande do Sul State. Results: The research reveals the role of pediatric oncology showing the bonds between professionals, patients and families, in which the multiprofessional team end up being involved in the network of interpersonal relationships. The multiprofessional team deals with daily expectations, fears and anguish in the face of uncertainty of both healing and death with regards to the child, then directly affecting the worker's psychic health. Conclusion: The study conveys the fragility of the training institutions in enabling the professional to properly perform in this challenging field. RESUMO Objetivo: Identificar as percepções e sentimentos que permeiam a assistência da equipe multiprofissional no câncer infantil. Métodos: Trata-se de uma pesquisa qualitativa, prospectiva e descritiva, realizada com 32 profissionais atuantes na oncologia pediátrica de um hospital referência no norte do estado do Rio Grande do Sul. Resultados: A pesquisa revela a atuação na oncologia pediátrica cercada de vínculos entre profissionais, pacientes e famílias, na qual a equipe multiprofissional acaba envolvida na rede de relações interpessoais, defrontando-se diariamente com expectativas, medos e angústias frente à incerteza de cura e a morte na criança, afetando diretamente a saúde psíquica do trabalhador. Conclusão: O estudo expressa a fragilidade das instituições formadoras e empregadoras em capacitar o profissional para atuar nesta área desafiadora. Descritores: Oncologia, Profissionais de Saúde, Sofrimento Psíquico. RESUMEN Objetivo: Identificar las percepciones y sentimientos que permean la asistencia del equipo multiprofesional en el cáncer infantil. Métodos: Se trata de una investigación cualitativa, prospectiva y descriptiva, realizada con 32 profesionales actuantes en la oncología pediátrica de un hospital referencia en el norte del estado de Rio Grande do Sul. Resultados: La investigación revela la actuación en la oncología pediátrica rodeada de vínculos entre profesionales, pacientes y familias, en la cual el equipo multiprofesional termina involucrado en la red de relaciones interpersonales, enfrentándose diariamente con expectativas, miedos y angustias frente a la incertidumbre de curación y la muerte en la vida El niño, afectando directamente la salud psíquica del trabajador. Conclusión: El estudio expresa la fragilidad de las instituciones formadoras y empleadoras en capacitar al profesional para actuar en esta área desafiante.

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Section: This Is Not a Very Easy Thing To Face; I Cannot Explain The mentioning

confidence: 99%

From Diagnosis to Terminal Illness: the Multiprofessional Team Endeavior in Pediatric Oncology / Do Diagnóstico a Terminalidade: Enfrentamento da Equipe Multiprofissional na Oncologia Pediátrica

Scaratti

Oliveira

Rós³

et al. 2019

R. pesq. cuid. fundam. online

View full text Add to dashboard Cite

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“…9 The initiation of PPC at diagnosis is vital to individual care and comprehensive alleviation of suffering in the child with cancer. 29 In a survey of 303 pediatricians, a majority indicated that children and families needed supportive counseling and pain and symptom management at diagnosis. 12 However, this same survey showed that most pediatricians were more likely to make later versus earlier referrals to PPC.…”

Section: Diagnosis and Prognosismentioning

confidence: 99%

“…27 The child should be given an overview of his or her condition with burdens and benefits of available treatment to understand the child's preferences and desires. 29 It is important to remember that, within this setting, families often need multiple meetings and conversations to fully understand their child's situation and feel able to make decisions regarding treatment and care. 22 Meetings should include the child (patient), as deemed appropriate.…”

Section: Communicationmentioning

confidence: 99%

Contributions of Palliative Care to Pediatric Patient Care

Mandac¹,

Battista²

2014

Seminars in Oncology Nursing

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“…Thus, the death of a child in palliative care often occurs in the hospital environment, and the team that was previously fully dedicated to curing the illness, must now face the end of life and the family's pain. This event demands both technical and scientifi c knowledge and considerable emotional preparation to assist families facing this fi nal moment (1,4) . The education of health care professionals is predominantly based on a biologic approach to patient care (5) , in which the body is seen as a machine and is considered the only object of intervention.…”

Section: Introductionmentioning

confidence: 99%

“…Consequently, the aim of this paper is to understand the perceptions, expertise and practices of multidisciplinary teams that provide palliative care for children at a paediatric oncology unit. A framework that reveals a compassionate and genuine view of children and the families that experience this process was used to support this objective (1,4,6) .…”

Section: Introductionmentioning

confidence: 99%