Perceptions and Feelings of Fathers of Children With Down Syndrome

Takataya, Kumiko; Yamazaki, Yoko; Mizuno, Eriko

doi:10.1016/j.apnu.2016.04.006

Cited by 23 publications

(44 citation statements)

References 11 publications

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Section: Resultsmentioning

confidence: 99%

“…Fathers anticipated the birth of a typically developing child and found themselves unprepared for the diagnosis of their child's ID (Marsh et al, ; Takataya et al, ). Once the child's diagnosis was confirmed, fathers' experienced diverse emotions from shock and disappointment to grief and loss and denial and blame (Carpenter & Towers, ; Marsh et al, ; Takataya et al, ). Irrespective of how and when the diagnosis of ID was received, fathers had a variety of reactions to the child's disability with emotional responses initially being negative, but changing and becoming more positive overtime (Boström & Broberg, ; Marsh et al, ; Takataya et al, ).…”

Section: Resultsmentioning

confidence: 99%

“…Findings across studies also identified other factors that impacted on fathers' emotional well‐being such as the risk of death of the child at birth due to serious health complications associated with a diagnosis of Down Syndrome (Takataya et al, ) and the timing of the diagnosis of the child's disability which when delayed compounded feelings of blame and guilt (Boström & Broberg, ; Marsh et al, ).…”

Section: Resultsmentioning

confidence: 99%

“…Other risk factors identified as adversely affecting fathers' mental health as follows: the additional care associated with parenting a child with ID; the child's behaviors; poor sleep patterns; less time available to relax, unwind, and for self; balancing family life and work life; and worries about the future (Cohen et al, ; Dąbrowska, ; Giallo et al, ; MacDonald et al, ). Additionally, negative attitudes, perceptions and assumptions by healthcare professionals, family members and the public, regarding the roles and responsibilities of being a father of a child with an ID, also contributed to fathers' poor mental health experiences (Huang et al, ; Takataya et al, ). Some fathers reported that the child's behaviors rather than the child's disability per se negatively affected their mental health.…”

Section: Resultsmentioning

confidence: 99%

“…A number of data collection methods were used in the studies including surveys, questionnaires, and interviews. A total of five studies were qualitative (Boström & Broberg, ; Carpenter & Towers, ; Huang et al, ; ; Marsh et al, ) and nine studies were quantitative (Al‐Yagon, ; ; Cohen et al, ; Dąbrowska, ; Giallo et al, ; Huang et al, ; MacDonald et al, ; MacDonald & Hastings, ; Takataya et al, ).…”

Section: Methodsmentioning

confidence: 99%

See 4 more Smart Citations

The Views and Experiences of Fathers of Children with Intellectual Disabilities: A Systematic Review of the International Evidence

Marsh

Brown

McCann

2020

Policy Practice Intel Disabi

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As a result of societal changes and expectations, mothers have returned to paid employment, with fathers now more involved in the daily lives of their children with and without disabilities. Globally, fathers are providing more care for their children with intellectual disabilities (ID), a role traditionally expected of mothers. The research interest in the role of fathers in the lives of their child with ID is growing, yet much of the wider evidence has focused on the views and experiences of mothers as care givers. The aim of this systematic review was to identify the views and experiences of fathers parenting children with ID. A total of 14 studies were included in the review. Four themes were identified including emotional impact, mental health and coping, systems of support, and hopes and fears. There is a need for further research on the needs of fathers and how they can be supported to play a fuller role in the lives of their child with ID. Implications for policy, practice, and future research are also discussed.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

See 3 more Smart Citations

The Views and Experiences of Fathers of Children with Intellectual Disabilities: A Systematic Review of the International Evidence

Marsh

Brown

McCann

2020

Policy Practice Intel Disabi

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Courtesy stigma of parents of children with Down syndrome: Adaptation process and transcendent stage

Watanabe

Kibe

Sugawara

et al. 2021

Journal of Genetic Counseling

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Courtesy stigma, which arises from close connections to people with stigmatized characteristics, negatively affects interpersonal relations. This study aimed to evaluate courtesy stigma and the adaptation process of parents of children with Down syndrome based on semi-structured interviews with 23 Japanese parents. The interview themes were (a) negatively perceived interpersonal experiences and coping strategies; (b) information disclosure and others' responses; and (c) positively perceived interpersonal experiences. The interview data were transcribed and analyzed based on a grounded theory approach. The results suggested that parents perceived and experienced multidimensional courtesy stigma, and they used various coping strategies categorized in combinations of passive-active and internal-external. All parents disclosed information about their child's diagnosis to others, and reverse disclosure (i.e., revealing own relations with people with disabilities) was characteristically observed thereafter. Through active interaction and reflection, the parents cultivated social relationships, compassion, world views, and community involvement, which led to the transcendent stage. However, internal conflict as a mediator between people with and without Down syndrome re-emerged even after achieving the transcendent stage. These findings could help to develop interventions in genetic counseling for parents to deal with interpersonal relationship difficulties.

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Parenting a child with Down syndrome: A qualitative study of everyday practices in Danish families

Steffensen

Rosvig

Santoro

et al. 2021

Journal of Genetic Counseling

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Down syndrome is a commonly encountered condition within genetic counseling. In contrast to other, rarer genetic causes of intellectual disability, public narratives about Down syndrome exist (Thomas, 2021). In addition, the syndrome stands out as one of few genetic conditions for which prenatal screening has been widely adopted in recent decades (Boyd et al., 2008).Guidelines for communicating a diagnosis of Down syndrome recommend the genetic counseling to include the potential future family life (Sheets, Crissman, et al., 2011). Studies suggest that both parents and genetic counselors believe that information about the

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Perceptions and Feelings of Fathers of Children With Down Syndrome

Cited by 23 publications

References 11 publications

The Views and Experiences of Fathers of Children with Intellectual Disabilities: A Systematic Review of the International Evidence

The Views and Experiences of Fathers of Children with Intellectual Disabilities: A Systematic Review of the International Evidence

Courtesy stigma of parents of children with Down syndrome: Adaptation process and transcendent stage

Parenting a child with Down syndrome: A qualitative study of everyday practices in Danish families

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