Psychological and emotional needs, assessment, and support post-stroke: a multi-perspective qualitative study

Harrison, Madeleine; Ryan, Tony; Gardiner, Clare; Jones, Amanda

doi:10.1080/10749357.2016.1196908

Cited by 81 publications

(84 citation statements)

References 21 publications

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“…The friendly attitude of the research staff was highly valued and made patients look forward to their treatment session. These ndings agree with results from a qualitative study (27) that reported that to be treated with respect and dignity was the core factor contributing to elderly stroke patients' satisfaction with rehabilitation therapy. Subcategories as being treated with humanity, having con dence and trust in professionals, and dialogue and exchange of information were other determinants of satisfaction (27).…”

Section: Bene Ts and Concerns Related To Rtms Treatmentsupporting

confidence: 90%

“…These ndings agree with results from a qualitative study (27) that reported that to be treated with respect and dignity was the core factor contributing to elderly stroke patients' satisfaction with rehabilitation therapy. Subcategories as being treated with humanity, having con dence and trust in professionals, and dialogue and exchange of information were other determinants of satisfaction (27). In our study, the clarity of information and the step-bystep explanation of the different actions ensured that patients knew what to expect, and made them feel safe.…”

Section: Bene Ts and Concerns Related To Rtms Treatmentsupporting

confidence: 90%

“…In our study, the clarity of information and the step-bystep explanation of the different actions ensured that patients knew what to expect, and made them feel safe. The desire for information has previously been recognized as a key coping strategy and as a resource for psychosocial adjustment and empowerment (27,28).…”

Section: Bene Ts and Concerns Related To Rtms Treatmentmentioning

confidence: 99%

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Exploring the experiences of stroke patients treated with transcranial magnetic stimulation for upper limb recovery: a qualitative study

Lieshout

Jacobs

Pelsma³

et al. 2020

Preprint

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Background: Transcranial magnetic stimulation (TMS) treatments have shown promise in improving arm recovery in stroke patients. Currently, little is known about patients’ experiences with TMS treatment, and this lack of knowledge may affect optimal implementation in clinical practice. The aim of this explorative study was to gain insight in the perceived effects and experiences of the design and delivery of a TMS treatment for upper limb recovery from the perspectives of stroke patients. Methods: This qualitative study was conducted as part of a randomized controlled trial (RCT) in a specialized rehabilitation center. Data were collected through face-to-face semi-structured interviews with 13 stroke patients who completed a 10-day TMS intervention for upper limb recovery. The interviews were recorded, transcribed verbatim and analyzed using thematic analysis. Results: The major themes that emerged from the patients’ feedback were the following: positive experiences of the treatment (experienced physical effects, comfort, therapeutic relationship, receiving information, learning about the brain, no burden of added rTMS treatment session, no unpleasant aspects), concerns (effects of stimulation of the brain, equipment, logistics), general experience of recovery, experienced psychological effects (grateful, sense of purpose, recovery as extra motivation to exercise, disappointment and hope of group allocation), and motivation to participate (personal benefit and cognitions, altruism). Important components related to the positive experience of the design and delivery of the treatment included comfort (i.e. moment of relaxation) and the sensation of a painless treatment without side-effects. Key concerns included uncertainty and anxiety about possible negative consequences and group allocation. Conclusions: This study demonstrates that TMS is well accepted by stroke patients with an upper limb paresis. Besides the expectation of a therapeutic benefit, the patients reported various psychological effects. Positive experiences, such as the provision of a short moment of relaxation each day, could have practical implications for clinical stroke rehabilitation settings aimed at improving patient satisfaction. Explanation about and feedback from routine motor recovery progression monitoring at fixed times post-stroke is also valued by patients. Negative emotions may be limited or avoided by transparent and recurrent information delivery in future trials. Trial registration: NL5952 Registered November 28, 2016.

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Section: Bene Ts and Concerns Related To Rtms Treatmentsupporting

confidence: 90%

Section: Bene Ts and Concerns Related To Rtms Treatmentsupporting

confidence: 90%

Section: Bene Ts and Concerns Related To Rtms Treatmentmentioning

confidence: 99%

See 1 more Smart Citation

Exploring the experiences of stroke patients treated with transcranial magnetic stimulation for upper limb recovery: a qualitative study

Lieshout

Jacobs

Pelsma³

et al. 2020

Preprint

View full text Add to dashboard Cite

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“…ST patients felt a greater positive effect and that training was useful, while SCI patients tended to doubt the effectiveness of the training and felt less improvement. Post-ST rehabilitation patients often experience several different psychoemotional problems; however, observable functional recovery results promote motivation and self-confidence [17]. Motivation and active participation in the postacute SCI period is sometimes difficult to achieve as it is influenced by negative emotions, comparisons, recovery expectations and slow progress [18].…”

Section: Resultsmentioning

confidence: 99%

“…HR, systolic blood pressure (sBP) and diastolic blood pressure (dBP)] were measured at rest and before and after training [15,16]. The subject's emotional state and subjective opinions were measured by direct interview [17,18]. Outcome measures were assessed before (baseline) and after treatment and are presented as pre-and postoutcomes in the results.…”

Section: Clinical Assessmentmentioning

confidence: 99%

Necessity of early-stage verticalization in patients with brain and spinal cord injuries: Preliminary study

Daunoravičienė

Adomavičienė

Svirskis

et al. 2018

THC

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In early rehabilitation, Erigo training was safe and effective at improving orthostatic tolerance, posture and positive emotional reactions in both the ST and SCI patients (P< 0.05). In addition, advanced technologies were more effective at boosting the orthostatic tolerance in SCI patients, while they were more effective at increasing the dynamic balance and walking ability in ST patients (P< 0.05).

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Experiences of health management among people at high risk of stroke in China: A qualitative study

Guo

Booth

et al. 2022

Nursing Open

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Background Effective health management of people at high risk of stroke in China is challenging. Aim To explore and identify the experiences of health management among people at high risk of stroke in order to provide a foundation for a targeted health management strategy for this special group. Design A qualitative, descriptive study based on interviews. Methods Semistructured interviews were conducted with 31 people at high risk of stroke. The interviews were collated and analysed using Colaizzi’s seven‐step method. Results A total of 31 people at high risk of stroke were included, and the ages ranged from 40 to 86, with an average age of 60.71 (SD = 11.55). The experiences of health management were categorized into three themes. Theme 1: Facing many ongoing problems in health management, limited knowledge, lack of confidence and poor compliance. Theme 2: Accumulated some value experiences of coping with problems of health management, becoming active learners, promoting social interaction and enhancing self‐health management. Theme 3: Sensitivity to multiple influencing factors, the severity of disease and complexity of disease management, family income and economic burden and the value of social support. Conclusions This study explored the experiences of health management among people at high risk of stroke, and these findings are of great significance in the primary prevention of stroke.

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Psychological and emotional needs, assessment, and support post-stroke: a multi-perspective qualitative study

Abstract: Background: International stroke care guidelines recommend the routine assessment and

Cited by 81 publications

References 21 publications

Exploring the experiences of stroke patients treated with transcranial magnetic stimulation for upper limb recovery: a qualitative study

Exploring the experiences of stroke patients treated with transcranial magnetic stimulation for upper limb recovery: a qualitative study

Necessity of early-stage verticalization in patients with brain and spinal cord injuries: Preliminary study

Experiences of health management among people at high risk of stroke in China: A qualitative study

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