Quality of life in long-term cervical cancer survivors

Wenzel, Lari; DeAlba, Israel; Habbal, Rana; Kluhsman, Brenda C.; Fairclough, Diane L.; Krebs, Linda U.; Anton‐Culver, Hoda; Berkowitz, Ross S.; Aziz, Noreen M.

doi:10.1016/j.ygyno.2005.01.010

Cited by 212 publications

(170 citation statements)

References 22 publications

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“…However, similar observations have been made with shorter-term breast [25,26] and genital tract [12,27] cancer survivors where, in spite of highly prevalent problems with sexual functioning, positive attitudes, partnership and behavior are maintained. Understanding how and why some very long-term survivors maintain sexual partnerships and positive attitudes toward sexuality even with severely compromised sexual function may help physicians and survivors better understand the role of sexual and intimate relationships in coping with cancer and maximizing survival and quality of life.…”

Section: Discussionsupporting

confidence: 57%

“…Half of survivors, versus 15% of the age-and race-matched national sample, reported three or more concurrent sexual problems, and the odds of complex sexual morbidity were almost 5 times greater. Furthermore, compared to studies of shorter-term genital tract cancer survivors [9,12,24], this cohort of very long-term survivors exhibited similar or higher rates of sexual problems, yet had a relatively high rate of marriage, sexual partnership and activity.…”

Section: Discussionmentioning

confidence: 79%

“…Gynecologic and breast cancers and their treatments directly affect the sexual organs and may disrupt the physical and psychological phases of the female sexual response cycle [7,8]. Several studies of shorter-term survivors describe health [9][10][11][12], quality of life [10][11][12] and sexuality [9,10,12] after diagnosis of gynecological cancer. However, little is known about how sexuality and sexual function relate to the health and wellbeing of very long-term survivors of gynecologic cancers.…”

Section: Introductionmentioning

confidence: 99%

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Sexual morbidity in very long term survivors of vaginal and cervical cancer: A comparison to national norms

Lindau¹,

Gavrilova²,

Anderson³

2007

Gynecologic Oncology

166

107

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Objectives-To compare sexuality among very long-term survivors of vaginal and cervical cancer to national norms and assess quality of care for sexual problems.Methods-A survey of survivors in a cancer registry (n=221) provided data comparable to the 1992 National Health and Social Life Survey (NHSLS). The NHSLS sample was individually matched on age and race to survivors at a 2:1 ratio. Responses were compared using conditional logistic regression and 2-sample t-tests. Correlates of sexual problems among survivors were analyzed using multivariate logistic regression.

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Section: Discussionsupporting

confidence: 57%

Section: Discussionmentioning

confidence: 79%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Sexual morbidity in very long term survivors of vaginal and cervical cancer: A comparison to national norms

Lindau¹,

Gavrilova²,

Anderson³

2007

Gynecologic Oncology

166

107

View full text Add to dashboard Cite

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“…Infertility or concerns about (in)fertility due to cancer treatment have a negative influence on quality of life (Partridge et al, 2004;Wenzel, DeAlba, et al, 2005). Therefore, interest in possibilities for fertility preservation (FP) has increased.…”

Section: Introductionmentioning

confidence: 99%

Feasibility and effects of a decision aid about fertility preservation

et al. 2016

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This paper reports on the feasibility and preliminary effects of a decision aid (DA) about female fertility preservation (FP). We conducted a pilot multicentre randomized controlled trial of women with breast cancer aged 18-40 who were randomized to brochures or the DA. Over 18 months, 62 women were eligible, of which 42 were invited by their healthcare provider (74%) to participate in the study. A total of 36 women signed up for participation and 26 (72%) were randomized to brochures (n ¼ 13) or the DA (n ¼ 13). In both groups, many women (87%) read the brochures and eight women used all available brochures. In the intervention group, 7/13 women logged in to the DA. Women who received brochures had slightly less decisional conflict, whereas knowledge improved in both groups. Our results indicate that both brochures about FP and a detailed DA have beneficial effects with regard to knowledge, but the DA seemed to introduce slightly more decisional conflict (DC) than the brochures. Although we encountered challenges with recruitment, our design and measurements seem feasible and the effects of the information materials seem promising, hence justifying conducting a larger study. ARTICLE HISTORY

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“…Se señala que un gran porcentaje de las mujeres quiere recibir consejería al momento del diagnóstico y apoyo a lo largo del tratamiento (6,7,8), hecho demostrado por la insatisfacción con la educación recibida (7,8,9). Las usuarias valoran ser vistas por el mismo profesional, ser referidas a centros de especialidad y citadas a controles sólo en casos necesarios (3,5); señalan que los profesionales no les explican lo que ellas necesitan (10), aludiendo una falta de sensibilidad, de continuidad en el cuidado, barreras en el lenguaje y largos tiempos de espera (8).…”

Section: Introductionunclassified

Construcción Y Validación De Un Instrumento Para Medir Calidad De Atención Del Programa Auge Cáncer Cervicouterino

2010

Rev. chil. obstet. ginecol.

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RESUMENAntecedentes: La evaluación de la calidad de atención, integrando la opinión de los usuarios, es uno de los parámetros a considerar al momento de evaluar los servicios en salud. No existen instrumentos validados a nivel nacional que permitan evaluar la calidad de la atención en patologías del programa AUGE. Objetivos: Crear y validar un instrumento para medir calidad de atención en el programa AUGE cáncer cérvicouterino. Método: El análisis fue realizado en un grupo de 364 mujeres pertenecientes al programa. Para la validación del instrumento se utilizó análisis factorial exploratorio, y la confiabilidad fue medida por alpha de Cronbach. Resultados: El instrumento final denominado INCA-AUGE presenta 19 ítems distribuidos en 5 dominios: funcionamiento del programa AUGE, relación usuaria-profesional, infraestructura, recurso humano, educación sobre la patología AUGE, y recursos materiales. Conclusión: El instrumento INCA-AUGE pretende ser una herramienta útil en su aplicación, asegurando una medición válida de los parámetros para recoger objetivamente la evaluación de las usuarias del programa. PALABRAS CLAVE: Cáncer cérvicouterino, calidad de atención, programa AUGE SUMMARYBackground: Quality of care evaluation, considering the opinion of the users, is one of the parameters to consider at the time of evaluating the services in health. Objectives: Because the absence of validated and reliable national questionnaires, this article describes the development and testing of a new questionnaire to measure quality of care in cervical cancer AUGE program. Method: The analysis was done in a group of 364 women. Exploratory factor analysis was used to validate the questionnaire and Cronbach alpha to measure reliability. Results: The final instrument named INCA-AUGE has 19 items with 5 domains: operation of AUGE program, relationship healthcare worker-patient, infrastructure and human resource, education on AUGE disease, and material resources. Conclusion: INCA-AUGE questionnaire will be a useful tool, assuring a validated and reliable measurement on the patients of AUGE program.

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Quality of life in long-term cervical cancer survivors

Cited by 212 publications

References 22 publications

Sexual morbidity in very long term survivors of vaginal and cervical cancer: A comparison to national norms

Sexual morbidity in very long term survivors of vaginal and cervical cancer: A comparison to national norms

Feasibility and effects of a decision aid about fertility preservation

Construcción Y Validación De Un Instrumento Para Medir Calidad De Atención Del Programa Auge Cáncer Cervicouterino

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