Quality of life, symptoms and pulmonary function in asthma: long-term treatment with nedocromil sodium examined in a controlled multicentre trial. Nedocromil Sodium Quality of Life Study Group

Pw, Jones

doi:10.1183/09031936.94.07010055

Cited by 114 publications

(72 citation statements)

References 22 publications

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“…This is a useful contribution, which supports previous work with translated questionnaires, some of which has previously been published in this Journal [7]. Their conclusions also support findings obtained using a different approach to this problem, first applied in two multinational studies using the St George's Respiratory Questionnaire (SGRQ) in asthma [8] and COPD [9]. In both studies, a simple five-point scale of general health was given to the patients along with the SGRQ and other instruments.…”

supporting

confidence: 78%

“…It was known from studies in the UK, that scores obtained with this scale correlated well with the SGRQ. Using this property, we were able to show that the relationship between SGRQ score and general health was not affected by country or language [8,9]. In a useful test of this methodology, we also observed that the relationship between global health and mood state (anxiety and depression) was significantly different between countries [8].…”

mentioning

confidence: 59%

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Testing health status (“quality of life”) questionnaires for asthma and COPD

Pw¹

1998

Eur Respir J

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Two papers in this issue of the Journal address the problem of testing versions of health status (or "quality of life") questionnaires after translation from their original English [1,2]. Tests of the validity of health questionnaires fall into four main areas: internal consistency; discriminative properties, i.e. the ability to distinguish different levels of disease between patients; evaluative properties, i.e. the ability to detect clinically meaningful changes in health; and predictive validity, i.e. the ability to predict future changes in health or healthcare needs. It is clear from this list that the process of validation is long and complex. Indeed, it is never-ending. Each new study in which a health questionnaire is used contributes to the body of knowledge concerning its performance, and thereby to its validity.A further term used in this general context is "reliability". This is a measure of the likelihood that an instrument will give the same reading when used to measure the same thing in a different setting. This is usually tested in terms of repeatability, which is dependent on the assumption that the patients' health will not have changed between assessments. The usual approach is to recruit stable patients and make the assessments within 1-2 weeks. Some workers confine their measurements to those patients who report no overall change in their symptoms or health, as assessed by a global measure of change. At first sight this seems reasonable, but it presupposes that the patients' recall is accurate and that their estimates of change are reliable. Other tests of reliability are less frequently reported, but a recent study has examined broader aspects of the reliability of a disease-specific questionnaire, and found that it behaved similarly in a face-to-face interview compared with subsequent computer-assisted telephone interviews [3].Tests of internal consistency are usually made at the time of questionnaire development, and most questionnaire developers use methods that either directly or indirectly examine issues of internal consistency. Such tests were developed to address the problem that arose when attempts were made to develop questionnaires designed to test abstract concepts, such as anxiety or depression, for which there were no adequate reference instruments at the time, apart from clinical judgement. More recently, greater attention has been paid to tests of discriminant and evaluative properties than to internal consistency. Most widely used questionnaires have quite good internal consistency, as again reported in the two papers in this issue of the Journal [1, 2]. There have been occasional reports of low consistency [4], but such occurrences appear to be rare.The simplest way to test the discriminative properties of a new questionnaire is to compare it with another established health status instrument in the same population of patients. Unfortunately, this does not prove that the new questionnaire is measuring health, merely that the two questionnaires appear to be addressing similar...

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supporting

confidence: 78%

mentioning

confidence: 59%

Testing health status (“quality of life”) questionnaires for asthma and COPD

Pw¹

1998

Eur Respir J

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“…Scores can range 0-100, with higher scores indicating poorer health status. The SGRQ appears to have good reliability and validity in COPD and asthma patients [54][55][56]. Moreover, this final questionnaire was considered a good respiratory-specific measure useful in ILD patients, including 10 sarcoidosis patients [49].…”

Section: Quality Of Life and Health Status Measures Used In Sarcoidosismentioning

confidence: 99%

Fatigue, quality of life and health status in sarcoidosis

Vries

2005

Sarcoidosis

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“…118 However, in a multinational study, it was found that nationality significantly influenced HADS scores. 125 The use of this scale in different countries could be influenced by the different perception and expression of emotions by the patients from different cultural backgrounds. 118 …”

Section: Depression In Non-pd Patientsmentioning

confidence: 99%

Depression rating scales in Parkinson's disease: Critique and recommendations

Schrag¹,

Barone²,

Brown³

et al. 2007

Movement Disorders

592

348

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Depression is a common comorbid condition in Parkinson's disease (PD) and a major contributor to poor quality of life and disability. However, depression can be difficult to assess in patients with PD due to overlapping symptoms and difficulties in the assessment of depression in cognitively impaired patients. As several rating scales have been used to assess depression in PD (dPD), the Movement Disorder Society commissioned a task force to assess their clinimetric properties and make clinical recommendations regarding their use. A systematic literature review was conducted to explore the use of depression scales in PD and determine which scales should be selected for this review. The scales reviewed were the Beck Depression Inventory (BDI), Hamilton Depression Scale (Ham-D), Hospital Anxiety and Depression Scale (HADS), Zung Self-Rating Depression Scale (SDS), Geriatric Depression Scale (GDS), Montgomery-Asberg Depression Rating Scale (MADRS), Unified Parkinson's Disease Rating Scale (UPDRS) Part I, Cornell Scale for the Assessment of Depression in Dementia (CSDD), and the Center for Epidemiologic Studies Depression Scale (CES-D). Seven clinical researchers with clinical and research experience in the assessment of dPD were assigned to review the scales using a structured format. The most appropriate scale is dependent on the clinical or research goal. However, observer-rated scales are preferred if the study or clinical situation permits. For screening purposes, the HAM-D, BDI, HADS, MADRS, and GDS are valid in dPD. The CES-D and CSDD are alternative instruments that need validation in dPD. For measurement of severity of depressive symptoms, the Ham-D, MADRS, BDI, and SDS scales are recommended. Further studies are needed to validate the CSDD, which could be particularly useful for the assessment of severity of dPD in patients with comorbid dementia. To account for overlapping motor and nonmotor symptoms of depression, adjusted instrument cutoff scores may be needed for dPD, and scales to assess severity of motor symptoms (e.g., UPDRS) should also be included to help adjust for confounding factors. The HADS and the GDS include limited motor symptom assessment and may, therefore, be most useful in rating depression severity across a range of PD severity; however, these scales appear insensitive in severe depression. The complex and time-consuming task of developing a new scale to measure depression specifically for patients with PD is currently not warranted.

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Quality of life, symptoms and pulmonary function in asthma: long-term treatment with nedocromil sodium examined in a controlled multicentre trial. Nedocromil Sodium Quality of Life Study Group

Cited by 114 publications

References 22 publications

Testing health status (“quality of life”) questionnaires for asthma and COPD

Testing health status (“quality of life”) questionnaires for asthma and COPD

Fatigue, quality of life and health status in sarcoidosis

Depression rating scales in Parkinson's disease: Critique and recommendations

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