Reported outcomes of lower limb orthopaedic surgery in children and adolescents with cerebral palsy: a mapping review

Abstract

Aim Lower limb surgery is often performed in ambulatory children with cerebral palsy (CP) to improve walking ability. This mapping review reports on outcome measures used in the published literature to assess surgical results, determine range and frequency of use, and map each measure to the International Classification of Functioning, Disability and Health. Method A mapped review of literature published between 1990 and 2011 was carried out to identify papers reporting the outcomes of lower limb orthopaedic surgery in ambulatory children with CP, aged 0 to 20 years. Results A total of 229 published papers met the inclusion criteria. Thirty‐two outcome measures with known psychometric properties were reported in the 229 papers. Twenty measures assess impairments in body structure and function and were used in 91% of studies. Ten measures assess restrictions in activity and participation and were used in 9% of papers. Two measures assessed quality of life. Since 1997, 29% of papers have used the Gross Motor Function Classification System to describe participants. Interpretation The body of literature evaluating outcomes of lower limb orthopaedic surgery in CP is small but increasing. There is a need to develop a suite of outcome measures that better reflect outcomes across the International Classification of Functioning, Disability and Health, including activity and participation.

Measuring change in gait performance of children with motor disorders: assessing the Functional Mobility Scale and the Gillette Functional Assessment Questionnaire walking scale

“…Although walking capacity has an impact on walking performance (i.e. how a child actually moves in their environment in daily life), environmental and personal factors seem to play an even more important role and are valuable to integrate in constructs measuring walking ability . Within this perspective, walking performance is defined as how children actually move around in their current environment in everyday life …”

“…how a child actually moves in their environment in daily life), environmental and personal factors seem to play an even more important role and are valuable to integrate in constructs measuring walking ability. 4 Within this perspective, walking performance is defined as how children actually move around in their current environment in everyday life. 3 The Functional Mobility Scale (FMS) and the Gillette Functional Assessment Questionnaire walking scale (FAQ) are examples of the few tools that assess walking ability on a performance level.…”

The role of neurogenic feet deformities in the lower limb dysfunction structure in patients with cerebral palsy. Management of surgical treatment. Literature data review

“…Wilson N.C. с соавт. отмечает, что прогрессирующие деформации тазобедренных и коленных суставов, а также суставов стоп у пациентов в возрасте от 6 до 20 лет в подавляющем большинстве случаев нуждаются в своевременной хирургической коррекции [5].…”

Interrater reliability of two gait performance measures in children with neuromotor disorders across two different settings

“…It classifies outcome into the four domains: ‘body structure and function’, ‘activity’, ‘participation’, and ‘environmental and personal factors’. Instruments with sound psychometric properties reflecting the activity and participation domain are increasingly available for use in children, but outcomes of gait training programmes or lower limb orthopaedic surgery in ambulatory children with cerebral palsy (CP) are predominantly evaluated on the body structure and function level …”

“…Instruments with sound psychometric properties reflecting the activity and participation domain are increasingly available for use in children, but outcomes of gait training programmes or lower limb orthopaedic surgery in ambulatory children with cerebral palsy (CP) are predominantly evaluated on the body structure and function level. 1,3 Although there appears to be a clear relationship between motor performance and motor capacity, motor performance is only partly reflected by the motor capacity level as children with a similar gross motor capacity level can differ in terms of gait performance across different settings. 4 Many environmental factors may influence motor performance either in a negative or positive way.…”