Reporting of Dementia on Death Certificates: A Community Study

Ganguli, Mph Mary; Rodríguez, Eric

doi:10.1111/j.1532-5415.1999.tb03842.x

Cited by 106 publications

(97 citation statements)

References 28 publications

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“…An under-reporting of dementia on death certificates (low sensitivity) has also been reported in other countries (17)(18)(19). The specificity of dementia on death certificates, on the other hand, seems to be good.…”

Section: Discussionmentioning

confidence: 80%

Dementia in the National Cause of Death Registry in Norway 1969-2010

Hjellvik¹,

Engedal²,

Handal³

et al. 2012

Nor J Epidemiol

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Background:The prevalence of dementia is expected to increase markedly during the coming decades. Epidemiological studies involving the National Cause of Death Registry (NCDR) may be useful for exploring the aetiology of dementia. We therefore wanted to study developments in the reporting of dementia in the NCDR over the last four decades. Methods: We calculated the age-and gender specific proportion of deaths with dementia reported in the NCDR (dementia deaths) in the period 1969-2010, and the proportion of vascular dementia and Alzheimer's disease deaths in 1986-2010. Separate analyses were done for deaths occurring in nursing homes in 1996-2010. The proportion of dementia deaths where dementia was coded as underlying cause of death was also calculated. Results: The proportion of dementia deaths increased more than threefold in the period 1969-2010 among women (from 4% to 15%), and more than doubled among men (from 3% to 7%). In nursing homes the proportion increased from 17% to 26% for women and from 13% to 18% for men. The proportion of dementia deaths with Alzheimer's disease reported in the NCDR increased from practically zero in 1986 to a maximum of 28% in 2005. The proportion of dementia deaths with dementia as underlying cause of death increased from a minimum of 6% in 1972 to a maximum of 51% in 2009. Conclusion: Although the reporting of dementia in the NCDR increased markedly from 1969 to 2010, dementia is still under-reported for old people and for deaths occurring in nursing homes when compared to prevalence estimates.

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Section: Discussionmentioning

confidence: 80%

Dementia in the National Cause of Death Registry in Norway 1969-2010

Hjellvik¹,

Engedal²,

Handal³

et al. 2012

Nor J Epidemiol

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“…Death in a palliative care unit is registered as a hospital death on Belgian death certificates, although this has a limited effect on this study, as there is evidence that it is mainly cancer patients who die in palliative care units [13]. However, there are known issues which may result in an underestimation of dementia as cause of death [14,15]; the overrepresentation of deaths from unspecified dementia may be related to the difficulty of registering a specific dementia-related disease as cause of death in the absence of a clinical diagnosis. Since certifying dementia as cause of death on death certificates is more likely for people dying in long-term care settings, hospital death of people dying with dementia and pneumonia may be underestimated in our study.…”

Section: Discussionmentioning

confidence: 99%

Dying in Hospital with Dementia and Pneumonia: A Nationwide Study Using Death Certificate Data

Houttekier

Reyniers²,

Deliens³

et al. 2013

Gerontology

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Background: For people with dementia dying from pneumonia, hospitalization at the end of life may be of little benefit and result in unfavourable outcomes such as hospital death. Objective: The aim of this study is to estimate the incidence of and factors associated with hospital death in people with dementia dying from pneumonia. Methods: We used death certificate data of all deaths in Belgium in 2008 (n = 101,685) to examine characteristics of deaths of people with dementia dying from pneumonia. Information about the urbanization level of the place of residence and the availability of hospital beds, residential (without continuous skilled nursing) and skilled nursing beds in long-term care settings was linked through the zip code of the place of residence. Results: Of people with dementia dying from pneumonia (n = 1,420), 47.2% died in hospital. Of those living in long-term care settings, 25.6% died in hospital. For people living in their own home, hospital death was more likely for those who were single (adjusted odds ratio (AOR) 2.83, 95% CI 1.30-6.16) and living in strongly urbanized areas (AOR 2.48, 95% CI 1.47-4.18). For those living in long-term care settings, hospital death was more likely in regions with higher availability of residential beds (without continuous skilled nursing) in long-term care settings (AOR per unit 1.02, 95% CI 1.01-1.03). Conclusion: Almost half of all those with dementia dying from pneumonia and a quarter of those living in long-term care settings died in a hospital. These results suggest shortcomings in the Belgian healthcare system in preventing potentially avoidable terminal hospitalizations in a vulnerable population.

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“…Various segments of the population have been studied to show the relationship between cognitive impairment and survival, using a number of cognitive function tests. It is now generally accepted that overt cognitive dysfunction leads to significantly shortened survival (1,5,6). It is well known that physical dysfunction in elderly people also is associated with an elevated mortality (3,4).…”

Section: Introductionmentioning

confidence: 99%

Cognitive Dysfunction and Physical Disability Are Associated with Mortality in Extremely Elderly Patients

et al. 2008

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A few reports have demonstrated that cognitive or physical dysfunction is associated with increased mortality in very elderly patients, those over 80 years of age. Using simple clinical tests, we evaluated the impact of cognitive or physical dysfunction on future total and cardiovascular deaths. We conducted a multicenter prospective study of 523 extremely elderly outpatients, aged ≥80 years (mean ± SD age: 84 ± 5.3 years). These patients had normal activities of daily living at baseline. They were followed for an average of 34 months (range: 3-70 months), after which the total and cardiovascular deaths were evaluated. Cognitive and

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Reporting of Dementia on Death Certificates: A Community Study

Cited by 106 publications

References 28 publications

Dementia in the National Cause of Death Registry in Norway 1969-2010

Dementia in the National Cause of Death Registry in Norway 1969-2010

Dying in Hospital with Dementia and Pneumonia: A Nationwide Study Using Death Certificate Data

Cognitive Dysfunction and Physical Disability Are Associated with Mortality in Extremely Elderly Patients

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