Resilience in family caregivers of persons with acquired brain injury.

Hayas, Carlota Las; Arroyabe, Elena López de; Calvete, Esther

doi:10.1037/rep0000040

Cited by 21 publications

(18 citation statements)

References 37 publications

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“…The average age at which the individual with ABI developed ABI was 37.2 years (SD = 14.3). According to the official evaluation by the Japanese government and a previous study, this is nearly identical to the profile of participants in the survey on the family caregivers of individuals with ABI [ 17 ]. Thus, the sample was deemed representative of the population of family caregivers of individuals with ABI.…”

Section: Discussionsupporting

confidence: 53%

“…First, a total of 75.5% of the family caregivers who participated in this survey, were female, while 81.1% of individuals with ABI were male. This does represent the traditional dynamics [ 17 ] but may contaminate assumptions about the meaning of the factors. However, this study design did not allow for a determination of causality between the LCAS response and the gender difference in family caregivers of individuals with ABI.…”

Section: Discussionmentioning

confidence: 99%

“…However, there is substantial diversity in the outcomes, even after ABI. The main focus of previous studies and measures for family caregivers concerning individuals with ABI has been to identify the negative outcomes of the onset of ABI [ 17 ]. However, the family caregivers of individuals with ABI can experience not only negative adaptations to life changes but also positive adaptations following the onset of ABI, and such positive life change adaptations are just one of the benefits these individuals can achieve.…”

Section: Introductionmentioning

confidence: 99%

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Development of the life change adaptation scale for family caregivers of individuals with acquired brain injury

Shindo

Tadaka

2020

PLoS ONE

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Aim Life changes due to the sudden onset of acquired brain injury (ABI) are drastic personal and social changes that require adaptation and are also an important indicator of the quality of life of family caregivers. However, there are no instruments for evaluating life change adaptation among family caregivers of individuals with acquired brain injury. This study aimed to develop the Life Change Adaptation Scale (LCAS) for family caregivers of individuals with ABI and examine its reliability and validity. Methods A cross-sectional study was conducted using a self-reported questionnaire. A total of 1622 family caregivers of individuals with ABI who belonged to 82 associations for families of individuals with ABI were selected as eligible participants. The construct validity was evaluated using a confirmatory factor analysis. Internal consistency was calculated using Cronbach’s alpha. The K6 was also administered to assess the criterion-related validity of the LCAS. Results In total, 339 valid responses were received. The confirmatory factor analysis identified eight items from two domains, “Changes in the appraisal of caregiving resources” and “Changes in the health belief as a caregiver” (goodness of fit index = 0.963, adjusted goodness of fit index = 0.926, comparative fit index = 0.986, root mean square error of approximation = 0.043.) Cronbach’s alpha was 0.84. The LCAS was negatively correlated with the K6 (r = -0.504; P<0.001). Conclusions The LCAS is a brief, easy-to-administer instrument that is reliable and valid for family caregivers of individuals with ABI. This study contributes to the assessment and identification by family caregivers of individuals with ABI who require aid in adapting to life changes. Further research should be undertaken to verify the predictive value in a longitudinal study and to attempt to apply the LCAS to assess a broader range of subjects in a wider range of settings.

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Section: Discussionsupporting

confidence: 53%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Development of the life change adaptation scale for family caregivers of individuals with acquired brain injury

Shindo

Tadaka

2020

PLoS ONE

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“…As a matter of fact, recovered patients (weight remission), still experience poor well-being 112 , 113 and low quality of life 113 , 114 despite significant treatment response 112 even after 2 years of therapy, compared with controls 115 , 116 . Particularly, fully recovered ED patients highlight factors such as social support and the development of new coping skills as essential to the process of (mental and physical) recovery 117 – 119 .…”

Section: Discussionmentioning

confidence: 99%

Cortisol reactivity in patients with anorexia nervosa after stress induction

et al. 2020

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There is a need of experimental studies on biomarkers in patients with anorexia nervosa (P AN), especially in the context of stress, in order to foster understanding in illness maintenance. To this end, the cortisol response to an acute stressor was investigated in n = 26 P AN (BMI: 19.3 ± 3.4 kg/m 2), age, and gender matched to n = 26 healthy controls (HC; BMI: 23.08 ± 3.3 kg/m 2). For this purpose, salivary cortisol parameters were assessed in two experimental conditions: (1) rest/ no intervention and (2) stress intervention (TSST; Trier Social Stress Test). In addition, psychological indicators of stress were assessed (Primary Appraisal Secondary Appraisal, Visual Analogue Scale, and Trier Inventory for the assessment of Chronic Stress), as well as psychological distress, depression, and eating disorder (ED) symptoms. A 2 × 2 × 8 ANOVA demonstrated elevated cortisol levels in P AN in the resting condition. In the stress intervention no significant group effect in terms of cortisol (F (1, 50) = 0.69; p = 0.410; η 2 p ¼ 0:014). A significant condition (F (1, 50) = 20.50; p = 0.000; η 2 p ¼ 0:291) and time effect (F(2.71, 135.44) = 11.27; p = 0.000; η 2 p ¼ 0:20) were revealed, as well as two significant interaction effects. First: Condition × group (F (1, 50) = 4.17, p = 0.046; η 2 p ¼ 0:077) and second: Condition × time (F (2.71, 135.44) = 16.07, p = 0.000, η 2 p ¼ 0:24:). In terms of AUC G , no significant differences between both groups were exhibited. Regardless, significant results were evinced in terms of an increase (AUC i : F(1, 50) = 20.66, p = 0.015, η 2 p ¼ 0:113), baseline to peak (+20 min post-TSST: t 5 = 16.51 (9.02), p = 0.029) and reactivity (M PAN = 0.73 vs. M HC = 4.25, p = 0.036). In addition, a significant correlation between AUC G and BMI: r (24) = −0.42, p = 0.027 was demonstrated, but not between AUC i and BMI (r (24) = −0.26, p = 0.20). Psychological indices suggested higher levels of chronic and perceived stress in P AN relative to HC. However, stress perception in the stress condition (VAS) was comparable. Additional analyses demonstrated that ED-symptoms are highly correlated with psychological distress and depression, but not with BMI. In addition, it could be demonstrated that reactivity is rather related to EDsymptoms and psychological burden than to BMI. In conclusion, P AN showed elevated basal cortisol levels at rest and exhibited a blunted cortisol reactivity to the TSST as evinced by salivary cortisol parameters. Further, it was shown that weight recovery influences reversibility of hypercortisolemia, i.e., cortisol levels normalize with weight gain. However, HPAA (hypothalamus-pituitary-adrenal axis) irregularities in terms of reactivity persist even at a BMI ≤ 19.3 (±3.4). Our data suggest that pronounced psychological burden in P AN , have a greater impact on the HPAA functionality (secondary to the ED) than BMI itself.

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“…Kajian kelentingan keluarga pada keluarga ASA memungkinkan untuk mengidentifikasikan kekuatan dan keberdayaan keluarga serta faktor pendukungnya. Hasil penelitian menunjukkan terdapat korelasi positif antara kelentingan pengasuh dengan perawatan positif yang dilakukan pengasuh terhadap individu yang dirawatnya (Hayas, Arroyabe, & Calvete, 2015). Selain itu, perspektif kelentingan keluarga memungkinkan peneliti dan praktisi untuk mempertimbangkan kekuatan dan kelemahan sebuah keluarga sebagai suatu sistem, mengingat penggunaan perspektif resiliensi keluarga juga mengindikasikan adanya perubahan paradigma dari sudut pandang yang berfokus pada pendekatan patogenik menjadi pendekatan salutogenik (Greeff & Wentworth, 2009).…”

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Peran Koherensi terhadap Kelentingan Keluarga yang Memiliki Anak dengan Spektrum Autistik (ASA)

Maulidia

Kinanthi

Fitria

et al. 2018

Jur. Ilm. Kel. & Kons.

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Keluarga dengan Anak Spektrum Autistik (ASA) mengalami sejumlah tantangan dalam kehidupan, baik secara fisik, psikologis maupun sosial. Keluarga yang dapat beradaptasi secara efektif akan dapat berfungsi dengan baik dan sejahtera. Bukan hanya sekedar "bertahan", bahkan dapat mengambil manfaat positif dari kesulitan yang dihadapi. Penelitian ini bertujuan untuk menganalisis peran koherensi keluarga terhadap resiliensi keluarga yang memiliki anak dengan spektrum autistik ditinjau dari perspektif ibu sebagai pengasuh utama. Selain itu, penelitian ini juga bertujuan untuk mengetahui perbedaan tingkat koherensi dan resiliensi keluarga ASA ditinjau dari jumlah anak, usia anak, usia responden (ibu), jumlah pengeluaran, suku, pendidikan terakhir, dan lama diagnosis ASA. Penelitian ini dilakukan dengan pendekatan kuantitatif dan desain asosiatif terhadap 148 ibu di wilayah Jabodetabek yang memiliki ASA. Data diperoleh melalui instrumen penelitian yang berbentuk kuesioner, yakni Walsh Family Resilience Questionairre dan The Family Sense of Coherence Scale. Kuesioner tersebut didistribusikan kepada responden penelitian, melalui mediator yayasan atau sekolah anak autistik yang menaungi para responden penelitian tersebut. Data yang telah didapatkan kemudian dianalisis dengan menggunakan analisis regresi sederhana. Hasil penelitian menunjukkan koherensi keluarga memiliki pengaruh yang positif dan berperan secara siginifkan terhadap resiliensi keluarga responden penelitian ini. Hasil penelitian ini mengindikasikan bahwa konsep koherensi keluarga dapat membantu memahami bagaimana suatu keluarga dapat menjadi resilien saat menghadapi situasi sulit. Kata kunci: koherensi keluarga, kelentingan keluarga, spektrum autistik, stres The Role of Family Sense of Coherence on Family Resilience of Families of Children with Autism Spectrum Disorder (ASD)

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Resilience in family caregivers of persons with acquired brain injury.

Cited by 21 publications

References 37 publications

Development of the life change adaptation scale for family caregivers of individuals with acquired brain injury

Development of the life change adaptation scale for family caregivers of individuals with acquired brain injury

Cortisol reactivity in patients with anorexia nervosa after stress induction

Peran Koherensi terhadap Kelentingan Keluarga yang Memiliki Anak dengan Spektrum Autistik (ASA)

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