Stressors and self-care challenges faced by adolescents living with type 1 diabetes

Davidson, Maryanne; Penney, Erika D.; Muller, Beth; Grey, Margaret

doi:10.1016/j.apnr.2004.02.006

Cited by 105 publications

(99 citation statements)

References 8 publications

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“…A dolescents with type 1 diabetes mellitus face a number of stressors and challenges as a result of their chronic illness. [1][2][3][4] These include the need to manage a complex medical condition that requires daily completion of multiple selfcare behaviors, the impact of diabetes on social interactions with family members, peers, and teachers, and the interference of symptoms such as hypoglycemia with daily activities.Previous studies investigated the impact of stress on health outcomes among persons with type 1 diabetes. The effects of stress on regimen adherence and metabolic control have been of particular interest.…”

mentioning

confidence: 99%

The Effects of Multisystemic Therapy on Diabetes Stress Among Adolescents With Chronically Poorly Controlled Type 1 Diabetes: Findings From a Randomized, Controlled Trial

Ellis¹,

Frey²,

Naar‐King³

et al. 2005

Pediatrics

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ABSTRACT. Objective. The goal of this study was to determine whether multisystemic therapy (MST), an intensive, home-based psychotherapy, could decrease diabetes-related stress among adolescents with chronically poorly controlled type 1 diabetes. Stress was also evaluated as a mediator of the effect of MST on adherence and metabolic control.Methods. A randomized, controlled trial was conducted with 127 adolescents with type 1 diabetes mellitus and chronically poor metabolic control (hemoglobin A1c levels of >8% at study enrollment and for the past 1 year) who received their diabetes care in a children's hospital located in a major Midwestern city. Participants assigned randomly to MST received treatment for ϳ6 months. Data were collected at baseline and at a 7-month posttest (ie, treatment termination). Changes in diabetes-related stress, as measured with a self-report questionnaire, were assessed. Structural equation models were used to test the degree to which changes in stress levels mediated the ability of the MST intervention to improve adherence and metabolic control.Results. In intent-to-treat analyses, participation in MST was associated with significant reductions in diabetes-related stress. Tests for moderation found no significant effects of age, gender, or ethnicity, which suggests that the intervention was equally effective in reducing diabetes stress for all participants. However, structural equation modeling did not provide support for diabetes stress as the mechanism through which MST improved health outcomes. Rather, the final model suggested that MST improved metabolic control through increased regimen adherence.Conclusions. Intensive, home-based psychotherapy reduces diabetes-related stress among adolescents with chronically poorly controlled type 1 diabetes. Such stress reductions are important for the psychological wellbeing of a subset of youths with diabetes who are at high risk for future health complications. A dolescents with type 1 diabetes mellitus face a number of stressors and challenges as a result of their chronic illness. [1][2][3][4] These include the need to manage a complex medical condition that requires daily completion of multiple selfcare behaviors, the impact of diabetes on social interactions with family members, peers, and teachers, and the interference of symptoms such as hypoglycemia with daily activities.Previous studies investigated the impact of stress on health outcomes among persons with type 1 diabetes. The effects of stress on regimen adherence and metabolic control have been of particular interest. Stress has the potential to affect metabolic control directly through its impact on cortisol and other catabolic hormones that interfere with insulin metabolism. It may also affect metabolic control indirectly, by interfering with completion of self-care tasks. However, prior findings have been mixed, with some studies supporting a direct relationship between stress and metabolic control, some suggesting that adherence mediates the relationship between stress and me...

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mentioning

confidence: 99%

The Effects of Multisystemic Therapy on Diabetes Stress Among Adolescents With Chronically Poorly Controlled Type 1 Diabetes: Findings From a Randomized, Controlled Trial

Ellis¹,

Frey²,

Naar‐King³

et al. 2005

Pediatrics

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“…Diabetes distress was expressed by participants in descriptions of the pain, frustrations, and unrelenting nature of caring for diabetes. As previous studies have reported, young adults in the study struggle to cope with diabetes [8], yet participants identified tools that help them function and thrive. Coping strategies included using available diabetes technology and tools, using humor to diffuse stress, relying on spiritual faith, connecting with others and giving back.…”

Section: Discussionmentioning

confidence: 87%

“…Given the additional strain diabetes can pose in the lives of young adults, understanding the factors that impact self-perception and coping are crucial for addressing and discussing their needs [8].The goal of our study was to assess the intrinsic beliefs and experiences of young adults using their own voices. The use of photography and narrative allowed young adults' voices to be communicated in an engaging and empowering way.…”

Section: Introductionmentioning

confidence: 99%

Using Photo-Elicitation to Explore Young Adult Perspectives on Coping with Type 1 Diabetes

Melton

Johnson

2015

PLAID

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Objective: Young adults with type 1 diabetes face multiple challenges managing their disease and navigating the life transitions of emerging adulthood. This places them at increased risk for poor health and psychological outcomes. The purpose of the present formative evaluation study was to assess the impact of diabetes on their lives and identify salient messages for health promotion using an online photo-elicitation technique.Research Design and Method: Thirty young adults participated by submitting photographs and written narratives describing how diabetes has impacted their lives.Results: Diabetes negatively impacts young adults' social connections, identity, and self-perceptions; yet, mechanisms for coping and personal growth were identified among participants.Conclusions: Young adults with diabetes face significant challenges in coping with the disease; however, they are able to reframe their experience in positive ways using effective coping strategies, such as communicating with others who understand what life with diabetes is like and developing social connections.

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“…Paaugliams būdingas egocentrizmas ir noras būti tokiu pačiu kaip ir kiti. Tapatumo suvokimas, nepriklausomybė ir socialinio vaidmens pasirinkimas gali prieštarauti ligos valdymo procesui arba santykiams su šeima (Davidson, Penney, Muller, Grey, 2004). Nepagydoma, nematoma liga, pvz., CD, sukelia paauglių įprastai raidai perėjimo etape nebūdingų sunkumų.…”

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„Esu toks pats ar kitoks?“ Kitoniškumo įveikos strategijos paauglių, sergančių i tipo cukriniu diabetu, ir bendraamžių santykiuose

Ražanauskaitė¹

2017

SWEM

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Vaikui susirgus nepagydoma liga, šeimą dažniausiai ištinka krizė. Dažniausiai jos padarinius šeimai ir vaikui tenka įveikti vieniems, nes socialinių darbuotojų, išmanančių gyvenimo su liga savitumus Lietuvoje yra labai nedaug, o socialinės pagalbos poreikis didėja. Socialinio darbuotojo veikla nukreipta į asmens ir aplinkos sąveiką (Campton, Galaway, 1999) gali atliepti socialinės pagalbos poreikį. Laiku suteikus

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Stressors and self-care challenges faced by adolescents living with type 1 diabetes

Cited by 105 publications

References 8 publications

The Effects of Multisystemic Therapy on Diabetes Stress Among Adolescents With Chronically Poorly Controlled Type 1 Diabetes: Findings From a Randomized, Controlled Trial

The Effects of Multisystemic Therapy on Diabetes Stress Among Adolescents With Chronically Poorly Controlled Type 1 Diabetes: Findings From a Randomized, Controlled Trial

Using Photo-Elicitation to Explore Young Adult Perspectives on Coping with Type 1 Diabetes

„Esu toks pats ar kitoks?“ Kitoniškumo įveikos strategijos paauglių, sergančių i tipo cukriniu diabetu, ir bendraamžių santykiuose

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