Subjective Experiences of Husbands of Spouses With Schizophrenia: An Analysis of the Husbands' Descriptions of Their Experiences

Mizuno, Eriko; Iwasaki, Misuzu; Sakai, Ikue

doi:10.1016/j.apnu.2011.03.001

Cited by 22 publications

(16 citation statements)

References 21 publications

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“…Based on the participants' experiences, strengthening family ties through family members' support for each other, participation in patient care, and increased love for each other were among the family achievements in dealing with the disease. Mizuno et al (2011), Sethabouppha and Kane (2005), Barnable et al (2006), as well as Wiens and Daniluk (2009) also reported increase of love and affection among family members after incidence of the disease (26,28,35,36), which con rm ndings of our study. (26,32,37), which are similar to the results of our study.…”

Section: Dynamism In Social Servicessupporting

confidence: 89%

Family Achievements in the Battle with Schizophrenia: :Life Experiences in a Qualitative Content Analysis Study in IRAN

Darban

Mehdipour‐Rabori

Farokhzadian

et al. 2020

Preprint

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Introduction: The challenges of living with and taking care of a patient with schizophrenia can lead to positive changes depending on the experiences and reactions of the families. Such changes may directly affect the family performance and the patient's recovery stage. Therefore, the aim of this study was to explain the positive experiences reported by families of patients with schizophrenia.Materials and methods: In this qualitative study of content analysis, data were collected using semi-structured and in-depth interviews with 15 family members of patients with schizophrenia who referred to one of the psychiatric hospitals in Zahedan City, Iran. Targeted sampling method was applied and data analysis was conducted using contractual content analysis proposed by Graneheim and Lundman.Results: Data analysis resulted in a theme entitled 'family achievements in the battle with schizophrenia'. This theme included four main categories of: Developing positive personality traits in family members, Strengthening family ties, Developing insight into life, and Social mobility.Conclusion: The findings provided evidences that the experience of taking care of patients with schizophrenia led to positive consequences for the families.Highlights- Caring for a patient with schizophrenia promotes personality traits in caregivers- Participating in patient care strengthens family ties- Living with schizophrenia patients developed their insight into life.- Family members of a schizophrenic patient try to reach their previous social status

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Section: Dynamism In Social Servicessupporting

confidence: 89%

Family Achievements in the Battle with Schizophrenia: :Life Experiences in a Qualitative Content Analysis Study in IRAN

Darban

Mehdipour‐Rabori

Farokhzadian

et al. 2020

Preprint

View full text Add to dashboard Cite

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“…Many described feeling like both mother and father, shouldering the emotional side of parenting and balancing care of their spouse and offspring. Mizuno, Iwasaki, and Sakai (2011) reported similar findings in their TCA with 12 husbands of women with schizophrenia in Japan. For the 9 couples with children, husbands frequently described fulfilling the role of both mother and father.…”

Section: Resultsmentioning

confidence: 99%

“…This suggested a cross‐cultural similarity in the experiences of the “well” parent. However, Lawn and McMahon (2014) reported that spouses expected their partners with MHP to co‐parent whenever possible, while Mizuno et al’s (2011) fathers prioritized nurturing the child–mother relationship and encouraging children to take responsibility. In both studies, fathers varied in whether they talked to their child about the MHP or not.…”

Section: Resultsmentioning

confidence: 99%

“…These results indicate a mediating role for relatives in protecting children's attachments and assuming parenting roles. Mizuno et al (2011) position their findings within the Japanese context; strong cultural values about children binding a marriage and husbands protecting wives dominated participant discourses. “Excessive” attachment in children is cited as a common challenge of maternal schizophrenia, comparably with attachment “disorder” or “disturbance” (Reupert, Maybery, & Kowalenko, 2013).…”

Section: Resultsmentioning

confidence: 99%

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Family understanding and communication about an adult relative’s mental health problem: A systematic narrative review

Gammage

Nolte

2020

Psychiatric Ment Health Nurs

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Accessible summary What is known on the subject? Adults who support an adult family member with a severe and enduring mental health problem often experience carer burden. Over time, this often negatively affects their mental and physical health and social well‐being. Understanding and communicating about mental health problems in families can help to improve resilience and coping among both adults and children. What does this paper add to existing knowledge? We conducted a review of studies looking at how adult relatives understand and communicate about an adult family member's mental health problem. The findings highlight that how relatives make sense of MHP is related to historical family relationships, their mental health literacy and whether they see themselves as a “carer” or not. The findings also show that little research to date has explored how adult relatives talk with children about their parent's difficulties, and how the adults’ understanding might affect what children learn about the MHP. What are the implications for practice? There is a research gap to be addressed regarding family communication with children about parental mental health problems. This knowledge gap likely impacts family‐focused mental health nursing and therapy provision. Mental health nursing, therapeutic and support workers and advocates are ideally positioned to assist relatives with improving their mental health literacy and confidence communicating about mental health, and to promote inclusion of relatives and children in interventions. Abstract IntroductionRelatives are profoundly affected by an adult family member's severe and enduring mental health problem (MHP). The burdens of caring impact on adult relatives’ emotional, physical and social well‐being. How relatives make meaning and communicate about the MHP is thought to affect family talk about mental health, and this can impact family coping and well‐being. AimNo review has yet drawn together research about how adult relatives of people with severe and enduring MHP make meaning and communicate about their relatives’ difficulties. We aimed to address this gap. MethodWe conducted a systematic review of peer‐reviewed primary research. SCOPUS, PubMed, Psychnet, SCIE, Cochrane and CINAHL+ databases were searched. ResultsNineteen papers qualified for inclusion. Findings are organized under four themes: making meaning about the MHP and affected individual; conceptualizing the self in the presence of the MHP; meaning‐making processes underlying relatives’ well‐being outcomes; and relatives’ perspectives on family talk about the MHP. DiscussionHistorical relationships, caregiver identity and mental health literacy moderate relatives’ understanding and talk about the MHP. Implications for practicePsychoeducation and communication support for relatives should be provided by mental health practitioners. Future research should address familial communication about MHP, including with children.

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“…They remain largely invisible within larger carer groups. The few studies that exist have focused almost entirely on caring for a spouse with schizophrenia (Angermeyer, et al, 2006;Jungbauer, Wittmund, Dietrich & Angermeyer, 2004;Mizuno, Iwasaki & Sakai, 2011), bipolar disorder (Van der Voort et al, 2007) or depression (Benazon & Coyne, 2000;Levkovitz, Fennig, Horesh, Barak & Treves, 2000); or on experiences of wives of war veterans with PTSD (Dekel, Goldblatt, Keider, Solomon & Polliack, 2005;Lyons, 2001). These studies have focused on theories of objective and subjective burden and on measuring negative impacts on spouses' quality of life.…”

Section: Spouse Mental Health Carersmentioning

confidence: 99%

The Importance of Relationship in Understanding the Experiences of Spouse Mental Health Carers

Lawn

McMahon

2014

Qual Health Res

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The burden of caring for family members with mental illness has been researched extensively. However, knowledge of spouse carers' experiences is limited. In this article, we explore this from a carers' perspective, with 28 spouse carers, using qualitative open-ended semi-structured interviews using a grounded theory approach informed by the social interactionism tradition to collect and analyze the data. We present six interrelated themes around the central theme of this being "a real and genuine relationship". The findings indicate that caring for a spouse with severe mental illness is a unique role compared with other caring roles. First and foremost, spouse carers strive for the relationship with their partner, and accommodate mental illness into their lives to protect the relationship. Because of this, they often lead surreal lives marked by significant emotional pressure and isolation. This has implications for how mental health service providers work with and support spouse carers. KeywordsCaregivers / caregiving; grounded theory; men's health; mental health and illness; relationships, primary partner 2 Archived at Flinders University: dspace.flinders.edu.auInformal carers provide unpaid care to family or friends with a disability, chronic physical illness, mental illness, or who are frail aged. Treloar and Funk (2011) called this "intimate labour" which they situated within the broader concept of "familialism" where, "Households are viewed as having the primary responsibility for members' welfare throughout the life course" (p. 154). Some carers assume these responsibilities willingly, as part of familial connection with the person cared for. As Cormac and Tihanyi (2006) suggested Underpinning the caring role may be life-long love and friendship, together with an acceptance of the duty to provide care. Carers can derive satisfaction and a sense of well-being . . . receive love and affection from the care recipient, (and) gain a sense of achievement from developing personal attributes of patience and tolerance (p. 162).A significant group, bound to provide care through their chosen relationship, are wives, husbands or de facto partners of people with severe mental illnesses such as major depression, schizophrenia, bipolar disorder, post-traumatic stress disorder (PTSD) or personality disorder. Caring for someone with these diagnoses requires spouses to navigate many complexities within the spousal relationship and caring role. Spouse Carers of People with Chronic Physical Health ConditionsMany researchers have looked at the experience of spouse carers of people with cancer (Kuenzler, Hodgkinson, Zindel, Bargetzi & Znoi, 2011), stroke (Coombs, 2007, cardiac disease (Mahrer-Imhoff, Hoffmann & Froelicher, 2007), arthritis (Roberto & Gold, 1997), asthma (Afari & Schmaling, 2000, Parkinson's disease (Tanji, et al., 2008), Alzheimer's dementia (Gilliam & Steffen, 2006) and chronic conditions generally (Baanders & Heijmans, 2007). This research has highlighted carers' grief, burden, obligation, problems...

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Subjective Experiences of Husbands of Spouses With Schizophrenia: An Analysis of the Husbands' Descriptions of Their Experiences

Cited by 22 publications

References 21 publications

Family Achievements in the Battle with Schizophrenia: :Life Experiences in a Qualitative Content Analysis Study in IRAN

Family Achievements in the Battle with Schizophrenia: :Life Experiences in a Qualitative Content Analysis Study in IRAN

Family understanding and communication about an adult relative’s mental health problem: A systematic narrative review

The Importance of Relationship in Understanding the Experiences of Spouse Mental Health Carers

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