Supporting family dementia caregivers: testing the efficacy of dementia care management on multifaceted caregivers’ burden

Zwingmann, Ina; Hoffmann, Wolfgang; Michalowsky, Bernhard; Dreier-Wolfgramm, Adina; Hertel, Johannes; Wucherer, Diana; Eichler, Tilly; Kilimann, Ingo; Thiel, Franziska; Teipel, Stefan J.; Thyrian, Jochen René

doi:10.1080/13607863.2017.1399341

Cited by 29 publications

(40 citation statements)

References 21 publications

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“…5 Institute of Medical Psychology and Medical Sociology, University Medicine Rostock, Rostock, Germany. 6 Department of Psychiatry and Psychotherapy, University Medicine Greifswald, Greifswald, Germany.…”

Section: Fundingmentioning

confidence: 99%

“…Specifically, previous research revealed that caring for a PwD is particularly burdensome due to the irreversible and progressive nature of the disease, its long duration, and the deterioration in multiple areas of cognitive abilities, behavior, and personality [4]. Current research specified that the confrontation with cognitive impairment and behavioral symptoms (i.e., aggression and personality changes), and the need to assist in activities of daily living, are especially burdensome and distressing for caregivers [5,6].…”

Section: Introductionmentioning

confidence: 99%

“…By following this call for research, the present study implemented a standardized, computerized unmet needs assessment of family dementia caregivers by dementiaspecific qualified nurses. Based on this assessment of individual needs the nurses provided support to the family caregiver to access support and services that are tailored to their needs [6,18]. Could this strategy lead to a zero rejection rate of family dementia caregivers on recommended tailored support services?…”

Section: Introductionmentioning

confidence: 99%

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Why do family dementia caregivers reject caregiver support services? Analyzing types of rejection and associated health-impairments in a cluster-randomized controlled intervention trial

Zwingmann

Dreier-Wolfgramm

Esser³

et al. 2020

BMC Health Serv Res

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Background: Although there are a number of support services accessible for most family dementia caregivers, many caregivers reject available and affordable support. Previous research suggests that rejections of support services may result from insufficient fit of available services with caregivers' unmet needs and a lack of acknowledgement of caregivers' unmet needs and associated support services. The present study investigates (a) the number, proportion and types of caregivers' rejection on recommended tailored support, (b) sociodemographic and clinical determinants of caregiver's rejection of both people with dementia (PwD) and caregivers, and (c) caregivers' health-related variables related to caregivers' rejection. Methods: Caregivers' rejection of tailored support services was identified based on a standardized, computerized unmet needs assessment conducted by dementia-specific qualified nurses. The present analysis is based on data of n = 226 dyads of caregivers and their community-dwelling PwD who participated in a general practitioner (GP)based, cluster-randomized intervention trial. The trial was approved by the Ethical Committee of the Chamber of Physicians of Mecklenburg-Western Pomerania, registry number BB 20/11. Data analyses were conducted using Stata/IC 13.1. We conducted Welch's t-test, Pearson's product-moment correlation, and conditional negative binomial regression models with random effects for GP to account for over-dispersed count data.

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Section: Fundingmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Why do family dementia caregivers reject caregiver support services? Analyzing types of rejection and associated health-impairments in a cluster-randomized controlled intervention trial

Zwingmann

Dreier-Wolfgramm

Esser³

et al. 2020

BMC Health Serv Res

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“…Most people with dementia live at home and are cared for primarily by their spouse or adult children, the informal caregivers [ 2 ]. Caring for people with dementia is perceived as one of the most stressful experiences, as family caregivers may face long-term problems of managing activities of daily living [ 3 , 4 ], behavioral and psychological symptoms [ 5 , 6 ], and organizing care and providing emotional support [ 7 , 8 ]. However, due to a lack of supportive resources and knowledge of dementia, family caregivers have low confidence in managing caregiving [ 9 ] and do not know what to do when their relatives have dementia-related behavioral problems, need emotional support, and require the coordination of dementia care [ 10 ].…”

Section: Introductionmentioning

confidence: 99%

Internet-Based Supportive Interventions for Family Caregivers of People With Dementia: Systematic Review and Meta-Analysis

Leng¹,

Zhao²,

Xiao³

et al. 2020

J Med Internet Res

110

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Background Caring for people with dementia is perceived as one of the most stressful and difficult forms of caring. Family caregivers always experience high levels of psychological burden and physical strain, so effective and practical support is essential. Internet-based supportive interventions can provide convenient and efficient support and education to potentially reduce the physical and psychological burden associated with providing care. Objective This review aimed to (1) assess the efficacy of internet-based supportive interventions in ameliorating health outcomes for family caregivers of people with dementia, and (2) evaluate the potential effects of internet-based supportive intervention access by caregivers on their care recipients. Methods An electronic literature search of the PubMed, EMBASE, Web of Science, CINAHL, Cochrane Library, and PsycINFO databases was conducted up to January 2020. Two reviewers (ML and YZ) worked independently to identify randomized controlled trials (RCTs) that met the inclusion criteria and independently extracted data. The quality of the included RCTs was evaluated using the approach recommended by the Cochrane Handbook for Systematic Reviews of Interventions. Standardized mean differences (SMDs) with 95% CIs were applied to calculate the pooled effect sizes. Results In total, 17 RCTs met the eligibility criteria and were included in this systematic review. The meta-analysis showed that internet-based supportive interventions significantly ameliorated depressive symptoms (SMD=–0.21; 95% CI –0.31 to –0.10; P<.001), perceived stress (SMD=–0.40; 95% CI –0.55 to –0.24; P<.001), anxiety (SMD=–0.33; 95% CI –0.51 to –0.16; P<.001), and self-efficacy (SMD=0.19; 95% CI 0.05-0.33; P=.007) in dementia caregivers. No significant improvements were found in caregiver burden, coping competence, caregiver reactions to behavioral symptoms, or quality of life. Six studies assessed the unintended effects of internet-based supportive intervention access by caregivers on their care recipients. The results showed that internet-based supportive interventions had potential benefits on the quality of life and neuropsychiatric symptoms in care recipients. Conclusions Internet-based supportive interventions are generally effective at ameliorating depressive symptoms, perceived stress, anxiety, and self-efficacy in dementia caregivers and have potential benefits on care recipients. Future studies are encouraged to adopt personalized internet-based supportive interventions to improve the health of family caregivers and their care recipients. Trial Registration PROSPERO CRD42020162434; https://www.crd.york.ac.uk/prospero/display_record.php?RecordID=162434

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“…Furthermore, providing care to a person with dementia can risk high physical, psychological, emotional and social impact on caregivers. The RCT carried out by Zwingmann et al (2017) showed that a dementia care management intervention can be effective to decrease caregivers' objective burden due to caring, subjective burden due to behavior change and perceived conflicts between needs and responsibilities to care compared to a control group receiving care as usual. The authors found that even small to medium effects might help to decreases the risk of health impairments and raise satisfaction, engagement and personal growth in caregivers.…”

Section: Advancing Dementia Researchmentioning

confidence: 99%

INTERDEM Academy: a training and career development initiative vital to capacity building of early stage psychosocial dementia researchers in Europe

Klinkenberg

Oliveira

Verhey

et al. 2018

Aging & Mental Health

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Supporting family dementia caregivers: testing the efficacy of dementia care management on multifaceted caregivers’ burden

Abstract: Our findings support evidence for the effectiveness of DCM to lower family dementia caregivers' burden in multifaceted dimensions.

Cited by 29 publications

References 21 publications

Why do family dementia caregivers reject caregiver support services? Analyzing types of rejection and associated health-impairments in a cluster-randomized controlled intervention trial

Why do family dementia caregivers reject caregiver support services? Analyzing types of rejection and associated health-impairments in a cluster-randomized controlled intervention trial

Internet-Based Supportive Interventions for Family Caregivers of People With Dementia: Systematic Review and Meta-Analysis

INTERDEM Academy: a training and career development initiative vital to capacity building of early stage psychosocial dementia researchers in Europe

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