Supporting Muslim families before and after a death in neonatal and paediatric intensive care units

Mutair, Abbas Al; Ammary, Maram Al; Brooks, Laura; Bloomer, Melissa

doi:10.1111/nicc.12434

Cited by 19 publications

(17 citation statements)

References 38 publications

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“…Holy water recovered from the well of Zamzam in Mecca), Muslim rituals of body orientation towards Mecca after the baby dies and the use of cevs ¸en-muska (a small amulet with small prayers from the Quran) on the incubator. 36,37 In another study, families were concerned to minimize touching the body of the dead Muslim as much as possible by the health care providers if they are not of the same sex of the patient. 38 In the non-Muslim context, 39 nurses acknowledged that parents needed time to spend with critically ill baby and to be able to hope for a Divine intervention.…”

Section: Spiritual Needs Of Patients and Familiesmentioning

confidence: 99%

The influence of spirituality and religion on critical care nursing: An integrative review

Badanta

Rivilla-García

Lucchetti

et al. 2021

Nursing in Critical Care

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Background: Spiritual care could help family members and critically ill patients to cope with anxiety, stress and depression. However, health care professionals are poorly prepared and health managers are not allocating all the resources needed.Aims and objectives: To critically review the empirical evidence concerning the influence of spirituality and religion (S-R) on critical care nursing.Methods: An integrative review of the literature published in the last 10 years (2010-2019) was conducted in PubMed, Scopus, CINHAL, PsycINFO, Web of Science, Cochrane and LILACS. In addition, searches were performed in the System for Information on Grey Literature in Europe and the Grey Literature Report. Quantitative and/or qualitative studies, assessing S-R and including health care professionals caring for critically ill patients (i.e. adults or children), were included.Results: Forty articles were included in the final analysis (20 qualitative, 19 quantitative and 1 with a mixed methodology). The studies embraced the following themes: S-R importance and the use of coping among critical care patients and families; spiritual needs of patients and families; health care professionals' awareness of spiritual needs; ways to address spiritual care in the intensive care unit (ICU); definition of S-R by health care professionals; perceptions and barriers of addressing spiritual needs; and influence of S-R on health care professionals' outcomes and decisions. Our results indicate that patients and their families use S-R coping strategies to alleviate stressful situations in the ICU and that respecting patients' spiritual beliefs is an essential component of critical care. Although nurses consider spiritual care to be very important, they do not feel prepared to address S-R and report lack of time as the main barrier. Conclusion and implications for practice:Critical care professionals should be aware about the needs of their patients and should be trained to handle S-R in clinical practice. Nurses are encouraged to increase their knowledge and awareness towards spiritual issues.

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Section: Spiritual Needs Of Patients and Familiesmentioning

confidence: 99%

The influence of spirituality and religion on critical care nursing: An integrative review

Badanta

Rivilla-García

Lucchetti

et al. 2021

Nursing in Critical Care

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“…According to the results of a qualitative study in Iran about caring for terminally ill patients, it is important to avoid harming them and respect their cultural and religious beliefs, as well as the patients’ and their families’ dignity ( 26 ). The results of a qualitative study in Saudi Arabia also showed that nurses working in NICUs had the experience of providing end-of-life care while respecting the neonates’ families, and that this respect remained the same even after the neonate’s death ( 18 ). According to the Islamic and cultural doctrine, family institution is considered vulnerable in Iran, and therefore the nurses in this study observed this and considered the families in caring for neonates.…”

Section: Discussionmentioning

confidence: 99%

“…This scale has been designed by Frommelt (1991) and used for terminally ill patients of any age ( 23 ). The scale consists of 30 items, 15 of which are expressed in a positive manner ( 1 , 2 , 4 , 10 , 12 , 16 , 17 , 19 , 20 , 21 , 22 , 23 , 24 , 26 , and 29 ) and emphasize the nurses’ attitudes toward the role of families in caring for terminally ill patients; the remaining 15 items are expressed in a negative manner ( 3 , 5 , 6 , 7 , 8 , 9 , 11 , 13 , 14 , 15 , 18 , 25 , 27 , 28 , and 30 ) and are related to the nurses’ fear and stress in caring for terminally ill patients. The items are scored based on the Likert scale (completely disagree, disagree, no idea, agree, and completely agree), and the overall scores range between 30 and 150.…”

Section: Methodsmentioning

confidence: 99%

See 1 more Smart Citation

Nurses' attitudes toward caring for terminally ill neonates and their families in Iran: a cross-sectional study

Kadivar¹,

Mardani-Hamooleh²,

Kouhnavard³

et al. 2021

jmehm

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Providing care for terminally ill neonates is an important issue in NICUs. This research aimed to determine nurses’ attitudes toward providing care for terminally ill neonates and their families. A total of 138 nurses working in neonatal intensive care units (NICUs) affiliated to Tehran University of Medical Sciences participated in this cross-sectional study via convenience sampling in 2019. The Data collection tool was the Frommelt attitudes toward caring for terminally ill persons and their families scale. The nurses in this study had the most positive attitudes toward the items “nursing care should include the family of the terminally ill patient, too” (4.2 ± 0.6) and “the care provider can prepare the patient or his/her family for death” (4.1 ± 0.7). The nurses had the least positive attitude toward the item “the time spent on caring for terminally ill patients creates a sense of frustration in me” (1.06 ± 1). The mean score of the attitudes of NICU nurses toward caring for terminally ill neonates and their families indicates the necessity of improving this attitude.

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“…These difficulties are even greater when the nurses providing the care were raised and trained in a different country, speak a different language and come from substantially diverse cultural and religious backgrounds. Against this backdrop, Al Mutair et al . conducted a descriptive qualitative study with interviews among non‐Muslim nurses working in paediatric and neonatal ICUs (NICU/PICU) in a large private hospital in Riyadh, Saudi Arabia who had cared for at least one infant or child who had died.…”

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confidence: 99%

What's in this Special Issue

Trapani

Walker

2019

Nursing in Critical Care

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In this special issue of Nursing in Critical Care, we place the spotlight on bereavement care in adult, paediatric and neonatal intensive care.It has been our privilege to work with authors whose scholarly contributions to this edition echo and support our quest to raise the profile and importance of this topic. Caring for the critically ill is often defined by advanced knowledge, technical expertise, and physical life support. Yet, despite intensive medical management, the critical care team commonly experience and provide patient and family end of life care. In this collection of papers, various aspects of dying, death, grief and bereavement are critically examined through primary research and case study analyses, both within and beyond the environment of intensive care.The guest editorial by Nancy Kentish-Barnes 1 presents a thought-provoking review of bereavement care in the intensive care unit (ICU) underpinned by research that has helped to develop our understanding of family members' experiences of dying and death.What becomes apparent is the remarkable accumulation of bereavement research by Kentish-Barnes and colleagues to support and inspire evidence-based practice in the ICU. The editorial draws attention to a multiplicity of opportunities and challenges and expands on some of the strengths and weaknesses of current practice and research. Relevant data from primary research portrays methodological diversity when studying the phenomenon of grief and bereavement, and the value of mixed-methods data to inform the art and science of bereavement practice. Kentish-Barnes also informs us of contrasting results; both positive and adverse impacts 186 EDITORIAL bereavement. However, they conclude by recommending further research to explore the psychological impact of cDCD on the grieving process. The second case study paper builds on the theme of transferring critically ill patients home to die. In this scenario, it was a 70-year old critically ill patient, previously diagnosed with metastatic cancer, who wanted to die at home, and the adult critical care team's efforts to fulfil his wish. White 19 shares insights about her and her colleagues' experience in implementing what remains a considerably rare event for most critical care nurses, highlighting the need for careful planning, coordination, interprofessional teamwork, assertiveness, reflection and honest communication with the patient and their family members throughout all stages of the process. Furthermore, the paper uses the concept of safe uncertainty 20,21 to remind critical care practitioners that they need to go "beyond conventional treatment to provide highquality care", 19 (p.236) Indeed, the very challenging nature of transferring critically and terminally ill patients home to die is a quintessential example of patient advocacy and dignity in care, in this case by safeguarding the patient's preferred place of death. Whilst depicting the elements of this complex intervention, this case study clearly illustrates how the values of compassion, commitm...

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Supporting Muslim families before and after a death in neonatal and paediatric intensive care units

Cited by 19 publications

References 38 publications

The influence of spirituality and religion on critical care nursing: An integrative review

The influence of spirituality and religion on critical care nursing: An integrative review

Nurses' attitudes toward caring for terminally ill neonates and their families in Iran: a cross-sectional study

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