Survival of infants born with Down’s syndrome: 1980–96

Leonard, Seonaid; Bower, Carol; Petterson, Beverly; Leonard, Helen

doi:10.1046/j.1365-3016.2000.00252.x

Cited by 126 publications

(134 citation statements)

References 26 publications

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“…Approximately three quarters of children with Down syndrome experience two or more confounding health issues [5], the most frequent are cardiac, gastrointestinal, sensmy (ear or eye related), respiratory, thyroid, orthopaedic and oncology concerns Leisure participation 12 [5,8,12]. These impairments to body functions and body structures can contribute to activity limitations and participation restrictions relating to friendships and leisure.…”

Section: Body Function and Structure Factorsmentioning

confidence: 99%

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Leisure participation for school-aged children with Down syndrome

Oates¹,

Bebbington²,

Bourke³

et al. 2011

Disability and Rehabilitation

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Purpose. To describe leisure participation for school-aged children with Down syndrome and to investigate how factors, classified by the World Health Organisation\u27s International Classification of Functioning, Disability and Health, influence their leisure participation. Method. Families in Western Australia with a child aged 5–18 years with Down syndrome were surveyed in a population-based study (n == 208) in 2004. Results. One-third of parents reported that their child with Down syndrome had no friends although half reported two or more friends. Factors affecting number of friendships included the child\u27s functional ability, behavioural issues and parent\u27s availability of time. Those children with higher functional independence scores in daily tasks were more likely to have two or more friends than those with lower functional independence scores (OR: 1.02, 95%% CI 1.01–1.04 for a single point increase in WeeFIM score). All children participated in predominantly solitary and sedentary leisure activities. Conclusions. Leisure participation was affected by complex factors both within and external to the child with Down syndrome. Further investigation of the relevance of these factors to leisure may enable more satisfying and meaningful participation in leisure for school-aged children with Down syndrome

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Section: Body Function and Structure Factorsmentioning

confidence: 99%

“…In summary, impairments in body functions and structures contribute to financial hardship for families and in serious cases, hospitalisations for children with Down syndrome [ 6,8]. Hospitalisations are more common in cases of respiratory conditions, congenital heart defects and gastrointestinal disease [59].…”

Section: Functional Abilitymentioning

confidence: 99%

Leisure participation for school-aged children with Down syndrome

Oates¹,

Bebbington²,

Bourke³

et al. 2011

Disability and Rehabilitation

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“…Feeling of unpreparedness to face painful reality of the loss, denial, and feeling that their world no longer makes sense are commonly expressed (Leonard et al, 2000). Parents who have experienced perinatal loss may feel hardship and face difficult time during this period.…”

Section: Introductionmentioning

confidence: 99%

Psychosocial impact of mothers with perinatal loss and its contributing factors: an insight

Sutan

Amin

Ariffin

et al. 2010

J. Zhejiang Univ. Sci. B

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Abstract:Objective: To evaluate the psychosocial impact among mothers with perinatal loss and its contributing factors. Methods: A cross sectional study was conducted in University Kebangsaan Malaysia Medical Centre (UKMMC) from April 2008 to May 2009 using Edinburgh Postnatal Depression Scale (EPDS) and self administered questionnaire. Results: Sixty-two respondents were included and most of them were working mothers (77.4%). The mean age of the respondents was (31.0±5.6) years and a majority of the subjects aged between 20-34 years (77.4%). According to the EPDS score, 53.2% of the respondents had a psychosocial impact with a total score of >9, out of 30. There was a significant relationship between psychosocial impact after perinatal loss and support from friends (P=0.019). However, there were no significant differences between psychosocial impact and history of previous perinatal loss, ethnicity, occupation, educational level, age or total income. Conclusion: Mothers with perinatal loss should be screened for psychosocial impact and offered support when needed. Family and friends should continue to provide emotional support. People who have experienced similar problem before will be able to provide better support than those who have not.

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“…Dados epidemioló-gicos brasileiros revelam incidência de 1:600 nascidos vivos 1 . Avanços tecnológicos e científicos têm aumentado significativamente a sobrevida dessas crianças [4][5][6][7] . Além disso, movimentos sócio-culturais têm buscado incluir estes indivíduos na sociedade, estimulando sua participação em diferentes contextos sociais, e promovendo o exercício da cidadania.…”

unclassified

“…No que se refere ao desenvolvimento de habilidades motoras, as evidências revelam que estas crianças apresentam atraso nas aquisições de marcos motores básicos, indicando que estes marcos emergem em tempo diferenciado (superior) ao de crianças com desenvolvimento normal 1,3,4,8,9,12 . A literatura também apresenta informações sobre o desempenho cognitivo de crianças portadoras de SD, indicando que estas crianças apresentam atraso ou retardo mental, que na verdade, é a manifestação de um sintoma desta condição genética 3,[7][8][9]11,12 . Do ponto de vista cognitivo, observa-se um maior comprometimento destas crianças na área da linguagem 1,3,4 .…”

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Comparação do desempenho funcional de crianças portadoras de síndrome de Down e crianças com desenvolvimento normal aos 2 e 5 anos de idade

Mancini

Silva

Gonçalves

et al. 2003

Arq. Neuro-Psiquiatr.

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RESUMO -Objetivo: Comparar o desempenho funcional de crianças portadoras de síndrome de Down (SD) com crianças normais (DN), aos 2 e 5 anos de idade. Método: Quarenta crianças foram alocadas em quatro grupos (n=10): 1) crianças com SD de 2 anos; 2) crianças com SD de 5 anos; 3) crianças normais de 2 anos; 4) crianças normais de 5 anos. Todas foram avaliadas pelo teste funcional PEDI, que quantifica o desempenho infantil (habilidades e independência) em três áreas: auto-cuidado, mobilidade e função social. Testes de análises de variância fatorial foram utilizados para comparar médias dos grupos e testar fatores de interação idade x patologia. Contrastes pré-planejados foram usados para identificar as comparações bivariadas significativas. Resultados: Os fatores idade e patologia foram significativos nas três áreas de desempenho de habilidades e de independência. O fator de interação idade x patologia mostrou-se significativo nas habilidades de auto-cuidado e mobilidade, e na independência em mobilidade e função social. Comparações bivariadas indicaram que aos dois anos, o desempenho de crianças normais é superior nas três áreas de habilidades funcionais e de independência. Entretanto, aos 5 anos, diferenças significativas entre os grupos foram observadas nas habilidades de autocuidado e de função social e na independência em auto-cuidado e em função social. Conclusão: Resultados informam áreas de desempenho onde o atraso apresentado por crianças com SD manifesta-se funcionalmente, aos dois e cinco anos de idade. Dados indicam que as diferenças observadas entre os dois grupos são influenciadas pela idade, não permanecendo constante ao longo do desenvolvimento. PALAVRAS-CHAVE: síndrome de Down, desenvolvimento infantil, função.Comparison of functional performance among children with Down Syndrome and children with ageComparison of functional performance among children with Down Syndrome and children with ageComparison of functional performance among children with Down Syndrome and children with ageComparison of functional performance among children with Down Syndrome and children with ageComparison of functional performance among children with Down Syndrome and children with ageappropriate development at 2 and 5 years of age appropriate development at 2 and 5 years of age appropriate development at 2 and 5 years of age appropriate development at 2 and 5 years of age appropriate development at 2 and 5 years of age ABSTRACT -Objective: To compare the functional performance of Down's syndrome (DS) children with normally developing children (ND), at 2 and 5 years of age. Method: Forty children were allocated into four groups (n=10): 1) children with DS with 2 years of age; 2) children with DS with 5 years of age; 3) normal children with 2 years of age; 4) normal children with 5 years of age. Children were evaluated with the functional test PEDI, which quantifies children's performance (skills and independence) in three domains: self-care, mobility and social function. Two-way ANOVA was used to compare group means and t...

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Survival of infants born with Down’s syndrome: 1980–96

Cited by 126 publications

References 26 publications

Leisure participation for school-aged children with Down syndrome

Leisure participation for school-aged children with Down syndrome

Psychosocial impact of mothers with perinatal loss and its contributing factors: an insight

Comparação do desempenho funcional de crianças portadoras de síndrome de Down e crianças com desenvolvimento normal aos 2 e 5 anos de idade

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