Systematic review: Psychosocial factors of resilience in young people with inflammatory bowel disease

Tempchin, Jacob; Storch, Barbara; Reigada, Laura C.

doi:10.1016/j.jpsychores.2021.110558

Cited by 13 publications

(8 citation statements)

References 81 publications

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“…Resilienz (Optimismus und realistische Hoffnung, Achtsamkeit, positives Körperbild), Ressourcen (angemessen unterstützende Eltern, intakte Familie, enge Freunde) sowie hilfreiche Verhaltensweisen (soziale Unterstützung suchen, einen flexiblen Anpassungsstil besitzen), sind dabei von extremer Bedeutung 35 . Als behandelnder Arzt gilt es, diese Punkte immer wieder zu erfragen und positiv zu verstärken, wenn möglich auch die Familie hin zu einem positiven Erziehungsstil und die jungen Menschen zu Sport und zur Teilnahme an Aktivität mit Gleichaltrigen zu ermuntern 36 , 37 .…”

Section: Resilienzunclassified

Psychische Gesundheit von Kindern und Jugendlichen mit chronisch entzündlichen Darmerkrankungen

Lenhartz¹

2022

Arthritis und Rheuma

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ZUSAMMENFASSUNGKinder und Jugendliche mit chronisch entzündlichen Darmerkrankungen gehören durch Schmerzen und schambesetzte Symptome (Diarrhö, Blut im Stuhl, Meteorismus) ihrer Magen-Darm-Erkrankung zu einer besonderen Risikogruppe in Bezug auf eine Einschränkung der (gesundheitsbezogenen) Lebensqualität und eine psychische Komorbidität. Es besteht ein komplexes System an Wechselwirkungen zwischen Krankheitsaktivität (hier insbesondere Schmerz), psychischen Störungen wie Depression, Ängstlichkeit und Anpassungsstörungen, Lebensqualität und Resilienz. Dieses sollte bei Routinekontrollen allgemein, aber insbesondere auch bei Diskordanz zwischen Krankheitsaktivität und Lebensqualität erfasst und behandelt werden.

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Section: Resilienzunclassified

Psychische Gesundheit von Kindern und Jugendlichen mit chronisch entzündlichen Darmerkrankungen

Lenhartz¹

2022

Arthritis und Rheuma

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“…The already challenging tasks of growth and development during the crucial transition to adulthood can be severely disrupted by disease symptoms or therapy-related difficulties, leading to limitations in school and daily activities, as well as psychosocial comorbidities [8][9][10][11]. As a result, affected individuals have increased utilization of health care services [8,12].…”

Section: Introductionmentioning

confidence: 99%

A Nationwide Survey on Patient Empowerment in Pediatric Inflammatory Bowel Disease in Germany

Kaul,

Schumann,

Sander

et al. 2023

Children

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Background: The incidence/prevalence of pediatric inflammatory bowel disease (IBD) is increasing. IBD places a significant burden on young patients during important developmental stages and affects their families. Children and adolescents with IBD require increased support from health care services. However, little is known about the additional support needed and how to provide it. Therefore, a large survey was conducted with a focus on patient empowerment. Methods: For the anonymous survey, called CEDNA, a patient questionnaire for adolescents with IBD and a questionnaire for parents of children and adolescents with IBD were made available throughout Germany (distributed n = 2810). Questions covered various aspects of coping with the disease, utilization of care, use and need of information and communication services, and how information should be provided. Results: From October 2021 to April 2022, 1158 (n = 708 parents (61.1%), n = 450 patients (38.9%)) questionnaires were completed. The results show a deficit in pediatric IBD care and revealed a large gap in knowledge about core IBD topics (e.g., 74.8% of patients feel poorly informed about transition, 62.4% know little about patient organizations and self-help groups, and 54.7% have little information about preventive health measures), indicating a low level of health literacy among affected children and adolescents. Conclusion: Pediatric IBD poses significant challenges for patients, their families, and healthcare teams. By empowering patients and families, and providing targeted information and communication tailored to the age of the child or adolescent and the needs of the parents, care can be improved and better adapted to the needs of patients. Actions would include providing quality information online through scientific societies and patient organizations and facilitating self-management in adolescents.

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“…Statistically, between 30 to 50 percent of IBD patients require further psychological assistance, although outpatient settings do not routinely provide psychological support [ 2 ]. Only one of the seventeen research studies included in a recent systematic review of factors impacting resilience in young individuals with IBD addressed resilience as an objective, and none of the studies contained validated measures of resilience [ 27 ].…”

Section: Introductionmentioning

confidence: 99%

Nirvana: A Qualitative Study of Posttraumatic Growth in Adolescents and Young Adults with Inflammatory Bowel Disease

Zhu²,

Liu³

et al. 2022

Children

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(1) Background: Psychosomatic discomfort is prevalent among adolescents and young adults (AYAs) with inflammatory bowel disease (IBD). Post-traumatic growth (PTG) has been a protective factor in earlier research. However, little is known regarding PTG among AYAs with IBD. This study investigates the generation of PTG in adolescents and young adults with inflammatory bowel disease (IBD) and finds positive coping skills employed in clinical nursing practice. (2) Methods: In 2021, 32 individuals were interviewed utilizing a semi-structured interview guide. This study used qualitative content analysis. (3) Results: The interviews revealed five themes: spiritual change, internalized supportiveness, cognitive re-shaping, externalized behaviors, and future-oriented thinking. (4) Conclusions: The research revealed the presence of PTG in AYAs with IBD. To give tailored care to patients, medical professionals must monitor the state of their PTG development in a planned and focused manner.

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Systematic review: Psychosocial factors of resilience in young people with inflammatory bowel disease

Cited by 13 publications

References 81 publications

Psychische Gesundheit von Kindern und Jugendlichen mit chronisch entzündlichen Darmerkrankungen

Psychische Gesundheit von Kindern und Jugendlichen mit chronisch entzündlichen Darmerkrankungen

A Nationwide Survey on Patient Empowerment in Pediatric Inflammatory Bowel Disease in Germany

Nirvana: A Qualitative Study of Posttraumatic Growth in Adolescents and Young Adults with Inflammatory Bowel Disease

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