Ten years on: a longitudinal study of families of children with autism

Gray, David E.

doi:10.1080/1366825021000008639

Cited by 245 publications

(225 citation statements)

References 7 publications

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“…Bazı araştırma bulgularında ise, bu yeni ve zor durumun evlilikleri güçlendirdiği; aile bireylerine daha duyarlı ve sabırlı olma, hayata daha geniş perspektiften bakma gibi olumlu deneyimler ve kişisel kazançlar kattığı; yaşam için önemli bir amaç kazandırarak aile bireylerini güçlendirdiği ve tüm zorluklara rağmen çocuklarıyla ilgilenmenin ebeveynleri mutlu ettiği bildirilmektedir (Chang Yaz-2014 Cilt:13 Sayı:50 (96-111) www.esosder.org Summer-2014 Volume:13 Issue:50 98 ve McConkey, 2008;Gupta ve Singhal, 2004;Kenneth, Hodgson, McCammon ve Lamson, 2009;Üstüner Top, 2009). Bunların dışında bazı araştırma bulguları da; (a) ebeveynlerin psikolojik durumları üzerinde çeşitli değişkenlerin (örneğin, çocuktaki davranış sorunlarının yoğunluğu, ebeveynlerin kişiliği) etkili olduğunu (Dillenburger et al, 2010;Gupta ve Singhal, 2004;Gray, 2002) Yaz-2014 Cilt:13 Sayı:50 (96-111) www.esosder.org Summer-2014 Volume: …”

Section: Gđrđşunclassified

“…Alanyazındaki çeşitli çalışmalarda, tanının konduğu dönemde annelerin daha fazla stres yaşadıkları ve uygun bir eğitimin başlamasıyla stresin azaldığı vurgulanmaktadır. Ancak, ergenlik ve yetişkinlik dönemine özgü bir takım sorunların (örneğin, mesleki eğitim ve aile yaşlandığında çocuğa sunulacak hizmetlerdeki yetersizlikler) annelerin tekrar zor bir döneme girerek, yoğun stres yaşamalarına yol açabileceği belirtilmektedir (Davis ve Carter, 2008;DeMeyer, 1979;Gray, 2002). Ayrıca, çocuğun problem davranışlarının fazla olmasının ve Yaz-2014 Cilt:13 Sayı:50 (96-111) www.esosder.org Summer-2014 Volume:13 Issue:50 OSB belirtilerinin şiddetinin annelerdeki stresi belirleyen ve annelerin olumsuz duygular yaşamalarına yol açabilen değişkenler olabileceği vurgulanmaktadır (Davis ve Carter, 2008;Gray, 2002;Lyons, Leon, Roecker Phelps ve Dunleavy, 2010).…”

Section: Bulgularunclassified

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Oti̇zm Spektrum Bozukluğu Tanili Çocuk Sahi̇bi̇ Anneleri̇n Deneyi̇mleri̇

Aslan¹,

Cihan²,

Altin³

2014

Elektronik Sosyal Bilimler Dergisi

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ÖzOtizm spektrum bozukluğu (OSB) tanılı bireylerin aileleri, özellikle de anneleri bir takım olumsuz duygular ve deneyimler yaşayabilmektedirler. OSB'li bireylerin ailelerinin deneyimlerinin incelendiği araştırmalar, ailelere yönelik hizmetlerin planlanmasında ve etkili bir şekilde uygulanmasında yol gösterici bir rol oynamaktadır. Bu araştırmada, OSB'li çocuk sahibi annelerin deneyimleri ve OSB hakkındaki algıları fenomenolojik (olgubilimsel) desenle incelenmiştir. Veriler, mecazlarla (metafor) toplanıp, betimsel olarak analiz edilmiştir. Annelerin OSB'ye ilişkin mecazlarını ve bu mecazların anlamlarını içeren bulgular, ilgili alanyazın bağlamında tartışılarak, uygulama ve ileri araştırmalar doğrultusunda öneriler sunulmuştur.Anahtar Kelimeler: Annelerin Deneyimleri, Fenomenolojik Desen, Otizm Spektrum Bozukluğu, Özel Eğitim, Stresle Başa Çıkma AbstractThe research about the experiences of mothers provides unique findings concerning their support. The goal of this study is to understand the experiences of 20 Turkish mothers of children with autism spectrum disorders (ASD). This study has been conducted by utilizing a phenomenological approach, which is a type of qualitative methodology that aims to explore an individual's personal experiences. Data were collected using metaphors, which are a valuable data collection tool for gathering deep and new insights into educational studies. This data will then be analyzed via descriptive analysis. The results discussed in terms of implications for future research and practices. We are expecting this study to provide new knowledge about the perspectives of mothers in different countries like Turkey.

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Section: Gđrđşunclassified

Section: Bulgularunclassified

Oti̇zm Spektrum Bozukluğu Tanili Çocuk Sahi̇bi̇ Anneleri̇n Deneyi̇mleri̇

Aslan¹,

Cihan²,

Altin³

2014

Elektronik Sosyal Bilimler Dergisi

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“…One possible explanation for the apparent age-related improvements in maternal well-being could be that mothers of children with ASD may be developing more effective coping strategies over time. For instance, in a 10-year longitudinal, ethnographic study of parents of children with autism, Gray (2002) found that parents were doing better over time and attributed these improvements to possible increases in coping abilities. Similarly, Essex and colleagues (1999) postulated that mothers of individuals with mental retardation develop adaptive coping skills over the lifespan while navigating the multiple spheres required for their children's care.…”

Section: Age Of Child and Maternal Well-beingmentioning

confidence: 99%

A Comparative Analysis of Well-Being and Coping among Mothers of Toddlers and Mothers of Adolescents with ASD

Smith

Seltzer

Tager–Flusberg

et al. 2007

J Autism Dev Disord

205

154

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The present study examined the impact of autism symptoms and coping strategies on the well-being of mothers of children with ASD. The sample consisted of 153 mothers of toddlers and 201 mothers of adolescents drawn from two ongoing, longitudinal studies of families of individuals with ASD. For mothers of toddlers, lower levels of emotion-focused coping and higher levels of problemfocused coping were generally associated with better maternal well-being, regardless of the level of child symptomatology. For mothers of adolescents, coping often acted as a buffer when autism symptoms were high. Although there was evidence of maternal distress in both groups, the presence of significant buffering effects reflects adaptation in the face of stress, particularly for mothers of adolescents. Keywordscoping; autism symptoms; maternal well-being; toddlers; adolescents Raising a child with an autism spectrum disorder (ASD) is considered to be a highly stressful event for families (Duarte, Bordin, Yazigi, & Mooney, 2005). In comparison to parents of children with other disabilities (Down syndrome, fragile X syndrome, undifferentiated developmental disability, and cerebral palsy), mothers of individuals with ASD report more negative impact and poorer well-being during their children's preschool years (Eisenhower, Baker, & Blacher, 2005) and adulthood Blacher & McIntyre, 2006). Despite the challenges associated with caring for a child with a developmental disability, there is evidence that coping strategies may play a protective role for parents (Essex, Seltzer, & Krauss, 1999;Seltzer, Greenberg, & Krauss, 1995). The present study evaluated the impact of children's autism symptoms and maternal coping strategies on well-being in mothers of toddlers and mothers of adolescents with ASD. Child Characteristics and Maternal Well-BeingThe challenging behaviors of children with ASD have been repeatedly associated with poor maternal psychological well-being Allik, Larsson, & Smedje, 2006;Herring et al., 2006) and high levels of stress (Bromley, Hare, Davison, & Emerson, 2004;Lecavalier, Leone, & Wiltz, 2006). There is some Correspondence concerning this article should be addressed to: Leann E. Smith, Waisman Center, University of Wisconsin-Madison, 1500 Highland Ave., Madison, WI 53705. Phone: (608) 890-1390; Fax: (608) NIH-PA Author ManuscriptNIH-PA Author Manuscript NIH-PA Author Manuscript debate, however, if the core symptoms of ASD, or alternatively, behavior problems more generally, drive this connection between autism and maternal well-being. For instance, a recent study by Hastings, demonstrated that behavior problems of preschool children with autism, but not adaptive behavior or severity of autism symptoms, were associated with maternal stress. Similarly, in a study comparing toddlers and preschoolers with pervasive developmental disorder to those with developmental delays, emotional and behavioral problems predicted maternal stress, mental health problems, and family dysfunction above the effects of diagnosis, le...

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“…In these countries, families of autistic individuals generally have access to and utilize various residential placement options. Autistic school-age children in these countries are generally enrolled in regular or special education schools (Wall, 1990;Gray, 2002). In contrast, the Egyptian experience with ASD care appears to be based on a "home-grown" service, whose cost implications substantially differ from those in many developed/industrialized countries, particularly in the western hemisphere.…”

Section: Socio-demographic Characteristicsmentioning

confidence: 99%

The Economics of Autism in Egypt

Mendoza¹

2010

American Journal of Economics and Business Administration

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Problem statement: This was the first study ever done on the cost consequences of Autism Spectrum Disorder (ASD) in Egypt or any other developing/industrializing country. The following questions were empirically investigated: What are the economic costs of ASD in Egypt and how do they compare with developed/industrialized countries? Why are cost consequences important in formulating ASD policy in Egypt and comparable countries? Approach: A statistical sample of 185 households, with at least 1 autistic family member, in the Greater Cairo Region was surveyed. Households were drawn from 3 distinct geographic clusters (urban, suburban and rural). Cluster sampling results were Chi-square (χ 2 ) tested. In addition, relevant ASD policies were contentanalyzed. Results: We discovered that care and support for autistic Egyptian children and adults are typically based on a household-provider model, in contrast to western, institution-based models. ASD costs in Egypt largely derive from much higher investments in time, attention and behavioral adaptation on the part of family caregivers. Hence, autism cost consequences in Egypt significantly differ from many developed countries. Conclusion: Opportunity and transaction costs, feedback effects and spillover consequences of the household-provider model should be carefully considered in health policy formulation. Making autism care and support available, affordable and reliable should be a major health concern of the state.

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Ten years on: a longitudinal study of families of children with autism

Cited by 245 publications

References 7 publications

Oti̇zm Spektrum Bozukluğu Tanili Çocuk Sahi̇bi̇ Anneleri̇n Deneyi̇mleri̇

Oti̇zm Spektrum Bozukluğu Tanili Çocuk Sahi̇bi̇ Anneleri̇n Deneyi̇mleri̇

A Comparative Analysis of Well-Being and Coping among Mothers of Toddlers and Mothers of Adolescents with ASD

The Economics of Autism in Egypt

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