The Cerebral Palsy Quality of Life for Children (CP QOL-Child): Evidence of construct validity

Chen, Kuan‐Lin; Wang, Hui Yi; Tseng, Mei‐Hui; Shieh, Jeng-Yi; Lu, Lu; Yao, Grace; Huang, Chiung Chun

doi:10.1016/j.ridd.2012.11.025

Cited by 25 publications

(16 citation statements)

References 30 publications

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“…Regarding severity, highest percentage of children were less GMFCS Level II (31%) and least GMFCS Level V (7.1%), which was consistent with studies conducted in various countries 20,24,25 . The reason behind higher percentage among GMFCS II (less severe) and least among GMFCS V (most severe) could be that it is easierfor lesser severe children to access specialized centre and the parents are also hopeful as there is apparently more potential for improvement for a less severe child.…”

Section: Discussionsupporting

confidence: 89%

Children with Cerebral Palsy and their Quality Of Life in Nepal

Shrestha

Paudel

Thapa³

2018

J. Nepal Paedtr. Soc.

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Introduction: Cerebral Palsy (CP) may affect individual's everyday life and it may have significant impact on quality of life (QOL). The objective of this study was to assess the quality of life of children with Cerebral Palsy in Nepal. Material and Methods: This is a descriptive cross sectional study that involved 42 children between 4 and 12 years of age. The Socio-demographic variables were obtained from interviews and CP related factors were obtained from medical reports. Validated CP-QOL child self-report and parent proxy version of questionnaire was used for data collection. Severity was assessed using Gross Motor Function Classification System (GMFCS), Manual Ability Classification System (MACS), Communication function Classification System (CFCS) and ICD-10 Classification System. Data were summarized using descriptive statistics. Kruskal Wallis and Man Whitney was used to find out association between Cerebral Palsy related factors and Quality of Life. Results: 57.1% (n=24)were between 8 and12 years of age and 42.9% (n=18) were between 4 and 8 years of age. Overall QOL was reported to be fairly good. Both the child and Caregiver gave highest score on "Social wellbeing and acceptance" and "Emotional wellbeing and self-esteem domain" and Lowest Point in "Pain and Impact of disability". This implies that Psychosocial Quality of Life is good in children with CP. Quality of Life as reported by child was better than Quality of Life reported by Caregiver. Conclusion:Overall QOL is fairly good in children with CP.However, Pain and impact of disability impairs QOL.

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Section: Discussionsupporting

confidence: 89%

Children with Cerebral Palsy and their Quality Of Life in Nepal

Shrestha

Paudel

Thapa³

2018

J. Nepal Paedtr. Soc.

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“…To score the CP QOL-Child, caregiver's responses are aggregated across items and an average is calculated across the sample and then converted to a 0 to 100 scale based on the coding algorithm provided by Waters et al [29]; a higher average score equals higher QOL. In multiple validation studies the CP QOL-Child had good test-retest reliability, construct validity and internal consistency, and Cronbach's alphas of 0.74 to 0.91 [5, 28, 30, 31]. Additionally, parental perceptions provided in the CP QOL-Child correlate with medical professional ratings of patient QOL for children with CP [32].…”

Section: Methodsmentioning

confidence: 99%

Factors Related to Psychosocial Quality of Life for Children with Cerebral Palsy

Tessier

Hefner

Newmeyer

2014

International Journal of Pediatrics

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Background. Current health services interventions focus on the treatment of the musculoskeletal impairments of cerebral palsy (CP). The goal of this study was to explore whether the severity of physical symptoms correlates with psychosocial quality of life (QOL) among pediatric patients with CP. Methods. A sample of 53 caregivers of children with CP was surveyed and health status information was extracted from patient medical records. Descriptive analysis explored the association between the main outcome variable, psychosocial QOL (CP QOL-child), and patient demographics, comorbidity (e.g., visual, hearing and feeding impairments, language delays, and epilepsy), CP severity (GMFCS), and the receipt of family centered care (MPOC-20). Results. Child psychosocial QOL decreased with increasing comorbidity but was not associated with CP symptom severity or any measured demographic factors. Reporting high levels of family centered care (FCC) was associated with higher psychosocial QOL in univariate analysis but was not significant when controlling for comorbidities. Conclusion. There is no clear connection between symptom severity and psychosocial QOL in children with CP. Comorbidity however is strongly associated with psychosocial QOL. Focusing on reducing CP comorbidities could have a positive impact on psychosocial QOL.

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“…Although the QoL indexes are similar for children/adolescents classified with Gross Motor Function Classification System levels I and II 18 , there was greater interest in adapted Table 3. Comparison between the study and control groups in relation to the scores obtained at moments 1 and 2 (M1 and M2, respectively) and the variation between the scores related to the Child Behavior Checklist for ages 6-18 years syndromes*.…”

Section: Discussionmentioning

confidence: 99%

Influence of adapted hip-hop dancing on quality of life and social participation among children/adolescents with cerebral palsy

Withers

Muzzolon

Zonta

2019

Arq. Neuro-Psiquiatr.

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To describe the influence of adapted hip-hop dancing on the quality of life (QoL) and biopsychosocial profile of children/adolescents with cerebral palsy (CP). Methods Pilot study including 18 children/adolescents with CP and Gross Motor Function Classification System levels I and II. Nine participants took part in an adapted hip-hop dance practice (study group; SG), and nine others served as the control group (CG). All participants were assessed with the Pediatric Outcomes Data Collection Instrument and the Child Behavior Checklist at baseline and after at least three months of dance practice and a public performance (SG) or a similar period without intervention (CG). Results Improvement in QoL was observed in the SG in the domains of transfer and basic mobility (p = 0.00*), sporting and physical function (p = 0.04*), and global function and symptoms (p = 0.01*). In the SG, there was a reduction in emotional and behavioral problems and an increase in social competence in the biopsychosocial profile. Greater participation in adapted hip-hop dancing was associated with a greater gain in the transfer and basic mobility domains (p = 0.05*) of the Pediatric Outcomes Data Collection Instrument and in the activities (p = 0.05*) and social (p = 0.04*) scales of the Child Behavior Checklist. Conclusions Children/adolescents with CP participating in adapted hip-hop dance practice showed improvement in QoL and biopsychosocial profile scores.

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The Cerebral Palsy Quality of Life for Children (CP QOL-Child): Evidence of construct validity

Cited by 25 publications

References 30 publications

Children with Cerebral Palsy and their Quality Of Life in Nepal

Children with Cerebral Palsy and their Quality Of Life in Nepal

Factors Related to Psychosocial Quality of Life for Children with Cerebral Palsy

Influence of adapted hip-hop dancing on quality of life and social participation among children/adolescents with cerebral palsy

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