The face of Autism research as reflected in the IMFAR looking glass

Bebko, James M.; Schroeder, Jessica; Weiss, Jonathan A.; Wells, Kerry; McFee, Kristen; Goldstein, Gayle

doi:10.1016/j.rasd.2007.06.005

Cited by 6 publications

(3 citation statements)

References 5 publications

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“…We first posited that the inclusion of the severely affected population in autism research has decreased over time. This hypothesis is supported by prior research on the topic (Bebko et al 2008 ; Crosland et al 2013 ), but our approach confirmed this trend through analysis of a much wider breadth of publications and a novel, more liberal definition of severity. At the outset, we developed our hypothesis of decreased inclusion based on several factors, including: possible changes in recruitment practices giving researchers access to a wider swath of the ASD population, an increase in the identification and prevalence of ASD, and increased recognition of the heterogeneity of the autism spectrum.…”

Section: Discussionsupporting

confidence: 85%

“…Exploring more current research on the topic, Bebko et al ( 2008 ) reviewed abstracts presented at the International Meeting for Autism Research (IMFAR) from 2004 to 2006 to examine trends in research topics, participants, and study design. Most pertinent to the present study were their findings on the reported functioning levels of study participants.…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Are Children Severely Affected by Autism Spectrum Disorder Underrepresented in Treatment Studies? An Analysis of the Literature

Stedman¹,

Taylor

Erard

et al. 2018

J Autism Dev Disord

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Despite significant advances in autism research, experts have noted that children severely affected by autism spectrum disorder (ASD) appear to have been understudied. Rigorous analysis of this observation has been limited, and the representation of severity has not been well-described. We assessed three domains of severity (communication ability, cognitive functioning, and adaptive functioning) in 367 treatment studies of children with ASD published 1991–2013. We found that the proportion of studies that included the severely affected population decreased significantly over time, as well as wide variability in measurement and reporting. Inadequate representation of the full autism spectrum in the literature could lead to an unbalanced picture of ASD and leave behind those with arguably the greatest need.

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Section: Discussionsupporting

confidence: 85%

Section: Introductionmentioning

confidence: 99%

Are Children Severely Affected by Autism Spectrum Disorder Underrepresented in Treatment Studies? An Analysis of the Literature

Stedman¹,

Taylor

Erard

et al. 2018

J Autism Dev Disord

View full text Add to dashboard Cite

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“…The sample was not completely representative of the ASD population, since 82% of the participants had mental retardation and the sample comprised only five subjects with AS. The proposed estimates of associated cognitive impairments in ASD populations currently range from 40 to 70% [3]. However, the study reported here included individuals from various centres that reflect the different residential settings offered in France.…”

Section: Strengths and Limitationsmentioning

confidence: 99%

Validation of the repetitive and restricted behaviour scale in autism spectrum disorders

Bourreau

Roux

Gomot

et al. 2009

Eur Child Adolesc Psychiatry

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Repetitive and restricted behaviours represent a common problem for various psychiatric syndromes, especially in autistic spectrum disorders, and they include a wide range of heterogeneous behavioural manifestations. An accurate and standardized description of these behaviours is needed to advance the understanding of this complex and heterogeneous clinical dimension of autism. The present article reports the reliability and validity studies of a new assessment scale: the repetitive and restricted behaviour scale. 145 subjects with autism spectrum disorders were assessed using the RRB scale. The RRB scale has good interrater reliability, internal consistency and content validity. Factorial analysis produced four clinically meaningful factors, i.e. "sensorimotor stereotypies", "reaction to change", "restricted behaviours" and "modulation insufficiency". The RRB scale has good psychometric qualities and constitutes a real breakthrough towards a neurofunctional approach to autistic disorders. It should be valuable for research and treatment, and in clinical practice.

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