The impact of nonsyndromic cleft lip with or without cleft palate on oral health-related quality of life

Abstract

Nonsyndromic cleft lip with or without cleft palate (NSCL±P) compromises oral health, leading to missing or malformed teeth, and hampering oral hygiene. Apart from anatomic damages, NSCL±P also culminates in an impact on the routine quality of life with social privation and psychological embarrassment.ObjectiveTo evaluate the impact of NSCL±P on oral health-related quality of life.Material and MethodsThe study was classified as exploratory and descriptive, with quantitative approach. Patients with NSCL±P treated between August 2013 and September 2014 at the Cleft Lip and Palate Integral Care Center (CAIF), Curitiba, Brazil, were invited to participate. Age and sex-related data were collected, as well as level of education, financial income, type of orofacial cleft, use of orthodontic and prosthetic appliances, and number of previous orofacial surgeries. Selected patients were asked to answer the Oral Impact on Daily Performance (OIDP) questionnaire designed to measure the impact of oral health on daily performances.ResultsThe sample was composed of 103 (44.59%) women and 128 (55.41%) men, with mean age of 19.74 ± 10.20 (7–65) years. The OIDP values ranged from 1 to 175 in 114 (49.35%) patients (mean: 22.38), whereas 117 patients (50.65%) presented total OIDP value equal to zero. High negative impact of NSCL±P on daily performances was detected when associated with the female sex (p=0.037). Daily performances related to phonetics (OIDP2; 2.63) and aesthetics (OIDP5; 2.48) presented the highest average values when compared to other daily performances, except OIDP6. The main symptoms and reported oral problems comprised the aesthetic dissatisfaction.ConclusionsAlmost half of the patients evaluated in this study showed negative impact of NSCL±P in the performance of daily activities.

Dental genetics in Brazil: Where we are

“…Cleft lip with or without cleft palate is a common congenital disorder resulting from the lack of merging between the embryonic structures that precede the formation of lip and palate (Silva, Balderrama, Wobeto, Werneck, & Azevedo‐Alanis, ). About 70% of oral clefts occur as a nonsyndromic form, and the remaining 30% are associated with Mendelian disorders or chromosomal, teratogenic, and sporadic conditions.…”

Perfil epidemiológico y presencia de polimorfismos IFR6 (rs2235371), TGFA (rs3771494) en individuos con labio y paladar hendido no sindrómico

“…En México, la incidencia se presenta en 1 por cada 2000 nacimientos por año 1 . Por otra parte, la prevalencia muestra una distribución heterogénea pues, del total de los casos de LPH, esta se ha reportado desde un 50% 6 , mostrando un 70% 7 , hasta alcanzar un 93-95% en su entidad no sindrómica 8 , Adicional a lo anterior, es importante mencionar que el LPH además de afectar la estética, tiene un impacto negativo y severo en la nutrición, la calidad de vida, la salud bucal, el desarrollo de habilidades y de lenguaje de quienes la padecen, situación que se agrava en la edad pediátrica por la implicación del desarrollo y crecimiento que, de no corregirse, se continúa en la etapa adulta [9][10][11][12] .…”

Factors influencing parental pregnancy decision-making due to fetuses with non-syndromic orofacial clefts: a study of Chinese couples

“…Different types and severity of OFC can effect the patient's diet, appearance, language development, and tooth eruption and arrangement to varying degrees [11,12]. OFC may even lead to nasal fistula, hearing impairment, and mental and psychological disorders [13][14][15]. However, surgery, dental treatment, and psychosocial intervention can be applied after birth to provide multi-disciplinary care for children with NSOFC [15,16].…”