The impact on the family of the co‐existing conditions of children with autism spectrum disorder

Petrou, Alexandra; Soul, Abigail; Koshy, Beena; Parr, Jeremy

doi:10.1002/aur.1932

Cited by 13 publications

(14 citation statements)

References 57 publications

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“…Despite not screening for behavior problems, the sample reported high levels with more than 70% scoring in the CBCL subscale clinical range. This is in line with other research showing elevated levels of behavior problems in children with ASD [O'Nions et al, 2018;Petrou et al, 2018]. Similar to other research, levels of parental stress were elevated compared to population expectations for the United Kingdom.…”

Section: Discussionsupporting

confidence: 91%

“…Autism spectrum disorders (ASD) are a set of neurodevelopmental conditions characterized by deficits in social interaction and social communication, and the presence of repetitive, stereotyped behaviors [Lai, Lombardo, & Baron-Cohen, 2014]. It is common for children with ASD to exhibit co-occurring behavioral and emotional problems including temper tantrums, sleep disturbances, noncompliance, and irritability [O'Nions, Happé, Evers, Boonen, & Noens, 2018], with approximately 50% showing four or more coexisting problems [Petrou, Soul, Koshy, McConachie, & Parr, 2018]. One in four children with ASD meet diagnostic criteria for Oppositional Defiant Disorder and/or Conduct Disorder [Kaat & Lecavalier, 2013] but many more can display behavior problems that do not reach the threshold for diagnosis.…”

Section: Introductionmentioning

confidence: 99%

“…Parents of children with ASD report higher levels of stress compared to parents of typically developing children [Barroso, Mendez, Graziano, & Bagner, 2018], but it is the co-occurring behavior problems that cause the most parental distress [Petrou et al, 2018]. Elevated levels of depression and anxiety are also reported by parents of children with ASD [Padden & James, 2017], leading to a lower quality of life [Vasilopoulou & Nisbet, 2016] and decreased parenting self-efficacy [Giallo, Wood, Jellett, & Porter, 2013].…”

Section: Introductionmentioning

confidence: 99%

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The Incredible Years Autism Spectrum and Language Delays Parent Program: A Pragmatic, Feasibility Randomized Controlled Trial

2020

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Behavior problems in children with autism spectrum disorders (ASD) are common and particularly stressful for parents. This study aimed to examine the feasibility of delivering a parenting program in existing services, and the feasibility of conducting a future large‐scale Randomized Controlled Trial evaluation of the effectiveness of the intervention. Parents of children aged 3–8 years with a diagnosis of ASD, or strongly suspected ASD were eligible to participate. A multicenter, pragmatic, feasibility randomized controlled trial was conducted in four specialist children's services in Wales. Families were randomly assigned to receive the Incredible Years® Autism Spectrum and Language Delays (IY‐ASLD) parent program immediately or to a wait‐list, treatment as usual control condition. IY‐ASLD sessions were delivered once a week for 12 weeks. The primary outcomes related to feasibility (recruitment, retention, fidelity, and acceptability). Preliminary outcome analyses were conducted using covariance models controlling for study site and baseline scores. From October 5 to December 19, 2016, 58 families were randomized, 29 to IY‐ASLD and 29 to control. Three parents did not attend any sessions while 19 (73%) completed the program. Fidelity of delivery was high (88%), as was satisfaction with the program. Fifty‐three (91%) completed the follow‐up measures. All 95% CIs for effect sizes included zero in exploratory outcome analyses. This study supports the feasibility of delivering the IY‐ASLD in existing services with good levels of acceptability and fidelity evident. A larger randomized controlled trial is required to examine the effectiveness of the program. Autism Res 2020, 13: 1011‐1022. © 2020 International Society for Autism Research, Wiley Periodicals, Inc. Lay Summary This study examined the feasibility and acceptability of delivering a parenting program for parents of children aged 3–8 years with Autism Spectrum Disorder in existing child services. Recruitment and retention in the study were good and parents rated all aspects of the program positively. Practitioners were able to deliver the program as intended and the measures used for program outcomes were appropriate. A larger study to examine program effectiveness would be feasible.

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Section: Discussionsupporting

confidence: 91%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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The Incredible Years Autism Spectrum and Language Delays Parent Program: A Pragmatic, Feasibility Randomized Controlled Trial

2020

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“…To our knowledge, this is the first study to demonstrate a sex difference in the context of sufficient sleep duration, physical activity, and reported ASD diagnosis. There is a growing body of evidence that female autistic children may have more sleep difficulties than male autistic children (Angell et al, 2021; D’Agati et al, 2020; Hartley & Sikora, 2009; Mazurek & Sohl, 2016; Petrou et al, 2018; Wang et al, 2016). Therefore, it will be important to understand factors affecting the relationship between sleep and physical activity and if similar findings occur with sleep traits beyond sufficient sleep duration.…”

Section: Discussionmentioning

confidence: 99%

Sufficient sleep duration in autistic children and the role of physical activity

Smidt

Gooneratne

Brodkin

et al. 2022

Autism

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Emerging evidence suggests that physical activity may be associated with improved sleep in autistic children. We aimed to determine whether physical activity associated with sufficient sleep duration in children and whether this association was modified by reported autism spectrum disorder (ASD) status. We analyzed existing data of children 6–17 years old whose caregivers completed the 2018 National Survey of Children’s Health (nonautistic N = 20,845; ASD N = 681). Logistic regression determined whether physical activity (days active in the past week) associated with sufficient sleep duration. Physical activity-by-ASD interactions were included to determine whether the association differed for autistic children. Physical activity-by-ASD-by-sex and physical activity-by-ASD-by-age-group interactions were also modeled. Physical activity was associated with increased odds of sufficient sleep duration (e.g. 0 days vs 4–6 days: odds ratio (OR) = 1.85; 95% confidence interval (CI): 1.48–2.32). We did not observe an overall statistically significant interaction between physical activity and reported ASD status; however, the positive association between physical activity and sufficient sleep duration was weaker in autistic children, especially those with more severe ASD, female autistic children, and autistic children ages 6–12 years old. In conclusion, physical activity is a promising approach to improve sufficient sleep duration but with nuanced findings in autistic children. Lay abstract Higher levels of physical activity may be associated with improved sleep in children, but this relationship is still being determined, especially in autistic children. In this study, we used existing data from the 2018 National Survey of Children’s Health. Caregivers of children 6–17 years old, including caregivers of autistic children, completed a questionnaire that included questions about physical activity (days active in the past week) and sleep duration. We then determined if children were obtaining the recommended hours of sleep for their age (i.e. sufficient sleep). We found that higher physical activity levels were associated with sufficient sleep duration, but this finding was weaker in autistic children. In particular, this association was not observed in autistic children with more severe autism spectrum disorder, female autistic children, and autistic children 6–12 years old. In conclusion, physical activity is a promising approach to help children obtain sufficient sleep duration. However, more personalized approaches to improving sleep may be needed for certain groups of autistic children.

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“…The symptoms that occur in ASD children along with other problems that accompany will have a significant impact on ASD children and their families in various ways depending on the nature, severity, frequency, and the number of symptoms and problems that accompany it. Caring for children with ASD and the severity of ASD symptoms will affect the mental and social health of patients and families such as anxiety, depression, isolation and social consequences, financial care, parental stress, family cohesion, relationship satisfaction, and lower well-being and high family conflict [3]. The relationship between child behavioral symptoms and family function is two-way, where challenging behavior for ASD children can worsen maternal well-being and in turn have a negative impact on children who inadvertently encourage reactive challenging behavior.…”

Section: Introductionmentioning

confidence: 99%

Parent Training Program for Autism Spectrum Disorder During The Covid-19 Pandemic Period in Indonesia

Ardiyani

Febriyana

Setiawati

et al. 2020

JPS

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Autism Spectrum Disorder (ASD) is a pervasive developmental disorder that shows difficulties in communication, social interaction, behavior, interests and activities that are limited and repetitive. The prevalence of ASD also continues to increase worldwide, followed by an increase in the need for early intervention in ASD children. The limited services available make early intervention a challenge in itself. The long Covid-19 pandemic has resulted in limited therapy, because therapy in treatment service facilities cannot be carried out as before. In this case it is important to involve parents as the primary caregivers for ASD children in interventions to anticipate the limited interventions due to a pandemic situation. Parent Training can be done as an effort to provide information, education, and skills to parents so that they can provide intensive, comprehensive, sustainable, and early intervention.

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The impact on the family of the co‐existing conditions of children with autism spectrum disorder

Cited by 13 publications

References 57 publications

The Incredible Years Autism Spectrum and Language Delays Parent Program: A Pragmatic, Feasibility Randomized Controlled Trial

The Incredible Years Autism Spectrum and Language Delays Parent Program: A Pragmatic, Feasibility Randomized Controlled Trial

Sufficient sleep duration in autistic children and the role of physical activity

Parent Training Program for Autism Spectrum Disorder During The Covid-19 Pandemic Period in Indonesia

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